04/02/2026
Joham.
Last year, he stood in front of our community — smiling, clapping, full of life — as his mother Zulma shared their journey.
It’s hard to reconcile that moment with where he once was.
Hundreds of seizures an hour.
ESES.
A wheelchair.
Nonverbal.
A feeding tube.
A childhood slipping away.
Today, Joham is seizure-free after hemispherotomy surgery.
He’s back in school. Talking. Growing. Living the life every child deserves.
Stories like his are why we do this — and why epilepsy surgery needs to be part of the conversation sooner.
We are so grateful to Zulma for trusting us, for sharing her voice, and for reminding everyone in that room what hope can look like when the right treatment is found. 💜