Foundation for Ichthyosis & Related Skin Types, Inc.

05/08/2026

👏 Well done, Laura Hogan! 👏

We’re proud to celebrate Laura’s continued advocacy through her recent presentation at the BEDS (Bedside Excellence Development Series) at Northwestern, hosted by the Center for Bedside Medicine.

By sharing her perspective and lived experience, Laura is helping shape more compassionate, patient-centered care; one conversation at a time. Opportunities like BEDS bring future and current healthcare providers closer to the real stories behind the conditions they study, and voices like Laura’s make a lasting impact.

Thank you, Laura, for your dedication, your voice, and your unwavering commitment to improving care for our ichthyosis community. 💙

05/07/2026

So proud of The Cinas!

05/07/2026

✨ 🏹 2026 Archery Season 🏹 ✨

What an unforgettable 8th grade season for FIRST member, Harper! From setting new personal bests to earning her first *Top Female* award (beating the entire high school field 🤯), taking 1st at Regionals in 3D, and being named Middle School MVP, she’s truly been on target all year long.

After working toward this goal since 6th grade, Harper made it happen in a big way, finishing 4th in 3D and claiming the top spot in Bullseye to become the **Middle School Bullseye State Champion! 🥇**

Next stop: Nationals in Louisville, KY this weekend!

We are so proud of her hard work, determination, and heart. Harper offfers a huge thank you to her teammates, coaches, and the incredible archery community that continues to support and inspire her.

🎯 Harper, we’re cheering you on this weekend at Nationals! Aim high and enjoy every moment! 💫

05/06/2026

🎉 Tune in and show your support! 🎉

FIRST members Portia and Miles Cina will be featured on One Day in My Body on TLC! 💙

📺 Airs: Today, Wednesday, May 6 at 9 PM EST
📲 Streaming: Available afterward on HBO Max

Don’t miss this powerful glimpse into their story and daily life. Let’s rally around Portia and Miles and celebrate the strength and resilience of the ichthyosis community.

Be sure to watch, share, and spread the word!

05/05/2026

May is Ichthyosis Awareness Month 💙

Your story matters and it has the power to make a difference. Let’s keep the momentum going!

By sharing your journey, you help others to connect, educate those who may not understand, and shine a light on life with ichthyosis. Whether it’s a challenge you’ve overcome, a daily routine, or a moment of strength, your voice creates awareness and builds community.

📣 Join us this month:
✨ Share your story
✨ Spread awareness
✨ Inspire others

Don’t forget to tag FIRST so we can amplify your voice and celebrate this incredible community together. Let’s get the word out!

Let’s make a month of connection, understanding, and impact 💙

05/04/2026

We have just replaced our 2010-era website with something new.

You asked. We listened. And today, we're so excited to share what we've been building — for you.

Go ahead and explore it now at firstskinfoundation.org — but first, here's a peek at what's waiting for you.

• Help finding the right doctors not just dermatologists, but the ophthalmologists but other specialists who truly understand ichthyosis care. Our specialist finder now lists 230 physicians (up from 206), with global and tele-health search so geography is no longer a barrier. We will be adding physicians as we go.

05/01/2026

🌟 Celebrate Ichthyosis Awareness Month with us! 🎉 We're thrilled to announce our new website launch dedicated to connecting our community, advancing research and many other useful tools. Don't miss our upcoming National Conference, an opportunity to learn, share, and support each other. Visit our website to easily explore more! https://conta.cc/4vZad37

Email from Foundation for Ichthyosis & Related Skin Types (FIRST) Camp Wonder, Immunomodulatory Therapy and Why Research Matters     May 1, 2026 Happy Ichthyosis Awareness Month May is Ichthyosis Aw

05/01/2026

🎉 It’s here—May is Ichthyosis Awareness Month! 💙

Today we kick off a month dedicated to raising awareness, celebrating our community, and shining a light on the strength of those living with ichthyosis.

All month long, please tag FIRST in your awareness posts. Whether you’re living with ichthyosis, supporting a loved one, or learning for the first time, you are a part of this movement.

Let’s make this month proud and full of impact:
💙 Share your story
💙 Spread awareness
💙 Support one another

Together, we are stronger.

04/30/2026

There will be a National Conference price increase after midnight. Register today! https://firstskinfoundation.org/2026-national-conference/

04/30/2026

Diya & Aliya Skin Care Fund applications are due today! https://firstskinfoundation.org/resources/financial-aid/financial-help/diya-aliyas-friends-daf-fund/