Jessica’s Fight Against Desmoid Fibromatosis

02/25/2025

So life’s been…life! Crazy and hectic but hey it is what it is. But I thought I’d get back to it and let you all know how things are going with this lovely desmoid tumor of mine 😖😬

After moving to Arkansas I had to switch to the VA for my care and after 6 months of waiting I finally was able to meet with a surgeon to see about having my desmoid tumor removed to help stop the pain and other issues it’s been causing. And…I may have a chance! She is reviewing some things with another surgeon but I should know next week if it can actually come out ❤️❤️❤️

07/26/2024

It’s been a long 5 weeks of radiation. One more to go and then we wait to see how my body responds and if the tumor will shrink. As of right now there are no changes and I am still in quite a bit of pain. But the doctors I have are amazing and are always looking ahead to see what they can do.

07/04/2024

Please help us to share and help if possible. Will is greatly missed and has left a large impact on so many lives. Until we meet again 💔❤️

https://www.gofundme.com/f/remembering-william-a-true-american-hero?fbclid=IwZXh0bgNhZW0CMTEAAR3Vovh5ska6AUFDVWFtpvH0FOz3MWS6GR9l4v1cwF1rTB0JuDOHiMugagw_aem_yCrnAPyS9ZCFjucDm8U5ZQ

William Matthew Lefevers, 36, of League City, Texas went to be wit… Michael Gerardo needs your support for Remembering William Lefevers - A True American Hero

07/02/2024

On Sunday June 23, 2024 my world was flipped around. My rock, best friend and love of my life was sent home to be with God. I love you Will and I know I will see you again.

Celebrate the life of William Lefevers, leave a kind word or memory and get funeral service information care of Forest Park East Funeral Home & Cemetery.

06/13/2024

To say we have been busy is an understatement. We went from trying a medication to having our hopes up that we could surgically remove my tumor just to find out 3 weeks after that hospital visit that surgery was not an option like we thought. So now we are gearing up for 6 weeks of radiation, everyday, M-F.

So while we wait we have been trying to make the most of the warm weather and being out with the kids making memories ❤️

05/30/2024

A new day and a new appointment…honestly never thought this would be the life I’d have at 31 years old. But here we are! A few weeks ago after beieng hospitalized my doctors said the medication wasn’t working. They then said we were going to push for surgery to have it removed even though there is a high chance of it coming back. However we learned that I cannot have my tumor removed at all. Today I find out why as well as meet with the radiation team to start treatment….lets hope this works 🙏🏻

05/06/2024

Hey everyone, we appreciate the support and wanted to give an update. Jessica was in the hospital the last 6 days with severe pain and irregular bloodwork. She is home now and getting the rest she needs.

04/18/2024

I have a personal goal to post something daily. A photo, a fact, or how I’m Doing. This is a new journey and I’ve kind of kept to myself the last few months not wanting to acknowledge it. But I have no choice. So here we go ❤️

04/17/2024

This journey has been very educational for me. It’s scary to think about having something that doesn’t have a cure but also empowering knowing that you can help give the researchers more data to work towards finding that cure. And finding DTRF.org is an amazing place to start and learn all about Desmond tumors.

We’re here to find answers with Research, Advocacy, Awareness, and Support. The Desmoid Tumor Research Foundation is accelerating the race toward more treatments and a cure for each and every […]

04/16/2024

Good morning everyone! Today’s been a good day. The weekend was a bit rough as I am going into week two of actual treatment. Will and I are headed to my first session of Aqua therapy to see if it will help relieve some pain that the tumor is causing. Wish me luck! 🍀

04/13/2024

🌟 Help Jessica Defeat a Rare Desmoid Fibromatosis Tumor 🌟

In December, Jessica discovered a bump on her lower back. Initially dismissed as a harmless lipoma, it quickly escalated into excruciating pain that spread throughout her body, leaving her unable to move.

Despite seeking help from the VA, Jess faced roadblocks in receiving timely care. Eventually diagnosed with a rare and aggressive desmoid fibromatosis tumor pressing against her spinal muscle, she embarked on a journey of resilience and courage.

A desmoid fibromatosis tumor affects 3-4 people per million. And of those people, only 1% know they have one. This tumor has caused Jess to have many complications from being unable to grip items for more than 3 minutes before she is in pain as well as having to utilize equipment such as a cane and walker to move around and many more serious symptoms.

Now, Jess is undergoing treatment with MD Anderson, where she's confronted with hefty medical bills. Despite being prescribed a promising new medication, Ogsivio, insurance hurdles have left her with a staggering bill of $34,800 for a single months supply, excluding additional costs for bills and expenses for her three children.

Doctors have warned that if the tumor is left untreated, it could have serious impacts on Jessicas health and leave her with long term issues, such as paralysis. Unfortunately surgical removal of the tumor is not an option for her, seeing as it would warrant more complications due to the anatomy and physiology of the tumor. Removal can also lead to it returning more aggressively and with more complications.

This fundraiser aims to support Jess in her fight against this rare tumor. It will aid in her ability to continue as the main provider for her children. Your generosity will ease the financial burden of her treatment, providing hope and relief during this challenging time.

Every contribution, no matter the size, makes a difference in Jessica's journey towards healing and recovery. Together, let's rally behind her and show her she's not alone in this battle.

Thank you for your kindness, support, and generosity. ♥️