01/07/2026
We love this model for the truth with individuals with Parkinson’s.
The part of Parkinson’s disease that no one sees
When most people hear the words Parkinson’s disease, they immediately picture a tremor.
It is the most recognized symbol of the condition.
But for those living with it, the shaking hand is often just the tip of the iceberg.
Beneath the surface lies a complex web of non-motor symptoms that can be far more disruptive to daily life than the movement issues.
These are the invisible struggles that friends, neighbors, and even family members might miss.
While the world focuses on the physical changes, the internal reality can look very different.
First, there is the sleep. Or rather, the lack of it. Many people battle insomnia, vivid acting-out of dreams, or excessive daytime sleepiness that makes it hard to stay engaged.
Then there is the mood. Anxiety and depression in Parkinson’s are not just reactions to the diagnosis; they are often caused by the chemical changes happening in the brain.
The same lack of dopamine that affects movement also affects joy and motivation, leading to apathy.
Other invisible passengers include the loss of smell, soft speech, sudden drops in blood pressure, and overwhelming fatigue that feels like a battery draining instantly.
If you love someone with Parkinson’s, remember that just because they are moving well today does not mean they are feeling well.
The battle is often internal. Validation and patience are the best gifts you can give.
Understanding the full scope of this condition is the first step toward better management and better empathy.
We have compiled deep-dive resources on these non-motor symptoms to help you navigate the journey.
Visit photopharmics.com to learn more about the full spectrum of Parkinson’s and associated symptoms.
