FND Journey and Me

FND Journey and Me Sharing my experience with Functional Neurological Disorder and spreading awareness for FND

With Functional Neurological Disorder/ FND Hope International – I just got recognized as one of their top fans! 🎉
04/03/2026

With Functional Neurological Disorder/ FND Hope International – I just got recognized as one of their top fans! 🎉

Can I tell you something you may not know?The first of April annually marks Functional Neurological Disorder Awareness M...
04/01/2026

Can I tell you something you may not know?

The first of April annually marks Functional Neurological Disorder Awareness Month, a time to amplify our voices and deepen our understanding of this complex disorder.

As someone who has been on this roller-coaster FND journey, I urge and invite you to join me in spreading awareness, advocacy, and welcome a community of support, not just this month, but every month.

Join me on April 13th for International FND Awareness Day, where I will be opening up about my personal journey with FND, with a follow-up Q&A afterwards for those interested.

Follow and discover ways you can make a difference. As we share our own experiences, we can create a wave of change, compassion, and hope.

💙☂️🧡

03/31/2026

💙☂️🧡✨️

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three ye...
03/28/2026

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three years, I had a stumble—not due to FND, just sheer clumsiness. I landed hard enough to break the laundry basket behind me and clipped the dog ramp with the bottom of my foot, trying to catch myself before I went down. The whip movement my head and neck endured caused pain in my neck and shoulders. Yet, amid tears, I stood up, took deep breaths, and headed out.

With the nostalgic tunes of 90s music playing in the car, I managed to ground myself and spent a few precious moments with my friend. But soon after, my body spoke up, demanding attention and rest. Thankfully, my partner understood, and we headed back home.

The drive back painted the evening with disorienting lights and nausea from the pain, adding to the discomfort. Yet, the fleeting moment with my friend made the discomfort worth it. The warmth of a hug and sharing “I love you” were powerful enough to lift the pain momentarily. Once we arrived home, surrounded by familiar softness, I realized how impactful the fall was.

Self-awareness hit hard: taking it easy initially would have saved me days of recovery.

Moral of the story: Listen to your body. When it signals imbalance, pay attention. Your body knows what it needs, even if the message isn’t what you want to hear. Through FND, I’ve learned that self-care isn’t selfish—it’s essential and part of our journey. ✨️

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three ye...
03/28/2026

Two days ago, life threw an unexpected challenge my way. While getting ready to visit a friend I hadn’t seen in three years, I had a stumble—not due to FND, just sheer clumsiness. I landed hard enough to break the laundry basket behind me and clipped the dog ramp with the bottom of my foot, trying to catch myself before I went down. The whip movement my head and neck endured caused pain in my neck and shoulders. Yet, amid tears, I stood up, took deep breaths, and headed out.

With the nostalgic tunes of 90s music playing in the car, I managed to ground myself and spent a few precious moments with my friend. But soon after, my body spoke up, demanding attention and rest. Thankfully, my partner understood, and we headed back home.

The drive back painted the evening with disorienting lights and nausea from the pain, adding to the discomfort. Yet, the fleeting moment with my friend made the discomfort worth it. The warmth of a hug and sharing “I love you” were powerful enough to lift the pain momentarily. Once we arrived home, surrounded by familiar softness, I realized how impactful the fall was.

Self-awareness hit hard: taking it easy initially would have saved me days of recovery.

Moral of the story: Listen to your body. When it signals imbalance, pay attention. Your body knows what it needs, even if the message isn’t what you want to hear. Through FND, I’ve learned that self-care isn’t selfish—it’s essential and part of your journey. ✨️

We were blessed my Mother Nature again this year, with a hummingbird nest right off of our back patio.She's our resident...
03/25/2026

We were blessed my Mother Nature again this year, with a hummingbird nest right off of our back patio.

She's our resident hummingbird Henrietta, and under her is little egg. I didn't want to get too close to check while she was out wandering yesterday but I did catch a glimpse of an egg!

Last year she made a nest on our patio as well but next to a different door. She had two babies that we got to watch as they got bigger and finally flew away. Both times have been right by our doors. I love that she feels safe to come up to the window to say hi, she loves seeing the cats as do they, and she even throws a tantrum if you leave the porch light on.

Today I am remembering the little gifts we're given and the glimmers that keep on shining. 🧡🪽💙

Swipe to the end to see her taking a little nap this morning! More Henrietta content coming soon. She fills my days with love and wonder and I hope she does the same for you!

Dear everyone,No, I don't have a job anymore.No, I'm not making any money.No, friends don't check in or visit.No, I can'...
03/20/2026

Dear everyone,

No, I don't have a job anymore.
No, I'm not making any money.
No, friends don't check in or visit.
No, I can't drive.
No living, no life.

My current mood. It seems to be a frequent trend these days. Don't be fooled by the smiles and bright eyes, they're just masking grief and exhaustion.

Today feels like the day to put on The Smashing Pumpkins and embrace the melancholy misery that I am living with. It's taking the good with the bad even though the bad outweighs the good. I'm just trying to survive in a life that used to feel so full, and now it's so empty.

Sincerely,
A 38 year old woman with FND

1956. A father. A daughter. A close call.That's how MedicAlert began.70 years later, millions of people live more indepe...
03/05/2026

1956. A father. A daughter. A close call.

That's how MedicAlert began.

70 years later, millions of people live more independently, travel more confidently, and do what they love — because a simple ID speaks for them when they can't.

This March, we're celebrating 70 years of stories.

Yours is one of them. 🩷

⚕️

If you find yourself in the Central Valley of California, I highly recommend stopping by "Functionally Divergent" Art E...
03/04/2026

If you find yourself in the Central Valley of California, I highly recommend stopping by "Functionally Divergent" Art Exhibit at Merced College. I feel grateful to be a Peer Resource for this exhibit eventhough I'm eight hours away. This showcase is personal for me, not just because of FND, but also the connection with the area in which this is happening. I grew up not far from Merced and I was born in Modesto.

"Merced College Fine Arts is hosting a new exhibition from artist Mido Vince.

Functionally Divergent is a multidisciplinary art exhibition exploring the artist’s lived experience with Functional Neurological Disorder (FND) and Complex PTSD, revealing how trauma and recovery shape the central nervous system, identity, and embodiment. Drawing on Jungian theory and neuroplasticity, the works capture moments within a nonlinear healing process while engaging themes of ability, boundaries, and disability justice. Through personal narrative and creative expression, the exhibition challenges stigma and invites greater understanding and advocacy for these often-misunderstood conditions.

Location: Merced College Art Gallery

On View: February 25 - March 23
Opening Reception: February 25 5:00PM - 7:00PM

Gallery Hours:
Mon - Wed: 2:30 PM - 7:30 PM
Thu: 2:30 PM - 6:30PM

Admission & Parking: Admission is free and open to the public. Please note that a college parking permit is required to park on campus."

We’ve all felt it—that surge of anger when things don’t go as planned, when life seems unfair or overwhelming. But what ...
01/08/2026

We’ve all felt it—that surge of anger when things don’t go as planned, when life seems unfair or overwhelming. But what if I told you that anger could be your hidden superpower?

Inspired by my psychologist, who specializes in Functional Neurological Disorder (FND), I've learned that anger often masks the fierce determination lurking beneath the surface. It’s a fuel that, when channeled positively, can propel us towards our goals, ignite passions, and drive real change.

Take a moment. Breathe. Reframe your anger as determination. Let it light a path forward instead of holding you back. Swap fear for courage and transform feeling lost into a journey of self-discovery.

Remember, it’s okay to feel what you feel. Harness that fiery energy to push through barriers and build the life you envision. You're not out of control; you're on the brink of a powerful transformation. 🦋

🧡👏💙
01/03/2026

🧡👏💙

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