FND Journey and Me

05/27/2026

💙 These lyrics by the Goo Goo Dolls hit a little different these days. 🧡

And I don't want the world to see me
'Cause I don't think that they'd understand
When everything's made to be broken
I just want you to know who I am

05/08/2026

Way to go NPR for spreading the word on FND! 💞

Short Wave on NPR One | 14:29

04/03/2026

With Functional Neurological Disorder/ FND Hope International – I just got recognized as one of their top fans! 🎉

04/01/2026

Can I tell you something you may not know?

The first of April annually marks Functional Neurological Disorder Awareness Month, a time to amplify our voices and deepen our understanding of this complex disorder.

As someone who has been on this roller-coaster FND journey, I urge and invite you to join me in spreading awareness, advocacy, and welcome a community of support, not just this month, but every month.

Join me on April 13th for International FND Awareness Day, where I will be opening up about my personal journey with FND, with a follow-up Q&A afterwards for those interested.

Follow and discover ways you can make a difference. As we share our own experiences, we can create a wave of change, compassion, and hope.

💙☂️🧡

03/31/2026

💙☂️🧡✨️

03/28/2026

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three years, I had a stumble—not due to FND, just sheer clumsiness. I landed hard enough to break the laundry basket behind me and clipped the dog ramp with the bottom of my foot, trying to catch myself before I went down. The whip movement my head and neck endured caused pain in my neck and shoulders. Yet, amid tears, I stood up, took deep breaths, and headed out.

With the nostalgic tunes of 90s music playing in the car, I managed to ground myself and spent a few precious moments with my friend. But soon after, my body spoke up, demanding attention and rest. Thankfully, my partner understood, and we headed back home.

The drive back painted the evening with disorienting lights and nausea from the pain, adding to the discomfort. Yet, the fleeting moment with my friend made the discomfort worth it. The warmth of a hug and sharing “I love you” were powerful enough to lift the pain momentarily. Once we arrived home, surrounded by familiar softness, I realized how impactful the fall was.

Self-awareness hit hard: taking it easy initially would have saved me days of recovery.

Moral of the story: Listen to your body. When it signals imbalance, pay attention. Your body knows what it needs, even if the message isn’t what you want to hear. Through FND, I’ve learned that self-care isn’t selfish—it’s essential and part of our journey. ✨️

03/28/2026

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three years, I had a stumble—not due to FND, just sheer clumsiness. I landed hard enough to break the laundry basket behind me and clipped the dog ramp with the bottom of my foot, trying to catch myself before I went down. The whip movement my head and neck endured caused pain in my neck and shoulders. Yet, amid tears, I stood up, took deep breaths, and headed out.

With the nostalgic tunes of 90s music playing in the car, I managed to ground myself and spent a few precious moments with my friend. But soon after, my body spoke up, demanding attention and rest. Thankfully, my partner understood, and we headed back home.

The drive back painted the evening with disorienting lights and nausea from the pain, adding to the discomfort. Yet, the fleeting moment with my friend made the discomfort worth it. The warmth of a hug and sharing “I love you” were powerful enough to lift the pain momentarily. Once we arrived home, surrounded by familiar softness, I realized how impactful the fall was.

Self-awareness hit hard: taking it easy initially would have saved me days of recovery.

Moral of the story: Listen to your body. When it signals imbalance, pay attention. Your body knows what it needs, even if the message isn’t what you want to hear. Through FND, I’ve learned that self-care isn’t selfish—it’s essential and part of your journey. ✨️

03/25/2026

We were blessed my Mother Nature again this year, with a hummingbird nest right off of our back patio.

She's our resident hummingbird Henrietta, and under her is little egg. I didn't want to get too close to check while she was out wandering yesterday but I did catch a glimpse of an egg!

Last year she made a nest on our patio as well but next to a different door. She had two babies that we got to watch as they got bigger and finally flew away. Both times have been right by our doors. I love that she feels safe to come up to the window to say hi, she loves seeing the cats as do they, and she even throws a tantrum if you leave the porch light on.

Today I am remembering the little gifts we're given and the glimmers that keep on shining. 🧡🪽💙

Swipe to the end to see her taking a little nap this morning! More Henrietta content coming soon. She fills my days with love and wonder and I hope she does the same for you!

03/20/2026

Dear everyone,

No, I don't have a job anymore.
No, I'm not making any money.
No, friends don't check in or visit.
No, I can't drive.
No living, no life.

My current mood. It seems to be a frequent trend these days. Don't be fooled by the smiles and bright eyes, they're just masking grief and exhaustion.

Today feels like the day to put on The Smashing Pumpkins and embrace the melancholy misery that I am living with. It's taking the good with the bad even though the bad outweighs the good. I'm just trying to survive in a life that used to feel so full, and now it's so empty.

Sincerely,
A 38 year old woman with FND

01/08/2026

We’ve all felt it—that surge of anger when things don’t go as planned, when life seems unfair or overwhelming. But what if I told you that anger could be your hidden superpower?

Inspired by my psychologist, who specializes in Functional Neurological Disorder (FND), I've learned that anger often masks the fierce determination lurking beneath the surface. It’s a fuel that, when channeled positively, can propel us towards our goals, ignite passions, and drive real change.

Take a moment. Breathe. Reframe your anger as determination. Let it light a path forward instead of holding you back. Swap fear for courage and transform feeling lost into a journey of self-discovery.

Remember, it’s okay to feel what you feel. Harness that fiery energy to push through barriers and build the life you envision. You're not out of control; you're on the brink of a powerful transformation. 🦋