05/22/2025
Hello friends! It has been over 6 months since my transplant, so I wanted to give an update on everything… and it’s long. First and foremost , Linda the kidney is doing GREAT! My last set of labs (for ALL the things… not just kidney related) were the best they’ve been since I first got sick in November of ‘22! For that I am super grateful, and will continue to thank my donor for this amazing gift. Thank you again Laurie!!! 💚
That being said… I gotta give you the good AND the bad. Side effects suck. Since transplant, I have added 4 new doctors to my care team, bringing my active care team up to 10 doctors, 2 PA’s, a dietician, a transplant nurse who is amazing, a couple of physical therapists, and a handful of phlebotomists who know me by name. And for those who remember where I was before diagnosis (no active care team at all), this is kind of hilarious.
Quick little recap since the beginning of the year: The medicines have my hair thinning and have given me the itchiest damn scalp. Doctor gave me a shampoo to use, but i really need to see the dermatologist. Of course, first available isn’t until the end of July. 😩
Transplant amplified some lady issues that I’ve had for a while, which gave me 1 new PA and 1 new doctor. It also gave me a new medication. Also, I pretty much begged for a hysterectomy, but they won’t do it unless there are no other options, due to all of the bad things that could happen. So, that’s irritating.
I started having severe lower back pain and stiffness, as well as worsening weakness and pain in my left leg. I already had degenerative disc disease and arthritis, but new xray confirmed that the ddd has worsened and spread… adding PT to my list of appointments. What is most sucky about this, is that I’m not able to take pain pills that also reduce inflammation, and am pretty much limited to Tylenol… so I might as well swallow a tic tac. 🙄
The most recent “side effect” is bladder issues, which most likely came about due to the way my kidney was hooked up, along with the back issues affecting certain things. So, add another doctor and medication!!
I’m not complaining, but it’s all just super irritating. I just really wanted to let every one know the latest, since I haven’t updated in a while. And I wanted to just give you a reminder to NOT BE LIKE ME! SEE YOUR DOCTOR ON A REGULAR BASIS! Get the annual physical. Get the screenings. Get annual bloodwork done. Get the mammogram. Check your blood pressure! DO ALL THE THINGS!!