Chrystal's Battle with Hashimoto’s and Medical Care

09/08/2021

Chime in! Add your experience to the Hashimoto's encephalopathy knowledge base

09/08/2021

First 7 of 14 day glucose monitor
So far my average is 78 Daily pattern seems consistent but not great numbers when I drop it tends to go in the 50's & it drops within 15 to 20 minutes of eating regardless of what I eat...

09/03/2021

My Hypoglycemia got the better of me today and I had a really hard crash... passed out for several hours and never made it to get my lab work today. Starting to feel a little bit better... hopefully tomorrow will be better. Met with my Endocrinologist yesterday and got hooked up with a temporary monitor just in time for them to really catch what's going on with my blood sugar. All my specialists are supposed to be getting a check up with my Endocrinologist so everyone can get on the same page

08/10/2021

I got this put on Friday and have to wear it for 14 days. It makes me itchy but it's far better than the wires everywhere. Hopefully they'll figure something out 🤔

07/30/2021

I'm tired of being looped around over and over again... I'm a complex patient with so many issues that keep coming back inconclusive or unmanageable. I get hooked up to a 14 day Holter Monitor on Monday then another follow up with cardiologist...still waiting for approval on the dexcom monitor... might not get approved by insurance because I'm not type 1. They did a questionare and found my case as a medical necessity so I'm keeping my fingers crossed 🤞 trying to stay positive ♡

06/02/2021

Had my Brain 🧠 Ultrasound on the 26th of May, EEG tomorrow the 3rd. Went to see my Endocrinologist today and other than him reviewing my ongoing issues and my Neurologist's notes I was informed that again complex patient shows up in my notes... we didn't discuss any future plans with my thyroid or surgery involving today. I am to continue monitoring my vitals and he ordered more lab work than said "I'll see you in 3 months and I hope you don't have to have Brain surgery"
On the 11th I see my primary again and the 16th I will see my Neurologist again
Apparently the carotid arteries are the bigger concern and my Endocrinologist is hopeful that addressing this 1st might help correct some of my problems. There's a possibility that I am having minor strokes or seizures associated with the carotid arteries.

06/01/2021

I had my ultrasound on my Brain 🧠 and have my EEG on Thursday...I see my Endocrinologist tomorrow morning. Playing phone tag with the disability lawyer and just trying to relax and beat the heat today...there's so much to do but not much actually happening today

04/21/2021

Just finished up my appointment with my Neurologist and I have a corroded artery in my brain. The next steps are ultrasound and EET so we can find out more

03/16/2021

There are 7 stages of Hashimoto’s—a lifelong and progressive autoimmune disease causing an underactive thyroid. It starts subtly, usually long before you were or will be diagnosed, and develops slowly.

03/16/2021

Speaking of Women’s Health discusses Endocrine Disorders and Joint Diseases.

03/16/2021

Hashimoto's thyroiditis is a chronic (ongoing) condition where the body's immune system attacks the thyroid, a gland in the neck that makes thyroid hormone.

03/14/2021

Yesterday was day 1 of quitting smoking...it was incredibly rough and I ended up smoking 1 cigarette before bed. Mike told me that going from 2 packs a day to 1 cigarette before bed was still awesome and that I'm doing great not to be discouraged. I think the patches are helping a little bit it's mostly the physical part I'm having problems with. The lozenges aren't helping at all they just make me want to puke. Mike has been a great support trying to quit with me and everyone else around me has taken into consideration my concerns about seeing and smelling making my cravings spike. My dad spent the day with us yesterday and I don't think I've ever seen him smoke so little...I'm Trying like crazy to be strong I know it's a rough road but I have faith that I can and will be successful this time! My life depends on it, can't have thyroid surgery without quitting and it's going to be better for me and my boys 💙

03/12/2021

Sorry I haven't posted in a few days. I've had a rough week... got a call from my Endocrinologist yesterday and my labs still aren't good so I have another lab order coming. Oral surgery on Monday and see my primary on Thursday... gonna be a rough week next week too but trying to stay positive ♡

03/07/2021

Got my patches and lozenges to help me Quit Smoking! Getting everything that might visually trigger cleaned up and gone! Set my date for 3/13/21 because those are 3 of my lucky numbers ☆♡☆
I'm going at it full boar 🐗 no looking back!!! I have my oral surgery on the 15th and see my primary again on the 18th... I apologize in advance if you see me and I'm a bit moody this is a 25 year old habit that I'm going to break!

03/04/2021

https://pubmed.ncbi.nlm.nih.gov/15261881/

Although hypothyroidism was not more prevalent in our PD patients in comparison with the control group, we believe that given the potential overlap of symptoms and signs, thyroid function should be assessed in patients showing worsening of symptoms that cannot be explained by disease progression or....

03/04/2021

More for my Hashi Peeps ☆♡☆
https://www.palomahealth.com/learn/hashimotos-disability #:~:text=Suppose%20you%20are%20unable%20to,also%20limit%20your%20physical%20stamina.

Learn about qualifying for disability benefits if Hashimoto's impacts your job performance.. Learn more about hypothyroidism with Paloma Health

03/04/2021

To Anyone looking for disability help regarding
Auto Immune Disorders ♡♡♡
https://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm

14.00-Immune-Adult

03/03/2021

Got brought in a week early for my 1 month check up with my Endocrinologist. My labs weren't great last time so I had to do more blood work again. Thyroid surgery is becoming a big possibility so I'm being prescribed patches and lozenges to help me quit smoking. Got print outs for comparison for my thyroid ultrasounds to put in my medical binder. Heading home to call my Neurologist and schedule another appointment with my Gastroenterologist. Love and Blessings to All ♡