Rally for Rusty Hilst

07/21/2025

Epic Estate Sales will be conducting an estate sale at Rusty's home at 59 Meadowlark Lane (Hutchinson, KS) on Friday and Saturday, August 15-16. Hope to see you there!

Send a message to learn more

07/14/2025

We are investigating how best to sell Rusty’s furniture and other personal items. When we make a decision we will post a notice with details to this Rally for Rusty Hilst page. Please check back if interested!

We also expect Rusty's home to be on the market soon. If you know someone who might be interested, please pass it along.

07/07/2025

Update
The time has come...

Two and a half years have passed since Rusty was diagnosed with Lou Gehrig's disease, leading to the creation of this page. Its mission? To support Rusty as he battled this awful disease.

Rally for Rusty Hilst succeeded in doing that. Spectacularly! It enabled Rusty to remain relevant and engaged, doing what he most loved -- teaching. It infused him with purpose and gave him voice, quite independent of failing vocal chords. He had only to come here of a Monday morning to know that he still mattered. Because you showed up, and you cared.

With Rusty's death, the time has come to celebrate what you have accomplished. And to close that chapter. This, then, will be my last Monday morning update.

I will miss you and these weekly gatherings. But I will still be around, first reading your comments, and after that, reachable by email: linley@gmail.com. I would love to hear from you.

Rusty was all about finding joy in life. And driving this search? That would be a powerful emotional force which is often overlooked, or dismissed as wishful thinking -- hope. I'd like to wrap up by giving hope its due.

A recent study done at the University of Missouri, involving more than 2,300 participants from different backgrounds, explored a wide range of positive emotions – amusement, excitement, contentment, happiness. Of them all, one emotion stood out in importance. Only hope consistently predicted a stronger sense of meaning in life. Hope infused life with depth, purpose, and direction.

Best of all, the researchers suggested, such hope can be cultivated. Simple, practical habits, such as noticing the good moments – even something as small as a kind gesture or a peaceful morning – can make a difference, reminding us that things can go right.

Hope helps us move through tough times, not by pretending things are perfect, but by allowing us to imagine that things could improve. Rusty never lost that sense of possibility, even when things appeared most bleak. As the losses to ALS mounted, he continued to find hope in nature's beauty and the companionship of friends.

It's easy to dismiss hope as just a feel-good emotion. But it’s something we need to live well. And it’s something we can practice every day. I can hear Rusty encouraging us to do just that.
Sandra (sister)

Send a message to learn more

07/07/2025

These three great nephews of Rusty are sporting their "Uncle Rusty" golf hats. Grandsons of Rhonda (Rusty's sister) and Bob Kimball (and sons of Alan and Megan Kimball) are Theodore Alan (8), Everett James (5), and Laurence Russell (2) Kimball. Alan, Teddy, and Laurence are namesakes of Rusty.

06/30/2025

Update
I have struggled with this update. Perhaps because I was unable to attend my brother's funeral, and thus cannot capture the immediacy of that event (despite having watched it remotely). Perhaps because I don't know what happens now with a Rally page that was begun to support Rusty in life, now that he has died. I feel exhausted, and words elude me.

So I'm taking a break. And looking for something uplifting. Pictures often raise my spirits. If this is true for you too, enjoy this slideshow of Rusty photos. It was displayed at his memorial service. Pictures appear in random order, and some will be familiar.

https://docs.google.com/presentation/d/e/2PACX-1vSSfjUS_yZRn5NDNogX514TYdZM2ISRL1sT0O2SX9_gH3NumZb50ZFyj6nQvx-zcC98M1H6-i2mtjmB/pub?start=true&loop=true&delayms=10000

Life-Sustaining Joy

Since Rusty died, I've been thinking about difficult times and joy. And I have a question. Where do you turn for delight? What is something you do purely for the wonder and joy of it?

This could be anything... Spouting poetry or cracking a corny joke. Wearing something outlandish that makes you smile. Singing your heart out. Giving a great belly laugh. Snuggling a pooch (or kitten or child). Going outside just to feel the sun on your skin or to pick flowers from the yard.

What matters is it makes you feel good. Nothing else.

Would you share one of your joyful experiences with us in a comment? Shared, your joy becomes ours as well, leading to many more moments of delight.

And, in Rusty's honor, do one joyful thing this week (more is better!).
Sandra (sister)

06/27/2025

A quick reminder that Rusty's Memorial service will be tomorrow, Saturday, June 28, 2025, at 11:00 a.m. at
Our Redeemer Lutheran Church
407 E 12th
Hutchinson, KS
A luncheon at the church will follow.

The service will livestream online and in the church gymnasium and can be accessed via the Our Redeemer Lutheran page. In accord with facebook rules, the video will not be available later. Please note, you may need a Facebook account to view the livesteam online:

https://www.facebook.com/orlhutch

Rusty's obituary can be found online at the Elliott Mortuary website:

(https://www.elliottmortuary.com/obituary/rusty-hilst

Friends may sign the book 9 a.m. to 5 p.m. at Elliott Mortuary. 1219 N. Main, Hutchinson, KS 67501. In lieu of flowers, memorials are suggested to Central Links Golf or HHS Alumni Association, in care of Elliott Mortuary.

Sunday Worship Services are at 8:30am and 11:00am. Adult Bible Study class and Sunday School classes

06/23/2025

Update
My heart overflows with gratitude, for each of you.

You accompanied Rusty along his difficult and scary ALS journey, offering hope, encouragement, companionship. It was a rocky journey, a lonely one, and you eased the way, providing purpose and comfort.

The Rally page was begun to support Rusty, and so it did. You are the reason why. In his posts and your responses, Rusty found a compelling reason to keep going, to keep fighting. Because he could share with you, and you, with him, he was not alone. You made space for him in your lives. And he mattered still. Even as his losses mounted up, he could always look to those Mondays, deciding what to say as he strove to make sense of the seemingly senseless. You anchored him. Nurtured him. And enabled him to continue what he most loved, teaching.

ALS is a cruel disease. You, on the other hand, have been extraordinarily kind and thoughtful. In a world that too often seems hostile or indifferent, you cared. And gave of yourselves freely.

I don't know whether the Rally page will continue beyond Rusty. Or if so, what shape it would take (If you have any thoughts on this, please share them!). I do know that what you and he created here is extraordinary, and I am proud to have been a part of it.

On this Monday morning, as I confront the void my brother's death leaves behind, I find myself turning naturally to you. This is where Rusty came to be heard and understood. Now I am the one coming, knowing that folks who are themselves hurting will nonetheless reach out to comfort each other and me.

Rusty believed joy could always be found, even in difficult times. Today, you are my joy.
Sandra (sister)

Send a message to learn more

06/21/2025

The Memorial service for Rusty will be 11:00 a.m. Saturday, June 28, 2025, at Our Redeemer Lutheran Church, 407 E 12th, Hutchinson. A luncheon at the church will follow. The service will livestream online and in the church gymnasium and can be accessed via the Our Redeemer Lutheran page. Please note, you may need a Facebook account to view the livesteam online.


https://www.facebook.com/orlhutch

Rusty's obituary can be found online at the Elliott Mortuary website (Link can be found in comments). Friends may sign the book 9 a.m. to 5 p.m. at Elliott Mortuary. 1219 N. Main, Hutchinson, KS 67501. In lieu of flowers, memorials are suggested to Central Links Golf or HHS Alumni Association, in care of Elliott Mortuary.

The Facts Born Russell Allen Hilst on December 29, 1942, Rusty was a fixture on the Hutchinson scene for most of his 82 years, where he pursued his passions for teaching, golfing, sports broadcasting, gardening, and writing. He died peacefully at home on June 17, 2025 following a two-and-a-half year

06/18/2025

Update
Rusty died early this morning, his ALS journey coming to a peaceful close. Following his protracted illness, death came swiftly, the family having just been notified that his body was shutting down. His house angel, Mel, was with him at the end.

As fate would have it, Mel was subbing for a caregiver who didn't feel well. While keeping watch over Rusty, she began an email to his siblings. In her words, " I sat next to Rusty typing the email to you and when I finished it, I read it to him and I told him he had fought ALS with so much courage and he didn’t have to keep fighting. He passed soon after."

Rusty was truly blessed to have Mel by his side through these final months. Her unflagging devotion enabled him to remain in the home he so loved (among his many losses, that was not one!). And she was a kindred spirit, so he was never truly alone. And that was the case this morning.

Here is the email that Mel wrote and shared with Rusty shortly before his death:

"I am sitting next to Rusty's bed in the fireplace room, thinking about what a blessing this past year has been to me. I've known Rusty, and been friends with him, for nearly 30 years but the past year has taken our friendship to another level and I will, forever be grateful. We have spent a lot of hours discussing 'life' and how best to live it. It has been one of the greatest privileges of my life to help care for Rusty, he is an extraordinary man. This journey with Rusty started because I was following the 'Rally for Rusty' page and I read he needed a little help. I texted him and told him I was retired and I had time on my hands. He texted me right back. Jerry Higgins was already checking in on Rusty and I joined the team. Having watched Rusty battle this brutal disease, I can say he has displayed a depth of courage, strength, and quiet bravery that has left a deep mark on my heart.

"Before his illness, Rusty lived a full life of purpose and passion and it was not easy to watch him lose his abilities. I worked at Hutch High so I had a front row seat to Rusty's brilliance. A calculus teacher whose patience and clarity lit up the minds of countless students. But he wasn’t just a teacher—he was a mentor, a steady and encouraging presence in the lives of so many young people. He poured into their lives wisdom and kindness, always believing in their potential.

"Rusty, the unforgettable voice behind the mic at Hutch High football and basketball games. I can still remember his kind comments about my sons, Ted and Joe Henry when they took the field or court. His love for the Salthawks was clearly heard in every game he called. That voice—so full of energy and pride—helped create some of the most cherished memories for players, parents, and fans. Rusty’s legacy is etched in the lives of those he taught, cheered on, and loved. He gave his heart to his community in a way few people do.

"ALS is a cruel disease, but it has not taken Rusty’s spirit. Day after day, I have watched him meet the challenges with grace, grit, and an unwavering faith. Even in his most difficult moments, there is still a spark in his eyes that speaks of a life well-lived and a soul still shining.

"We are nearing the end of this battle and I want you all to know my gratitude for the time I have had with Rusty."
Mel

Our family is deeply indebted to Mel and to so many others (Jerry Higgins, Brett Marshall, Dr. Kossow and so many other caring, wonderful friends who have been instrumental in encouraging and supporting my brother.

Although Rusty's death has been expected, I am still stunned by it. I don't quite know what to do, except that I need to share the news with you, who have been here throughout Rusty's long ALS journey. He is no longer struggling, no longer in pain. May you find solace in the manner of his death and joy in recounting his life.

As funeral plans develop, I will share those here. And, as always, I will be reading your comments. You are in my thoughts.
Sandra (Rusty's proud sister)

06/16/2025

Weekend Update
You know the saying that a photo is worth 1000 words?

Well, I hope it's right, because I don't have a lot of words for you today, but I do have photos!

These pictures were taken during Rhonda and Pam's recent trip to Hutch. They show Rusty enjoying the beauty of early summer in his yard, accompanied by Mel and Pam. And, of course, his beloved koi.

Not much to report regarding Rusty's week. A few med changes (too soon to know how they're working), time spent enjoying the US Open, and the customary trip to Prairie Dunes for Saturday breakfast, but overall a quiet week. No accidents or emergencies, thank goodness!

I miss my brother's guiding hand on this page profoundly. Never more so than with a week like that just past, filled with tumultuous and unsettling news. What would Rusty say about all the national and international developments? You know he'd have thoughts and questions, insights and opinions. And encouraging words.

Unfortunately, Rusty can no longer post. However, in spirit he is here still (you may even hear an echo of his "voice" in your head). Please know that he cherishes your comments -- keep them coming! You matter to him, and your words brighten his day.

May your week be peaceful and fun!
Sandra (sister)

06/09/2025

Weekend Update
Wow, you really delivered!

In response to last week's update, sixty-some folks shared favorite Rusty memories.

There was so much to discover... That a "Rusty's bar" was code for a payday candy bar. That Rusty could draw a perfect circle. That one of the teachers he was mentoring, in turn mentored him "on laughter and getting in trouble."

There were nostalgic vignettes. "Rusty walking, as always, to school in the rain with an umbrella and a smile!" Rusty with chalk coating his hands and his pants. Rusty failing to dim his driving lights because he was too busy recounting game highlights.

There were humorous recollections. Rusty winking as he gave a tardy. Rusty agreeing to having donuts brought to the classroom - "so long as he got one!"

And there were acknowledgements. Being inspired by Rusty to become an educator...a golf coach...a radio DJ...or a better person. Finding Rusty a role model for relationships, in the kind, thoughtful way he encouraged folks and treated them with patience and understanding.

Finally, there were comments from those who have never laid eyes on Rusty. Several mentioned knowing him only as a voice on the radio or through his autobiography. One person wished they'd met, "but through his beautiful words I see a tremendous soul whose attitude I envy."

What a gift of love these recollections are. ALS has made the act of typing very difficult. However, Rusty defied the pain of a "shot" right shoulder to text Rhonda just how much he was enjoying the Rally FB memories! You gave him that impetus, that joy.

Last week, I asked how many of you read the comments left in response to updates. Overwhelmingly you proclaimed, "I do!" A few qualified the response, explaining you typically read some, but not necessarily all, of the comments, or only read them occasionally, as time allows. But there were no unequivocal, "I don't."s.

Clearly this is a community where members are interested in and care about each other. Several compared the comments to a reunion that enables you to reconnect with townspeople, friends, and other Rusty supporters.

It started with Rusty, though. How did he fare during the week just past?

Rusty admits that living with ALS has become much harder. Sleeping is difficult - one night this week he slept not at all. His anxiety has increased, and he is no longer pain-free. Medications begun for anxiety left him fuzzy-headed and frustrated (on his weekly visit, Dr. Kossow observed Rusty struggling and stated that he seemed overmedicated - Kent is taking that up with hospice). It was a difficult week.

On Tuesday, the hospice nurse spent about an hour and a half with Rusty. She showed his caregivers how to adjust the bed and make it softer. Rusty agreed to give this a try before requesting a change. The nurse also switched him to a different sleeping pill, one that will hopefully enable him to stay asleep longer. They discussed shifting to stronger pain medications than naproxen and Tylenol, without reaching any decisions.

On a more positive note, Rusty had lots of company during the week. Bill Southern, a friend from Prairie Dunes, visited on Tuesday. Sisters Rhonda and Pam came. They, along with Charlie Pierce, Larry Ballard, Rudy Koenig, and Jerry Higgins joined him for Saturday breakfast, relocated to Scuttlebutt's from PD because of a golf tournament.

Two other visits highlighted the week, and each was described in a comment. Good friend Brett Marshall stopped by on his way home from Wichita, and first-cousin Warren Briggeman, together with other cousins, detoured from a "guy trip" to see Rusty.

Recalling his visit, Brett observed, " I brought into his living room a plaque for an award I had received for writing. I laid it in front of him to read and his eyes lit up -- he slowly wrote on his tablet "I didn't know you had a twin!" -- The reason was the name on the plaque was Brent [not Brett] Marshall; and the Garden City Telegram became the Garden City Telegraph!! LOL. He then wrote 'bad editing for a journalism award!' He has not lost his sense of humor." Yes!

During his time with Rusty, Warren also noticed something important. As his wife Donna recalls, "The 4 of them were glad they were able to visit Rusty on Sunday.As they reminisced they said Rusty would have a big smile—which in turn made them do likewise." Yes, again!

It was a rocky week that at least once brought house angel Mel back to soothe and untangle problems (truly, an angel!). But Rusty is Rusty still - a sense of humor and smiling!

Until next time.
Sandra (sister)

06/02/2025

Weekend Update
I have to confess to a guilty pleasure.

Each Monday morning, after publishing the update about Rusty, I circle back to read your comments. Repeatedly. Not wanting to miss a one. Your reactions are absorbing, inspiring, insightful, kind and compassionate. Each riffs on different elements of the update, developing them in wonderfully varied ways.

Monday turns to Tuesday, and I'm back again, eager to read what's been added and to savor favorite comments anew. I think about you and your diverse points-of-view and what an amazing support community this is.

Am I alone in this? Do others here benefit not just from Rusty's thinking, but from each others'? Today might be a good day to find out, because there's not a lot new to report on the Rusty front. (He's had a fairly quiet week, still fighting back pain and discomfort, frustration with the bed continuing, his confusion somewhat better, and the PD Saturday breakfast, a familiar highlight). Anyway, I'd like to do a poll!

Who else here reads what others write? Please leave a comment stating "I do" or "I don't." There, you've satisfied my idle curiosity, and I'll report the results next week!

You could stop there, but I hope you won't. While you are commenting, won't you take a moment to recall a memory involving Rusty? The memory could be of anything,...an interaction, something you saw, a discussion, a piece of advice, a funny moment, a time when he surprised you... Don't overthink, just pick something and share. The idea is to take Rusty on a trip down memory lane. By doing that, I guarantee you'll brighten his day! (Mine too, because you know I'll be reading.)

And beginning your week with such a thoughtful gesture just might set you up for amazing things to follow. Hope so!

Until next time...
Sandra (Rusty's sister)