Kayla's Journey

03/29/2023

When I say that Kayla was the most unselfish, always thinking of others before herself, in the end worried about her brothers and sisters more then she was herself I MEAN EVERY WORD of it. We received this letter from Lifeline of Ohio today. Kayla in the end did the most unselfish thing she possibly could and gave two people the gift of sight again. Although that is all she was able to give two people now have better lives because of her.

01/29/2023

Kayla's celebration of life will be May 6th, 2023. Send us a message if you are interested in coming and we will give you the details 💜

12/31/2022

For those who couldn't be here, here is the service we did for Kayla yesterday with our family

12/20/2022

The hardest thing for me to deal with is knowing the happiest times of your life were your birthday and Christmas. Now in the span of two weeks for the rest of our lives we will have the anniversary of your passing, your birthday and Christmas. How do you make the most of a time that was full of happiness but now is full of sadness, grief and pain. All of these days are not going to be the same without you and I am still angry that Inhave to navigate these without you. I just want to wake up from this nightmare.

12/19/2022

It has been 1 week. 1 week since you left us to ride that rainbow. 1 week since I have heard your voice. 1 week since I have been able to see this smile in person. This week has been the must gut wrenching, emotional, heartbreaking, test of my will and promise to you of my life. I promised you we would be ok, that you didn't have to worry about us. That is a promise I will keep, but right now it is so raw, we are trying to navigate this world without you for the first time in 22 years. I talk to you often, but it isn't the same as you being here. You would be so proud of us Kayla. We are coming together as a family and being there for each other in ways I have never seen. Keep watch over us. Eric and I go back to work today even though it is going to be difficult and both of us could say no we are not ready. But we both know we need the destraction and you wouldn't want us not to go back to work. We love you and miss you so much. I know you are smiling in heaven and you will continue to make your presence known to us just as you did in life.

12/14/2022

https://www.funeralhome.com/obituary/KaylaMarie-Bowers

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12/12/2022

Today I am heartbroken, Kayla has left us and gone to heaven to be with her great grandparents early this morning. This happened very quickly and pretty much without warning for us. She left us peacefully this morning with no pain. She will forever be a light in our lives. She has touched so many and will continue to touch people. I will post service information when it is known we plan on having a small family service and then doing a bigger celebration of life after the holidays when it is warmer. Please keep our family in your prayers as we navigate these difficult times ahead.

12/11/2022

Tonight I make a post I never thought I would ever have to make. We have not been updating but we have been at the James since Tuesday and we have been in the ICU since Wednesday. Kayla went into respiratory failure Tuesday. Through lots of tests and scans we found fluid in her abdomen. Tuesday night in the ER they drained the fluid and got 5 liters of fluid off her. This helped her respiratory failure but she still needed oxygen support. Wednesday into Thursday she started to decline again and we found the fluid they drained had returned they drained another 4 liters off her early Thursday. Late Friday they placed a permanent drain in her abdomen and when they did they drained an additional 3 liters off her. She was feeling better, was more alert when she was awake we thought we were on the mend. However early this morning we received word that the culture they did on the fluid showed cancer cells were in the fluid meaning that she has cancer cells freely flowing through her abdomen. Between this and Kayla starting to decline again today it was decided we needed to change from trying to make her better to making her comfortable. We have transitioned Kayla to inpatient hospice care at OSU where she will stay. We wanted her home but she isnt stable enough and her oxygen support needs are too high to risk transporting her. We have stopped running tests and scans and we are concentrating now on pain control/management and making sure she can breather easier by draining the fluid every day. We have been told estimated time of days to weeks with Kayla. Any complications can change this. Right now she is stable, not in pain and resting comfortably. We are still in the ICU until they can get her moved to the hospice floor most likely Monday or later. She does not have any visitor restrictions for time or amount of people who can come see her. If you do want to come please come I just ask you message me on here to let me know you are wanting to come and when. We have a lot of family coming and going and just want to manage the flow of people. This is not what any of us wanted and we were all praying for Devine intervention it just wasn't to be. I know that God has a plan for her even if I don't understand that plan. Please pray for us over the coming days to get us through this difficult time to come for us.

12/07/2022

New update on Kayla.They found fluid in her abdomen and a lot of it. They did a procedure to drain the fluid ans they drain 5 liters of fluid from her abdomen. She is currently just on regular oxygen and much less liters of oxygen. They think they have found the culperate of the oxygen issues. Unfortunately they think it is her cancer causing the fluid build up so we potentially will have to do this again. But for now she is good. They we hoping it would fix the CVC line issues and it worked!

12/06/2022

So we have ended up at OSU James a day ahead of schedule. This morning at Kayla's oncology appointment, her oxygen stats were low they tried to give her oxygen at the office, and her oxygen stats still were not coming up with oxygen. They called the squad and had her brought to James. Chest x-ray was clear, nothing showing that would cause this. CT scan showed nothing that would cause this. She has been on a Cpap machine since not long after we got here to keep her stats consistent and normal. Right now, we really don't know what is causing this. They are getting the pulmonary and lung doctors involved, and more tests will be run to narrow down what is happening. She will be admitted today, but we don't know when. They are trying to find out if she is truly oxygenated ok and then pulse oxy just isn't reading or if there is something else going on. Her lab work that we are normally concerned about are all ok. We are asking for prayers to get her stable enough to come off the Cpap machine and for the doctors to find out what is causing this.

12/05/2022

It has been a while since we have updated, but that was because there really wasn't anything to update. Last week, Kayla had more CT scans to see what the chemo was doing. We got good news today. The cancer is responding to the chemo! Her largest tumor in September was 19cm it is currently at 8cm, the 2nd largest tumor was at 11cm and it is now also at 8cm. They were some spots found in her pelvic area that were not there before but are smaller and they anticipate the chemo to work with those also. We are planning 2 more rounds and them more scans after that. If all goes well with bloodwork tonight/tomorrow the plan is admit to the James Wednesday to start another round. The best part is with the exception of the past couple of days with neasea she is feeling better! Keep those prayers coming for more good results with this chemo!

12/03/2022

Hot flashes are no joke. Haven't been able to sleep because I am burning up and I am the type of person that needs a blanket on her. Plus it doesn't help that my back and sides are hurting and only stop when I take oxy for the pain because of this damn cough I have.

11/24/2022

Happy Thanksgiving to everyone that has and continues to support me through this journey

11/12/2022

Kayla is done with Chemo for today they started everything around 2 and she was done before 6. Her day started out rough with her needed to sleep alot this morning but she perked up around lunch and was sitting up in the chair. Grandma Debby took her downstairs to the cafeteria for dinner tonight because the patient food just isn't cutting it. She has a taco salad and thoroughly enjoyed it. We are on track to start chemo at noon tomorrow and get her home tomorrow!

11/12/2022

Chemo went smoothly for Kayla tonight she was done a little after 8. She has had a rough day today. Not feeling great, not really feeling food today and just emotional. It kills me not to be with her but I am at home sick so I am better off here. Show her some love here on Facebook, Instagram or through text if you can. Encouraging words to her go a long way. And letting her know you are thinking about her makes her feel loved.

11/11/2022

Sorry everyone for the late update on Kayla, I have come down with a cold and it is kicking my butt. Last night went smoothly, chemo meds were on time and they were done before 10pm. I am home and have been since yesterday afternoon but my mom is holding down the fort at the hospital with Kayla and today is going good. They started pre meds at 3:30 and are getting her first chemo ready to start now. Her second med will start at 6 and be done around 7:15-7:30. We are on track to get her out of there late afternoon early evening on Sunday after her last chemo.

11/09/2022

We are back in the James for round 3 of chemo. She is settled into her room. 20th floor rm 2009. They are getting everything ordered so they can get the chemo from the pharmacy to get this show on the road. Say a prayer for us that Kayla gets through these 5 days of chemo smoothly.

11/06/2022

So far another night of no sleep