06/18/2025
Update
Rusty died early this morning, his ALS journey coming to a peaceful close. Following his protracted illness, death came swiftly, the family having just been notified that his body was shutting down. His house angel, Mel, was with him at the end.
As fate would have it, Mel was subbing for a caregiver who didn't feel well. While keeping watch over Rusty, she began an email to his siblings. In her words, " I sat next to Rusty typing the email to you and when I finished it, I read it to him and I told him he had fought ALS with so much courage and he didn’t have to keep fighting. He passed soon after."
Rusty was truly blessed to have Mel by his side through these final months. Her unflagging devotion enabled him to remain in the home he so loved (among his many losses, that was not one!). And she was a kindred spirit, so he was never truly alone. And that was the case this morning.
Here is the email that Mel wrote and shared with Rusty shortly before his death:
"I am sitting next to Rusty's bed in the fireplace room, thinking about what a blessing this past year has been to me. I've known Rusty, and been friends with him, for nearly 30 years but the past year has taken our friendship to another level and I will, forever be grateful. We have spent a lot of hours discussing 'life' and how best to live it. It has been one of the greatest privileges of my life to help care for Rusty, he is an extraordinary man. This journey with Rusty started because I was following the 'Rally for Rusty' page and I read he needed a little help. I texted him and told him I was retired and I had time on my hands. He texted me right back. Jerry Higgins was already checking in on Rusty and I joined the team. Having watched Rusty battle this brutal disease, I can say he has displayed a depth of courage, strength, and quiet bravery that has left a deep mark on my heart.
"Before his illness, Rusty lived a full life of purpose and passion and it was not easy to watch him lose his abilities. I worked at Hutch High so I had a front row seat to Rusty's brilliance. A calculus teacher whose patience and clarity lit up the minds of countless students. But he wasn’t just a teacher—he was a mentor, a steady and encouraging presence in the lives of so many young people. He poured into their lives wisdom and kindness, always believing in their potential.
"Rusty, the unforgettable voice behind the mic at Hutch High football and basketball games. I can still remember his kind comments about my sons, Ted and Joe Henry when they took the field or court. His love for the Salthawks was clearly heard in every game he called. That voice—so full of energy and pride—helped create some of the most cherished memories for players, parents, and fans. Rusty’s legacy is etched in the lives of those he taught, cheered on, and loved. He gave his heart to his community in a way few people do.
"ALS is a cruel disease, but it has not taken Rusty’s spirit. Day after day, I have watched him meet the challenges with grace, grit, and an unwavering faith. Even in his most difficult moments, there is still a spark in his eyes that speaks of a life well-lived and a soul still shining.
"We are nearing the end of this battle and I want you all to know my gratitude for the time I have had with Rusty."
Mel
Our family is deeply indebted to Mel and to so many others (Jerry Higgins, Brett Marshall, Dr. Kossow and so many other caring, wonderful friends who have been instrumental in encouraging and supporting my brother.
Although Rusty's death has been expected, I am still stunned by it. I don't quite know what to do, except that I need to share the news with you, who have been here throughout Rusty's long ALS journey. He is no longer struggling, no longer in pain. May you find solace in the manner of his death and joy in recounting his life.
As funeral plans develop, I will share those here. And, as always, I will be reading your comments. You are in my thoughts.
Sandra (Rusty's proud sister)
