Cure for Cade

Cure for Cade Cade was diagnosed with hereditary spastic paraplegia. Follow his story as we work to defy all odds!

04/27/2026

I’m not crying, you’re crying

04/23/2026

We get to go home one week from today!!!

04/21/2026

For two weeks, we have worked every day on walking to the top of the switch back. Today, he did it. Not many will understand what a massive accomplishment this was. Those with rare diseases, or with mobility challenges, you’ll get it.

04/19/2026

Sometimes the secret is… just being too stubborn to quit.

04/17/2026

POV: You’re a medical mom watching a moment you weren’t promised 🤍

Special needs parenting means living in the unknown—especially when it comes to mobility. Walkers, therapies, long appointments, and questions no one can fully answer. Raising a medically complex child teaches you to celebrate progress that the world might not even notice.

For the medical moms, the special needs parents, the families navigating mobility challenges—you know what this moment means.

04/16/2026

Short story from the book that I’ve been working on .sourdough ❤️

04/07/2026

From the bottom of our hearts, thank you to the Juneau Douglas Fraternal Order of Eagles #4200 and Juneau Women of the Moose Chapter #439 for collectively donating $1,500.

We are so incredibly grateful for the kindness, generosity, and care shown to our family. It means so much to be surrounded by a community that continues to show up with such compassion and support.

Acts like this remind us just how lucky we are to come from a place filled with people who care so deeply for one another. We are truly honored by your generosity and so thankful for the women who made this possible.

Thank you for thinking of Cade and for loving our family so well. We will never forget it. 🤍

04/05/2026

Would you like to see what $1 million Band-Aid looks like?

04/02/2026

21/2 years ago, we started fundraising to push the clinical trials forward for our son’s ultra rare genetic disease. We raised over $1.5 million of the necessary funds for the clinical trials to move forward.
Today we were discharged from the hospital after Cade received gene therapy. One of few in the world to ever receive this treatment. Never give up, no matter how impossible it feels.

Address

Juneau, AK

Website

https://gofund.me/d348d19d

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