Dillon and His Pesky Renal Failure

Dillon and His Pesky Renal Failure Dillon has IgAN, or Stage 5 Renal Failure. He needs support from family, friends and strangers alike!

01/09/2024

Good morning! I wanted to update everyone about the Chrisymas cards. I had hoped for something more eventful but alas, no luck with a 22 year old kid.😄
Yes. He finally received them. He got sick, then I got sick. So, I dropped them off to him.
THANK YOU!!!
Thank you for your kindness and generosity.
I am sure he would make this post but again, he's 22.
Thank you! Thank you! Thank you!
Happy New Year!
😁💚💚💚

12/21/2023

First, I want to thank you for sending Dillon cards of encouragement and kindness.
He will dig it for sure.
Second, Dillon is back in the hospital for his other hand.
We took him to the ER Monday night at 7. He didn't get a room until Tuesday night at 6:30. He's a bit grumpy.
I'm not sure how long he will be there. I will take him to open the p.o. box as soon as we can get him back home.
Thank you, guys. Thank you for taking the time to send goodness to this kid of ours.We appreciate all the support and love!
Merry Christmas and be safe!

Dillon was approved for Medicare and just received his card. This is huge!!! Now we can focus on getting him a kidney. M...
12/14/2023

Dillon was approved for Medicare and just received his card. This is huge!!! Now we can focus on getting him a kidney.
Merry Christmas and Happy Holidays everyone!
Share your spare!
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We did the parade and it was awesome.Dillon has IgAN. This is also known as Buergers Disease. It's a rare autoimmune dis...
12/04/2023

We did the parade and it was awesome.

Dillon has IgAN. This is also known as Buergers Disease. It's a rare autoimmune disease, which attacks the kidneys. It's considered an orphan disease, affecting less than 200,000 in the U.S.

When Dillon does get a new kidney, IgAN can attack that new kidney as well. He will most likely need another kidney.

Living donors make a world of difference.

Share your spare!

I've been making signs for the Christmas parade this weekend.  Hopefully St. Luke's Transplant Center will get a call or...
11/27/2023

I've been making signs for the Christmas parade this weekend.
Hopefully St. Luke's Transplant Center will get a call or two after this!

11/18/2023

Hi again!

Okay, the mailing address is:

P.O. Box 1761
Sedalia, MO 65302

Thank you guys!

P.S. share your spare!

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11/18/2023

Hello all!
I've created this page to communicate about D's wants and needs as he deals with renal failure.
He has IgAN, stage 5 renal failure.
He currently is not working. He is a stay at home dad, taking care of his two boys.
Currently, he is in Overland Park Regional Medical Center waiting for the surgeon to take a look at his wrists. He was told his bones would be a bit brittle so now he has fractures in his wrists and an infection that won't go away.
He has been called twice with an offer of a kidney. Both times the hospital denied the kidney due to cellulitis in his hands. Every time he has an infection, he is taken off of the transplant list.
This sucks.
He is suffering from depression. Staying at home and managing his two boys while being sick, is mentally and physically exhausting.
What I ask from all of you, any of your friends, their friends, strangers, anyone willing to take a couple minutes, is to mail him a Christmas card.
That's it.
Short, sweet and simple.
Anything encouraging, filled with hope, love, good juju, prayers, whatever words you want to include in the card, would be greatly appreciated. I know he would feel it. Sometimes that's all a person needs to keep going. I will post later with an address the cards can be mailed to.
Words and prayers do matter.
Thank you very much!
P.S. Think of this as a surprise Christmas gift of hope and love to someone who desperately needs it. Keeping this under wraps is the goal until he opens his new p.o. box!!! :D

Address

4320 Wornall Road Ste 304
Kansas City, MO
64111

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