09/18/2022
FRIDAY SEPTEMBER 23rd, WEAR GREEN, POST TO YOUR WALL A SELFIE and
Amazon stepping up their mito awareness game! Friday we got some news from genetics that no parent ever wants to hear about their child. It's no secret Bill has gained a significant amount of weight in the last year, and well really the last 4 years. I've said things to the doctors for years, because it was concerning due to all of his other health issues.
It's not like we sit around and let him eat junk food constantly, I've never been the mom to even allow my kids to drink juice or lots of milk because it's full of sugar. I do realize I've not been the best role model when it comes to food either.
Bill loves to be active and never wants to stop playing outside with friends or inside. He seriously never sits still, but it has become to much on his body and he's now adjusting more than ever to play. His weight is putting so much pressure on his already weak diaphragm and core that it's now going to kill him if it doesn't come off quicker than it went on. Yes, I said kill him and I'm not talking about in 5 years, I mean we need fast weight loss immediately to help his diaphragm.
Here's the worst part, because of his disease balancing the activity levels, and not doing damage to his body is also not just as simple as signing him up for wrestling or football. If a kid lands on him, it could kill him. I'm a complete mess over this and I'm so mad at myself for not being stricter sooner.
I've said it before, we don't live our lives in fear of where his condition can take him. You can't live that way, so his genetics doctor held my hand and said, we control what we can, remember. You can control this, and we don't worry about the things we can't control.
As a mom, I've said things over the last few years at each appt, to each doctor. I've even locked up all access to food in my home. That was a hard decision to make, but we did it months ago. It definitely stopped the sneaking of food and the bottomless calories he was consuming that I had no clue how bad it had gotten.
Now it gets even harder, he has no choice but to be placed on a strict DIET! He's 8, a diet, I'm so against scales and the word fat or overweight in my house but I love my son and my kids more than anything in this world 🌎! So here comes the biggest lifestyle change we have ever done as a family.
How can you help? Take him for a fun walk, or play toss with him, don't buy him any food, candy or drink products. I have to know every calorie he's consuming on a daily basis. Thank you for supporting our boy! 💚💚💚💚
