Myasthenia Warrior

08/04/2025

Life with Myasthenia Gravis can be difficult. Some days my symptoms come out of nowhere. Some days I can feel it coming. It is hard being a mom, a partner, working and trying to run a small business. I don’t always have energy to do things. Be kind to others! You never know what people are battling.

08/03/2025

This! Supplements, mobility aids, diet changes alone can be too expensive. But we need to survive somehow!

08/03/2025

🤣🤣

*eye roll*

08/02/2025

Thank you Dr Vincent!

In May, the MGFA bestowed our first-ever Lifetime Achievement Award on Dr. Angela Vincent, a pioneer in myasthenia gravis research. Among her most significant accomplishments is the discovery of the MuSK-positive autoantibody as a cause of MG. Dr. Vincent was also an early identifier of what is now known as seronegative MG, created a more sensitive test for AChR-positive autoantibodies that has helped re-classify some seronegative patients, and championed the use of a cell-based assay to test for autoantibodies.

We are honored to acknowledge Dr. Vincent’s immense contributions, which have had an incalculable impact on MG patients and their families.

Read more about Dr. Vincent's remarkable career.

https://www.rarediseaseadvisor.com/features/mgfa-british-neurologist-first-lifetime-award-groundbreaking-mg-research/

08/01/2025

If you have EDS, do you have any of these symptoms?

07/27/2025

We keep fighting!

07/26/2025

It breaks my heart this happened to anyone, but it hits home when it is your home state. This baby died at 22 years young! He was just a baby living getting to the best part of his life. It was cut short because of the insane cost increase to his asthma inhaler. NO MEDICATIONS SHOULD BE TOO EXPENSIVE TO AFFORD!!

The motion to dismiss was requested by Optum Rx, a subsidiary of United Health Group.

07/25/2025

Thank you for the fight! We will continue it!

07/22/2025

I felt this to my core!