Myasthenia Warrior

Myasthenia Warrior Artist and MG advocate sharing life with Myasthenia Gravis. Empowering others through awareness, education, and lived experience.
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NOT MEDICAL ADVICE—just real insight from my journey.

Join the Myasthenia Gravis - Wisconsin Support on Thursday at 6pm CST. In person attendees for Greenleaf, WI.There is al...
05/12/2026

Join the Myasthenia Gravis - Wisconsin Support on Thursday at 6pm CST.

In person attendees for Greenleaf, WI.

There is always a virtual option available!
Available here ⬇️
https://mg-wisconsin.org

Guest Speaker will be from Alexion Pharmaceuticals.

Hope to see you guys there!

MG Holistic Society

05/12/2026

Myasthenia Gravis is a rare neuromuscular autoimmune disease.

💪 It affects the connection between nerves and muscles.

I cannot hike as much as I used to. 🥾

🫣But that doesn’t stop me from trying!

I was excited when I found this teal shirt in Reno!For those who don’t know, teal is the awareness color for Myasthenia ...
05/12/2026

I was excited when I found this teal shirt in Reno!

For those who don’t know, teal is the awareness color for Myasthenia Gravis!

So of course it is turning into my favorite color.

🧠We all know there is very little knowledge out there about Myasthenia Gravis. And it is very frustrating.🗣️But we can a...
05/12/2026

🧠We all know there is very little knowledge out there about Myasthenia Gravis.
And it is very frustrating.

🗣️But we can all work together to raise awareness and educate others about life with MG.

🏡 Start close to home.
Educate your family and friends so they can become your support network.
Share your triggers and symptoms, that way they can tell when something is “off” on a bad day.

🏫 Schools and Workplaces.
Request to speak to a manager, Human Resources, principal, school administrator.
Work with them to ensure accommodations are understood.
Share materials that explain MG in plain language.

⚕️Healthcare Education.
Ask your neurologist and even primary care doctor to display MG Awareness posters in waiting rooms.
If you have the opportunity, try to speak with medical students or nursing students.

🤝 Community Events.
Set up a table at a local health fair if you are associated with an organization.
Organize or join a charity walk and use the platform to educate about MG.

📝 Create Simple Educational Materials.
Focus on key MG facts: it is a rare neuromuscular disease, it causes muscle weakness, it’s manageable but there is no cure, and it is NOT contagious.
Use comparisons that people can relate to.

💻 Online Community Education.
Exactly what I am doing with my page.
Post content explaining what life with MG is like.
Answer common questions about MG and your experiences.

💪 We are all in this journey together.

🙏 If you do not feel comfortable educating others yourself, feel free to share any of my content with them!

🎯 Tag a family member or friend who you want to educate about MG.

📆Today was my first full day back at work since vacation.It’s wild. 🚶 I walked about 5,000 extra steps each day on vacat...
05/11/2026

📆Today was my first full day back at work since vacation.

It’s wild.

🚶 I walked about 5,000 extra steps each day on vacation.

🥱 Yet today, my usual day of work..I am exhausted!

🪑 I do more sitting around than physical activity.

😫 This shows how stress affects Myasthenia Gravis.

😎 I had a very low level of stress on vacation.

😰 On workdays I have a moderate level of stress.
Just the nature of working in healthcare.

🤞 Fingers crossed I sleep well tonight!

☕️ I think a cup of lavender and chamomile tea is a necessity tonight.

💙Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular disorder that disrupts the communication between nerves an...
05/11/2026

💙Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular disorder that disrupts the communication between nerves and muscles.

💪 This breakdown makes muscles weak and easily fatigued — not because someone is “tired,” but because their body physically cannot maintain strength.

Here are a few key things to understand:

🧠 It’s an autoimmune condition
MG happens when the immune system mistakenly attacks the receptors that allow nerves to signal muscles.

It isn’t caused by lifestyle, stress, or anything a person “did wrong.”

💪 Muscle weakness fluctuates
People with MG may look fine one moment and struggle the next.
Weakness often gets worse with activity and improves with rest.

Symptoms can include:
• Drooping eyelids
• Blurred or double vision
• Trouble chewing or swallowing
• Difficulty lifting arms or walking
• Shortness of breath
• General exhaustion that doesn’t match the activity

⏳ It’s unpredictable
No two days — or even two hours — are the same.
People with MG constantly balance activity with recovery to avoid pushing themselves into a flare.

⚕️ Treatment helps, but it’s not a cure
Medication, IV therapy, infusions, lifestyle changes, and sometimes surgery can help manage symptoms.
Many people with MG live full, meaningful lives — but it takes ongoing management and patience.

🌱 Support matters more than you know
Living with MG requires strength, self-advocacy, and a lot of energy budgeting.

More than anything, people with MG need understanding, flexibility, and compassion from others.

💬 If you know someone with MG, here’s what you can do:

✔ Listen without judgment
✔ Offer help without assuming weakness
✔ Understand that cancellations aren’t personal
✔ Celebrate the small victories

MG may be invisible, but the courage it takes to live with it is not. ❄️✨

Monday Mantra:I trust myself to make the best choices I can today. Not every day will be easy.Not every day will be good...
05/11/2026

Monday Mantra:
I trust myself to make the best choices I can today.

Not every day will be easy.
Not every day will be good.

All we can do is our best!
Every. Single. Day.

05/11/2026

🥘Eating with Myasthenia Gravis can be a challenge.

But eating soft-nutrient dense meals can help you get the nutrients you need, while eating foods that are easy to chew and swallow.

Breakfast Options:
🥚 scrambled eggs
🍨yogurt with probiotics
🥛smoothies

Lunch and Dinner Options:
🥪egg salad
🍜 light soups with vegetables and barley
🍠 mashed sweet potatoes or butternut squash
🍣 soft fish like tilapia or salmon
🫘 legumes like beans and lentils.

Snack options:
🥑 ripe avocado
🍌 bananas
🥜 nut butters

⚡️ Remember to eat your largest meal when you have the most energy.

🍽️ Smaller, more frequent meals help maintain energy levels and prevent fatigue.

🍯 Try to soften dry foods with sauces, broths or condiments.

🩺 Always work with your doctor or registered dietician to tailor these to your specific needs.

MG Holistic Society

05/10/2026

MG Awareness Days are coming up!
Register for one today!
I will be in Wisconsin!
Hope to see you there!

Went mini golfing for Mother’s Day! Of course I had to grab the teal ball.Also I got a hole-in-one! Two of the hole were...
05/10/2026

Went mini golfing for Mother’s Day!

Of course I had to grab the teal ball.
Also I got a hole-in-one!

Two of the hole were in a black light room.
Which is cool…until you realize you cannot see anything in there!

I had to ask my partner where the ball was and where the hole was, then just played on a wing and a prayer!

05/10/2026

Happy Mother’s Day to all you moms out there!
Especially the disabled moms.
I see you, I hear you.
Your strength is unmatched!

Address

Janesville, WI

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