Community Health Improvement Program for Intellectual Disabilities

04/22/2026

We’re proud to highlight Greta Foye, an incredible research assistant and self advocate who is using her lived experience with Down syndrome and dementia to make research more inclusive.

Greta recently co-authored a powerful paper emphasizing the importance of including individuals with Down syndrome in clinical trials and it’s now been nominated for the Alzheimer’s Association ISTAART Publication of the Year in two categories.

Her leadership is helping ensure that voices like hers are heard, valued, and included.

If you’re an ISTAART member, please consider voting for her work!

Read the paper here: https://doi.org/10.1002/bsa3.70040

Vote here:
https://lnkd.in/gdMKdtAE
https://lnkd.in/gdsNKjnQ

04/22/2026

Looking forward this magical show! ✨

04/17/2026

Are you on a cloud? Because I am drifting away dreaming about 321 Fit!

The 4th annual 321 Fit is back! Hosted by Down Syndrome Innovations, Special Olympics Kansas, and University of Kansas Medical Center, 321 Fit is a fitness event for ALL AGES that features interactive fitness stations, presentations from self-advocates, a caregiver session, Zumba, healthy snacks, giveaways, and booths from local organizations and businesses serving the Down syndrome community. For more information, and to register, visit:
https://kcdsi.coursestorm.com/course/321-fit?page=2

04/15/2026

A great performance is happening this weekend! Get your tickets now! 👑

04/15/2026

The 4th Annual 321 Fit is back! 🌟🌤️🙂

Hosted by Down Syndrome Innovations, Special Olympics Kansas, and University of Kansas Medical Center, 321 Fit is a fitness event for all ages featuring interactive fitness stations, presentations from self-advocates, a caregiver session, Zumba, healthy snacks, giveaways, and booths from local organizations and businesses serving the IDD community.

For more information, and to register, visit:
https://kcdsi.coursestorm.com/course/321-fit?page=2

04/10/2026

Sharing a new research opportunity full of movement, music, and support! Follow the link below or contact jsherman7@kumc.edu

Click on the link to see if you qualify>> https://redcap.kumc.edu/surveys/?s=KKWTTH3JMHTYAT3K

04/10/2026

We’re honored to partner in conversations that truly matter 🤍
Join Buddy and Carolyn Jones as they share their family’s journey navigating aging, dementia, grief, and Down syndrome. Their story is a powerful reminder of why proactive planning is so important.

Learn more and register: https://kcdsi.coursestorm.com/course/aging-dementia-grief-a-parent-to-parent-conversation

Join us, as Buddy and Carolyn Jones lead a meaningful parent-to-parent conversation on aging, dementia, grief, and Down syndrome; sharing their family’s journey with honesty and care.

Their story will serve as a powerful reminder of why proactive planning matters, especially as families navigate the realities of aging and Alzheimer’s disease. This work is made even more impactful through the essential partnership between Down Syndrome Innovations and the KU Alzheimer's Disease Research Center /.chip.id, where important progress is being made to better understand Alzheimer’s disease in individuals with Down syndrome and support families every step of the way.
For more information, and to register, visit: https://kcdsi.coursestorm.com/course/aging-dementia-grief-a-parent-to-parent-conversation

04/09/2026

Everyone meet our excellent staff member, Ellen Herrold!

I am a study coordinator for CHIP-ID. I've worked at the ADRC for almost 4 years. I love research and getting to learn more and help others. My favorite workday snack is a diet coke.

04/08/2026

Join Us for the 4th Annual 321 Fit – A Celebration of Ability and Inclusion! 💙💛

In honor of National Down Syndrome Day, we are bringing our community together for a morning of movement, education, and connection.

The event will take place at Johnson County Community College on Saturday, April 18 from 9:00AM - 12:00PM.

321 Fit is a fitness event for all ages featuring:
• Interactive fitness stations
• Presentations from self advocates
• Healthy snacks and giveaways
• Booths from local organizations and businesses serving the IDD community

This event is designed to inspire healthy lifestyles while giving participants the chance to jump right in and be active.

Register here: https://kcdsi.coursestorm.com/course/321-fit?page=2

04/08/2026

Can't wait! See you there!

321 Fit is BACK for Year 4! 💙💛

We are so excited to host the 4th Annual 321 Fit at Johnson County Community College on April 18th! The event goes from 9 AM to 12 PM!

Bring your friends, family, and athletes of all ages and abilities for fitness stations, self-advocate speakers, snacks, giveaways, and community booths.

This is your chance to move, learn, and have fun all in one place.
Save your spot today: https://kcdsi.coursestorm.com/course/321-fit?page=2

04/02/2026

Everyone meet our marvelous staff member, Marsia Serrano!

I’m a brand-new Research Assistant and have already been here for 7 weeks—although it feels like longer with how much there is to learn!

I chose this path because I enjoy helping find answers and promoting healthier futures for individuals.

I like to snack on crackers and try to eat a well balanced diet!