Team Carson CMT2

03/25/2024

If anyone is interested in learning more about CMT, they’ll be going live to explain. I myself can’t wait to hear it.

Join us on Tuesday, March 26 from 4-5pm ET for MDA virtual learning focused on Charcot-Marie-Tooth disease (CMT). Steven Scherer, MD, PhD Penn Medicine will share updates on the status of research and clinical trials in CMT as well as an overview of best practices in the care and management of CMT.

Register for free: https://www.mda.org/care/community-ed/virtual-learning-programs/2024/research-and-care-for-cmt

03/05/2024

Tomorrow is another appointment with the CMT doctor at Nationwide Children’s, Columbus. Carson has been experiencing fatigue, pain, discomfort and limited mobility. Pray for some answers or medications that will help him 💙

Still no braces. They’re taking forever to come in☹️ and he needs them! Hopefully 🤞🏼 this week.

We enjoyed lots of sunshine today ☀️ ice cream and swinging at the park. Just what was needed.

02/20/2024

Got to meet Dylan Scott over the weekend and gave him one of Carson’s bracelets and he immediately put it on and said I got you and asked about him.

02/19/2024

What is CMT2? CMT2 is characterized by distal weakness, atrophy, sensory loss, decreased deep-tendon reflexes, and variable foot deformity. Onset of symptoms occurs later in CMT2 than CMT1, typically between the ages of 5 and 25 years. CMT2 is generally less severe than CMT1, with more motor than sensory involvement.

02/19/2024

Welcome to Carson’s CMT2 journey. Thank you for your support and following along.

02/19/2024

Fundraiser for Carson and to support CMT2 $2 per bracelet adult or youth sizes. Funds will support Carsons needs along with some will be donated to CMT2 foundation. We officially have these in stock now.