10/21/2020
So Dominik had a scope, biopsies and blood work done last week and I was waiting to hear back from the doctor before I updated. The results are in, and are not good, actually they’re really bad. Last year when Dominik had his last scope he was near remission which means that his eosinophil counts were below 15. This scope/biopsy told us that Doms eosinophil counts are again in the hundreds in his lower esophagus and 50s in the upper. His bloodwork has his doctor concerned. He has several vitamin deficiencies, one that she said was dangerously low. He is also dangerously low on protein. He will be starting a steroid again, we had taken him off back in March to see if his body would be able to take care of its self without it and this scope proved it cannot. He hast to start a high dose of vitamin D two times a day and a high dose multivitamin two times a day. He is also being referred to a dietitian nutritionist to see if we can find food that is not only safe for him but also high in what he is lacking. His doctor is concerned since he is already not allowed to have so much that we may not be able to feed him, orally, enough that will keep him healthy. When we spoke during his scope she had goals to remove his tube. She said he looks so good and had high hopes that things were well. I now we don’t know if that’s going to be able to happen. Hard lesson learned, looks can be deceiving. Dom looks so good on the outside. Everybody seriously tells us that when they see him. but his little body is fighting so hard. And my heart breaks. I hate this for him, I hate this for us.
We have a follow up with his doctor next week and I might know a little bit more to be able to update. But a lot of people have asked about Dom. A lot of people that knew about his scope have been wondering. So I just wanted to update a little bit. If everybody could keep him in your thoughts and prayers, juju, whatever you do that would be greatly appreciated. And we will figure this out.
