Steffens Scleroderma Foundation

Steffens Scleroderma Foundation www.steffens-scleroderma.org Ann's nature was to help others, and she participated in several research studies throughout her life.

The Steffens Scleroderma Foundation was formed in memory of Ann Steffens who was diagnosed with scleroderma in 1984 and passed away in 1997. Her mother Helen Polenz donated the funds to create the research center in the hope of sparing others the pain of losing a loved one to this disease.

๐‚๐‘๐”๐ˆ๐’๐„ ๐…๐Ž๐‘ ๐€ ๐‚๐”๐‘๐„ ๐ˆ๐’ ๐“๐Ž๐ƒ๐€๐˜! Rain or shine, the Hudson awaits and hope is our course.This year's voyage is ๐๐ž๐๐ข๐œ๐š๐ญ๐ž๐ ๐ญ๐จ ๐ญ...
07/20/2025

๐‚๐‘๐”๐ˆ๐’๐„ ๐…๐Ž๐‘ ๐€ ๐‚๐”๐‘๐„ ๐ˆ๐’ ๐“๐Ž๐ƒ๐€๐˜!
Rain or shine, the Hudson awaits and hope is our course.

This year's voyage is ๐๐ž๐๐ข๐œ๐š๐ญ๐ž๐ ๐ญ๐จ ๐ญ๐ก๐ž ๐ฆ๐ž๐ฆ๐จ๐ซ๐ฒ ๐จ๐Ÿ ๐จ๐ฎ๐ซ ๐›๐ž๐ฅ๐จ๐ฏ๐ž๐ ๐Ÿ๐ซ๐ข๐ž๐ง๐ ๐‹๐จ๐ฎ ๐‘๐ž๐ง๐ง๐š, whose spirit continues to inspire our fight against scleroderma.

Join us for an afternoon filled with meaning, movement and momentum: community, connection and a cause that needs YOU.

๐Ÿ•’ ๐๐จ๐š๐ซ๐๐ข๐ง๐  ๐จ๐ฉ๐ž๐ง๐ฌ ๐š๐ญ ๐Ÿ‘ ๐ฉ.๐ฆ. ๐–๐ž ๐ฌ๐š๐ข๐ฅ ๐š๐ญ ๐Ÿ‘:๐Ÿ‘๐ŸŽ ๐š๐ง๐ ๐ซ๐ž๐ญ๐ฎ๐ซ๐ง ๐š๐ญ ๐Ÿ“:๐Ÿ‘๐ŸŽ.

Still need tickets? Wondering what to wear or bring? Curious whatโ€™s included?

๐Ÿ‘‰ ๐’๐œ๐š๐ง ๐ญ๐ก๐ž ๐๐‘ ๐œ๐จ๐๐ž or ๐œ๐ฅ๐ข๐œ๐ค ๐ญ๐ก๐ž ๐ฅ๐ข๐ง๐ค ๐›๐ž๐ฅ๐จ๐ฐ for everything you need to knowโ€”then grab your spot!

๐Ÿ”— https://www.dutchapplecruises.com/public-cruise-calendar

Together, weโ€™re cruising in memory, in hope and toward a cure. ๐‘ณ๐’†๐’•โ€™๐’” ๐’Ž๐’‚๐’Œ๐’† ๐’”๐’๐’Ž๐’† ๐’˜๐’‚๐’—๐’†๐’” ๐’•๐’‰๐’‚๐’• ๐’˜๐’๐’–๐’๐’… ๐’Ž๐’‚๐’Œ๐’† ๐‘ณ๐’๐’– ๐’‘๐’“๐’๐’–๐’…!

P.S. Bring your valid ID and QR code confirmation. Dress for the forecast and rock those low-soled shoes!

๐“๐ก๐ž ๐œ๐จ๐ฎ๐ง๐ญ๐๐จ๐ฐ๐ง ๐ข๐ฌ ๐จ๐ง. This Sunday, weโ€™re not just cruising the Hudsonโ€”weโ€™re making waves for scleroderma.Join us aboard ๐˜พ...
07/18/2025

๐“๐ก๐ž ๐œ๐จ๐ฎ๐ง๐ญ๐๐จ๐ฐ๐ง ๐ข๐ฌ ๐จ๐ง. This Sunday, weโ€™re not just cruising the Hudsonโ€”weโ€™re making waves for scleroderma.

Join us aboard ๐˜พ๐™ง๐™ช๐™ž๐™จ๐™š ๐™›๐™ค๐™ง ๐™ฉ๐™๐™š ๐˜พ๐™ช๐™ง๐™š as we raise awareness, lift up the scleroderma community and chart a course toward a cure. Expect stunning views, great food, incredible people and a cause that canโ€™t wait.

๐Ÿ—“ ๐’๐ฎ๐ง๐๐š๐ฒ, ๐‰๐ฎ๐ฅ๐ฒ ๐Ÿ๐ŸŽ, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ“
๐Ÿ•’ ๐๐จ๐š๐ซ๐๐ข๐ง๐  ๐š๐ญ ๐Ÿ‘:๐ŸŽ๐ŸŽ ๐ฉ.๐ฆ. | ๐ƒ๐ž๐ฉ๐š๐ซ๐ญ๐ฎ๐ซ๐ž ๐š๐ญ ๐Ÿ‘:๐Ÿ‘๐ŸŽ ๐ฉ.๐ฆ. | ๐๐š๐œ๐ค ๐›๐ฒ ๐Ÿ“:๐Ÿ‘๐ŸŽ ๐ฉ.๐ฆ.

๐’๐ฉ๐จ๐ญ๐ฌ ๐š๐ซ๐ž ๐š๐ฅ๐ฆ๐จ๐ฌ๐ญ ๐ ๐จ๐ง๐ž. Grab your tickets now and be part of this unforgettable, mission-driven voyage.

๐“๐ˆ๐‚๐Š๐„๐“๐’: https://www.dutchapplecruises.com/public-cruise-calendar?_ga=2.63145836.2141081900.1752870363-1305528687.1752099254

07/16/2025

๐Ž๐ง๐ฅ๐ฒ ๐Ÿ‘ ๐๐š๐ฒ๐ฌ ๐ญ๐จ ๐ ๐จ! Ready to cruise for a cause?

Join us this ๐’๐ฎ๐ง๐๐š๐ฒ, ๐‰๐ฎ๐ฅ๐ฒ ๐Ÿ๐ŸŽ for the annual ๐˜พ๐™ง๐™ช๐™ž๐™จ๐™š ๐™›๐™ค๐™ง ๐™ฉ๐™๐™š ๐˜พ๐™ช๐™ง๐™šโ€”an afternoon of sunshine, scenic views, tasty bites and heartfelt purpose as we sail the Hudson River in support of those living with scleroderma.

๐Ÿ›ณ๏ธ ๐๐จ๐š๐ซ๐๐ข๐ง๐  ๐š๐ญ ๐Ÿ‘:๐ŸŽ๐ŸŽ ๐ฉ.๐ฆ. | ๐‚๐ซ๐ฎ๐ข๐ฌ๐ž ๐Ÿ๐ซ๐จ๐ฆ ๐Ÿ‘:๐Ÿ‘๐ŸŽโ€“๐Ÿ“:๐Ÿ‘๐ŸŽ ๐ฉ.๐ฆ.

๐’๐œ๐š๐ง ๐ญ๐ก๐ž ๐๐‘ ๐œ๐จ๐๐ž or ๐œ๐ฅ๐ข๐œ๐ค ๐ญ๐ก๐ž ๐ฅ๐ข๐ง๐ค ๐›๐ž๐ฅ๐จ๐ฐ to grab your ticketsโ€”donโ€™t miss the boat!
https://www.dutchapplecruises.com/public-cruise-calendar

Every ticket helps fund research, raise awareness and support the scleroderma community. ๐“›๐“ฎ๐“ฝโ€™๐“ผ ๐“ถ๐“ช๐“ด๐“ฎ ๐”€๐“ช๐“ฟ๐“ฎ๐“ผ ๐“ฝ๐“ธ๐“ฐ๐“ฎ๐“ฝ๐“ฑ๐“ฎ๐“ป! ๐Ÿ’™

Just 11 Days โ€˜til We Cruise for a Cure!Scenic views, tasty bites, refreshing drinksโ€”and all for a mission that matters.A...
07/09/2025

Just 11 Days โ€˜til We Cruise for a Cure!

Scenic views, tasty bites, refreshing drinksโ€”and all for a mission that matters.

All aboard for a summer evening filled with good company and a big-hearted purpose.

Tickets are going fast. Scan that QR code to get yours before they vanish into the river breeze!

TICKETS: https://www.dutchapplecruises.com/public-cruise-calendar

This isnโ€™t just a cruise. Itโ€™s a moment to make waves for those living with scleroderma.

See you July 20 at 3 p.m. Weโ€™ll save you a seat on deck.

๐–๐žโ€™๐ซ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Ÿ๐ข๐ง๐š๐ฅ ๐ฌ๐ญ๐ซ๐ž๐ญ๐œ๐ก!โฃโฃIf youโ€™re living with sclerodermaโ€”or know someone who isโ€”hereโ€™s your chance to help shape b...
07/08/2025

๐–๐žโ€™๐ซ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Ÿ๐ข๐ง๐š๐ฅ ๐ฌ๐ญ๐ซ๐ž๐ญ๐œ๐ก!โฃ
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If youโ€™re living with sclerodermaโ€”or know someone who isโ€”hereโ€™s your chance to help shape better care for the future.โฃ
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The SCTC Orofacial in SSc Working Group (led by Dr. Hughes, Dr. McMahanand and Dr. Shapiro) has launched a global survey focused on one big question:โฃ
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What are the oral health needs of people with systemic sclerosis? Your voice could help uncover whatโ€™s missing in care and move research forward.โฃ
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โœจ Totally anonymousโฃ
๐Ÿ•’ Just 15 minutesโฃ
๐ŸŒ Open to participants around the worldโฃ
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Take a few minutes to share your experience and make an impact. โฃ๐‚๐ฅ๐ข๐œ๐ค ๐ญ๐ก๐ž ๐œ๐ฅ๐ข๐œ๐ค ๐จ๐ซ ๐ฌ๐œ๐š๐ง ๐ญ๐ก๐ž ๐๐‘ ๐œ๐จ๐๐ž ๐ญ๐จ ๐ญ๐š๐ค๐ž ๐ญ๐ก๐ž ๐ฌ๐ฎ๐ซ๐ฏ๐ž๐ฒ: โฃ
https://docs.google.com/forms/d/e/1FAIpQLScK9kjyli4o_WIX8sHd_PfNogpsZW5dDHviZ6PWKsH1qOvKgQ/viewform?usp=header โฃ
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๐’๐”๐‘๐•๐„๐˜ ๐‚๐‹๐Ž๐’๐„๐’ ๐…๐‘๐ˆ๐ƒ๐€๐˜, ๐‰๐”๐‹๐˜ ๐Ÿ๐Ÿ, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ“. Thank you for helping move care forward.โฃ

๐“๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐š๐ซ๐ž ๐ฌ๐ž๐ฅ๐ฅ๐ข๐ง๐  (sailing?!) ๐Ÿ๐š๐ฌ๐ญ! Donโ€™t miss your chance to set sail for a cause that matters.Join us ๐’๐ฎ๐ง๐๐š๐ฒ, ๐‰๐ฎ๐ฅ๐ฒ ๐Ÿ...
07/05/2025

๐“๐ข๐œ๐ค๐ž๐ญ๐ฌ ๐š๐ซ๐ž ๐ฌ๐ž๐ฅ๐ฅ๐ข๐ง๐  (sailing?!) ๐Ÿ๐š๐ฌ๐ญ!
Donโ€™t miss your chance to set sail for a cause that matters.

Join us ๐’๐ฎ๐ง๐๐š๐ฒ, ๐‰๐ฎ๐ฅ๐ฒ ๐Ÿ๐ŸŽ ๐Ÿ๐จ๐ซ ๐ญ๐ก๐ž ๐‚๐ซ๐ฎ๐ข๐ฌ๐ž ๐Ÿ๐จ๐ซ ๐š ๐‚๐ฎ๐ซ๐ž, a scenic, two-hour tour Hudson River journey in loving memory of Captain Lou Renna.

๐–๐ก๐š๐ญโ€™๐ฌ ๐จ๐ง ๐›๐จ๐š๐ซ๐: a buffet of light fare (included), full bar (cash & credit accepted), free parking, a great crew, unforgettable views and even better company.

๐๐จ๐š๐ซ๐๐ข๐ง๐  ๐›๐ž๐ ๐ข๐ง๐ฌ ๐š๐ญ ๐Ÿ‘ ๐๐Œ. ๐ƒ๐ž๐ฉ๐š๐ซ๐ญ๐ฌ ๐š๐ญ ๐Ÿ‘:๐Ÿ‘๐ŸŽ ๐๐Œ ๐ฌ๐ก๐š๐ซ๐ฉ. ๐‘๐ž๐ญ๐ฎ๐ซ๐ง ๐š๐ญ ๐Ÿ“:๐Ÿ‘๐ŸŽ ๐๐Œ.
Rain or shineโ€”please dress for the weather and wear low-soled shoes.

Bring your QR code on your phone and valid ID for check-in. All proceeds benefit the Steffens Scleroderma Foundationโ€”fueling research, education and hope.

๐‘๐ž๐ฌ๐ž๐ซ๐ฏ๐ž ๐ฒ๐จ๐ฎ๐ซ ๐ฌ๐ฉ๐จ๐ญ ๐ง๐จ๐ฐ ๐›๐ž๐Ÿ๐จ๐ซ๐ž ๐ฐ๐ž ๐ฌ๐ž๐ฅ๐ฅ ๐จ๐ฎ๐ญ!
https://www.dutchapplecruises.com/public-cruise-calendar

Please share the post and a friend who would enjoy the cruise.

๐‡๐š๐ฉ๐ฉ๐ฒ ๐…๐จ๐ฎ๐ซ๐ญ๐ก ๐จ๐Ÿ ๐‰๐ฎ๐ฅ๐ฒ!As we celebrate this day of independence, weโ€™re reminded that not everyone feels freeโ€”especially th...
07/04/2025

๐‡๐š๐ฉ๐ฉ๐ฒ ๐…๐จ๐ฎ๐ซ๐ญ๐ก ๐จ๐Ÿ ๐‰๐ฎ๐ฅ๐ฒ!

As we celebrate this day of independence, weโ€™re reminded that not everyone feels freeโ€”especially those living with scleroderma.

While fireworks light the sky, many continue to fight a daily battle in silence. Letโ€™s honor freedom by helping others find theirs.

๐๐ฅ๐ž๐š๐ฌ๐ž ๐๐จ๐ง๐š๐ญ๐ž ๐ญ๐จ๐๐š๐ฒ ๐š๐ง๐ ๐ก๐ž๐ฅ๐ฉ ๐›๐ซ๐ž๐š๐ค ๐ญ๐ก๐ž ๐œ๐ก๐š๐ข๐ง๐ฌ ๐จ๐Ÿ ๐ฌ๐œ๐ฅ๐ž๐ซ๐จ๐๐ž๐ซ๐ฆ๐š:
https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ

๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ ๐—ฑ๐—ผ๐—ฒ๐˜€๐—ป'๐˜ ๐˜๐—ฎ๐—ธ๐—ฒ ๐—ฏ๐—ฟ๐—ฒ๐—ฎ๐—ธ๐˜€ ๐—ฎ๐—ป๐—ฑ ๐—ป๐—ฒ๐—ถ๐˜๐—ต๐—ฒ๐—ฟ ๐—ฑ๐—ผ ๐˜„๐—ฒ.While June marks ๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐— ๐—ผ๐—ป๐˜๐—ต, our work continues year-...
07/02/2025

๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ ๐—ฑ๐—ผ๐—ฒ๐˜€๐—ป'๐˜ ๐˜๐—ฎ๐—ธ๐—ฒ ๐—ฏ๐—ฟ๐—ฒ๐—ฎ๐—ธ๐˜€ ๐—ฎ๐—ป๐—ฑ ๐—ป๐—ฒ๐—ถ๐˜๐—ต๐—ฒ๐—ฟ ๐—ฑ๐—ผ ๐˜„๐—ฒ.

While June marks ๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐— ๐—ผ๐—ป๐˜๐—ต, our work continues year-round with unwavering commitment, creativity and purpose.

We stand beside those living with scleroderma, their loved ones and the healthcare heroes fighting for answers.

We raise awareness, fuel life-changing research and give voice to stories that deserve to be heard.

Whether youโ€™re newly diagnosed or have spent years navigating this journey, your experience matters. Your story has the power to inspire change.

๐—ง๐—ผ๐—ด๐—ฒ๐˜๐—ต๐—ฒ๐—ฟ, ๐˜„๐—ฒ ๐—ฝ๐˜‚๐˜€๐—ต ๐—ณ๐—ผ๐—ฟ๐˜„๐—ฎ๐—ฟ๐—ฑ. ๐—ง๐—ผ๐—ด๐—ฒ๐˜๐—ต๐—ฒ๐—ฟ, ๐˜„๐—ฒ ๐˜€๐˜๐—ฟ๐—ฒ๐—ป๐—ด๐˜๐—ต๐—ฒ๐—ป ๐—ต๐—ผ๐—ฝ๐—ฒ. ๐—™๐—ผ๐—น๐—น๐—ผ๐˜„ ๐—ผ๐˜‚๐—ฟ ๐—บ๐—ถ๐˜€๐˜€๐—ถ๐—ผ๐—ป. ๐—ฆ๐—ต๐—ฎ๐—ฟ๐—ฒ ๐˜†๐—ผ๐˜‚๐—ฟ ๐˜ƒ๐—ผ๐—ถ๐—ฐ๐—ฒ.

If youโ€™re able, please donate to move us closer to a cure: https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ

๐’๐œ๐ฅ๐ž๐ซ๐จ๐๐ž๐ซ๐ฆ๐š ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐ˆ๐ฌ๐ง'๐ญ ๐‰๐ฎ๐ฌ๐ญ ๐š ๐Œ๐จ๐ง๐ญ๐กโ€”๐ˆ๐ญ'๐ฌ ๐š ๐Œ๐จ๐ฏ๐ž๐ฆ๐ž๐ง๐ญโฃโฃWe honor June as ๐’๐‚๐‹๐„๐‘๐Ž๐ƒ๐„๐‘๐Œ๐€ ๐€๐–๐€๐‘๐„๐๐„๐’๐’ ๐Œ๐Ž๐๐“๐‡, but our dedicati...
06/30/2025

๐’๐œ๐ฅ๐ž๐ซ๐จ๐๐ž๐ซ๐ฆ๐š ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐ˆ๐ฌ๐ง'๐ญ ๐‰๐ฎ๐ฌ๐ญ ๐š ๐Œ๐จ๐ง๐ญ๐กโ€”๐ˆ๐ญ'๐ฌ ๐š ๐Œ๐จ๐ฏ๐ž๐ฆ๐ž๐ง๐ญโฃ
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We honor June as ๐’๐‚๐‹๐„๐‘๐Ž๐ƒ๐„๐‘๐Œ๐€ ๐€๐–๐€๐‘๐„๐๐„๐’๐’ ๐Œ๐Ž๐๐“๐‡, but our dedication doesnโ€™t stop there. Every day, we strive to ๐ž๐๐ฎ๐œ๐š๐ญ๐ž and ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ with creativity, compassion and impact.โฃ
โฃ
๐“๐จ๐ ๐ž๐ญ๐ก๐ž๐ซ, ๐ฐ๐ž ๐ฌ๐ญ๐ซ๐ž๐ง๐ ๐ญ๐ก๐ž๐ง ๐ก๐จ๐ฉ๐ž.โฃ
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We celebrate the resilience of those living with scleroderma and the tireless efforts of medical professionals and researchers. โฃ
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Every voice matters. Every story fuels progress. Letโ€™s keep the momentum going.โฃ
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๐Œ๐š๐ค๐ž ๐š ๐๐ข๐Ÿ๐Ÿ๐ž๐ซ๐ž๐ง๐œ๐ž ๐ญ๐จ๐๐š๐ฒ.โฃ
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๐…๐จ๐ฅ๐ฅ๐จ๐ฐ ๐จ๐ฎ๐ซ ๐ฃ๐จ๐ฎ๐ซ๐ง๐ž๐ฒ ๐š๐ง๐ ๐๐จ๐ง๐š๐ญ๐ž ๐ญ๐จ ๐š๐๐ฏ๐š๐ง๐œ๐ž ๐ซ๐ž๐ฌ๐ž๐š๐ซ๐œ๐ก ๐š๐ง๐ ๐ž๐ฆ๐ฉ๐จ๐ฐ๐ž๐ซ ๐ฅ๐ข๐ฏ๐ž๐ฌ.โฃ
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Donate here >> https://www.paypal.com/donate/?hosted_button_id=CFF8BP5UB8PYJ โฃ
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June 29 is World Scleroderma Dayโ€”a time to honor the strength, creativity and resilience of those living with this compl...
06/29/2025

June 29 is World Scleroderma Dayโ€”a time to honor the strength, creativity and resilience of those living with this complex disease.

We remember artist Paul Klee, who continued to create through pain and uncertainty. His legacy reminds us that behind every diagnosis is a human story that deserves to be seen, heard and understood.

The sunflower, a symbol of scleroderma awareness, turns instinctively toward the lightโ€”just as those living with scleroderma reach for hope in the face of challenges.

Weโ€™re not only raising awarenessโ€”weโ€™re building something better. Through patient-led education and research, weโ€™re working toward a future where no one faces this disease alone.

Stand with us today. Share the story. Support the journey.

๐Ÿ‘‰ www.steffens-scleroderma.org

Every patient story has the power to shift how care is delivered.During SCLERODERMA AWARENESS MONTH, weโ€™re working towar...
06/28/2025

Every patient story has the power to shift how care is delivered.

During SCLERODERMA AWARENESS MONTH, weโ€™re working toward a future where patients donโ€™t just inspire empathyโ€”they help shape how tomorrowโ€™s healthcare professionals are trained.

Through our Interprofessional Education (IPE) program, weโ€™re building a model of care where collaboration starts in the classroom and patient voices lead the way.

Learn how we're transforming care at https://www.steffens-scleroderma.org/ipe

Join us in rethinking how care beginsโ€”with the patientโ€™s voice.

๐— ๐—ถ๐˜€๐—ถ๐—ป๐—ณ๐—ผ๐—ฟ๐—บ๐—ฎ๐˜๐—ถ๐—ผ๐—ป ๐—ฐ๐—ฎ๐—ป ๐—ฑ๐—ฒ๐—น๐—ฎ๐˜† ๐—ฑ๐—ถ๐—ฎ๐—ด๐—ป๐—ผ๐˜€๐—ถ๐˜€. Thatโ€™s why weโ€™re setting the record straightโ€”one myth at a time. During ๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ...
06/25/2025

๐— ๐—ถ๐˜€๐—ถ๐—ป๐—ณ๐—ผ๐—ฟ๐—บ๐—ฎ๐˜๐—ถ๐—ผ๐—ป ๐—ฐ๐—ฎ๐—ป ๐—ฑ๐—ฒ๐—น๐—ฎ๐˜† ๐—ฑ๐—ถ๐—ฎ๐—ด๐—ป๐—ผ๐˜€๐—ถ๐˜€. Thatโ€™s why weโ€™re setting the record straightโ€”one myth at a time.

During ๐—ฆ๐—ฐ๐—น๐—ฒ๐—ฟ๐—ผ๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ฎ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐— ๐—ผ๐—ป๐˜๐—ต, weโ€™re spotlighting the facts that matter and the voices that need to be heard.

Help us break the cycle of confusion and bring clarity to the scleroderma and Degos communities.

๐˜“๐˜ฆ๐˜ข๐˜ณ๐˜ฏ ๐˜ฎ๐˜ฐ๐˜ณ๐˜ฆ ๐˜ข๐˜ฃ๐˜ฐ๐˜ถ๐˜ต ๐˜ด๐˜ค๐˜ญ๐˜ฆ๐˜ณ๐˜ฐ๐˜ฅ๐˜ฆ๐˜ณ๐˜ฎ๐˜ข ๐˜ฃ๐˜บ ๐˜ด๐˜ค๐˜ข๐˜ฏ๐˜ฏ๐˜ช๐˜ฏ๐˜จ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ช๐˜ฎ๐˜ข๐˜จ๐˜ฆ or visit https://www.steffens-scleroderma.org/what-is-scleroderma

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