Myasthenia Warrior

01/07/2026

🌍 Staying positive in a negative world isn’t about ignoring reality.
It’s about protecting your light while living in it. ✨

💭 Positivity doesn’t mean being happy all the time.
Sometimes it looks like:
• Getting through the day ✔️
• Resting without guilt 🛌
• Admitting “this is hard” 💔

📵 Guard your energy
Limit doom-scrolling. Curate what you consume. Your peace matters.

💬 Feel it—don’t stuff it
Sadness, anger, grief… they’re all valid. Let them move through you 🌊

🕯 Find the small good
One calm moment. One smile. One breath. Small joys add up.

🤍 Choose meaning over mood
Kindness. Purpose. Connection. These anchor you when the world feels heavy.

🌱 Positivity comes in waves
Some days you float. Some days you rest. Both are okay.

Your softness is not weakness.
Your hope is an act of courage. 💛

01/07/2026

🫩For over two years, my body slowly stopped cooperating. I blamed stress, lack of sleep, getting older—anything that felt less scary than the truth.

🫨I learned how to push through drooping eyelids, slurred words, and muscles that gave out without warning.

👩‍⚕️Doctors’ visits came and went, tests were “normal.” I was told it was all in my head, anxiety, an eating disorder, depression.

🗣️Then one day, after yet another appointment, I heard a name I’d never expected: Myasthenia Gravis.

🫶It wasn’t the ending I wanted, but it was the first time the pieces finally fit together. After two years of coninued decline, I didn’t just get a diagnosis—I got validation.

01/07/2026

📊 Myasthenia Gravis: When Are People Diagnosed? 🧠💪

Myasthenia Gravis (MG) doesn’t have a “typical” age — but research shows some clear patterns 👇

🔁 Bimodal Pattern (Two Common Age Peaks):
👩 Young adults (20–40 years)
• More common in women

👨 Older adults (50–70 years)
• More common in men

📊 Average / Median Age:
• Studies show the median age of diagnosis is around 40 years overall

⚖️ S*x Differences:
• Women are more often diagnosed before age 40
• Men are more often diagnosed after age 50–60

📈 Important to Know:
• MG can occur at ANY age — from childhood to late adulthood
• Diagnosis in very young children is rare, but possible
• Reported ages range from as young as ~1 year old to people in their 90s

✨ MG doesn’t discriminate by age. Awareness matters at every stage of life.

❓How old were you when you were diagnosed?

💙

01/07/2026

🎉WEDNESDAY WINS!

🗣️ Whether it is big or small, what is your win this week?

🥘I made a mushroom risotto from scratch last night! It was hard standing in front of a hot stove, but it was delicious!

#

01/06/2026

🧠💪 What’s Really Happening in Myasthenia Gravis (MG)

Here’s what’s going on inside the body:

➡️ Normally, your nerves send a chemical messenger called acetylcholine to your muscles, telling them when to move.

➡️ In many people with Myasthenia Gravis, the immune system mistakenly creates AChR autoantibodies.

➡️ These autoantibodies attack and block the acetylcholine receptors on the muscles.

🚦 The result?
The nerve’s message doesn’t get through clearly — so muscles don’t respond the way they should.

This is why people with MG experience muscle weakness that worsens with use and improves with rest. 💙

📣 Awareness leads to understanding.

01/06/2026

🗣️ This is why I am choosing to share my story out loud!

🍰 There was a time I didn’t think I would make it to my 30th birthday. This year I will be 35!

🙏You never know when your healing can help someone else on their journey.

🫶 I realize by healing myself, I may just help you too.

Borrowed from: Revive Your Roar

01/06/2026

🫶SHARE THIS WITH SOMEONE IN YOUR SUPPORT SYSTEM

💙 How to Support Someone During a Myasthenia Gravis Flare 💙

A flare isn’t “just tired.” It’s deep muscle weakness, fatigue, and symptoms that can change hour to hour.

✨ Ways to Help:
🤍 Be patient — speech, vision, and movement may be affected
🍲 Offer soft foods and plenty of time to eat
🛌 Encourage rest (rest = treatment, not laziness)
🛍️ Help with errands, meals, or appointments
🗣️ Listen without rushing or minimizing
🚫 Be understanding if plans are canceled

🚨 Get urgent help if there’s trouble breathing or swallowing — this can be a medical emergency.

💬 Sometimes the best support is simply believing them and showing up.

🫶 Consistency, compassion, and understanding matter more than fixing everything.

01/05/2026

Join the MG Holistic Society support group tonight. You can attend virtually!

01/05/2026

This is a big deal for the MG community. Congenital Myasthenic Syndrome is a form of MG.

Maybe this can help bring light to the MG community!



https://www.usatoday.com/story/entertainment/celebrities/2026/01/04/greys-anatomy-steven-w-bailey-health-cms/88018451007/?fbclid=IwdGRjcAPIvJ1leHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeCY2Fqg7wIpJF8LtcEjApcoo59ilFIRPEwWQIFPcfKb_xV26o_o1hnl40wHk_aem_9fkp80RzpEIkG4RwAhN1KA

Steven W. Bailey, an actor who has appeared on "Grey's Anatomy," is revealing a health issue that has been "shaping my life and my work."

01/05/2026

My goal this year is to get one of these damn bonuses! 🤣

All by raising awareness for the MG community!

01/05/2026

Myasthenia Gravis Symptoms can fall into 3 different categories: Ocular, Bulbar and Generalized.

👀 Ocular symptoms
Droopy Eyes 👁️
Blurry/Double Vision 🫨

👄 Bulbar symptoms
Weak face, throat and neck muscles 🫩
Slurred/Nasal speech 🎤
Difficulty Chewing/Swallowing 🤤
Difficulty Talking 🗣️

💪Generalized symptoms
Weaks arms and legs 💪🦵
Weak diaphragm 🫁
Difficulty walking 🚶
Difficulty breathing 😮‍💨

Muscles tire with repetitive use. Often worse later in the day.

🫵 By raising awareness, we are working closer to finding a cure for MG.