AmeriFace

12/20/2019

I haven't known for the longest time just how to share this news. We are shocked and saddened as a family, and as an organization, and as a community. But we are also in awe of a life well lived, and we give thanks knowing this beautiful young lady and sweetest friend and her loving, precious family are part of our lives. We love you all...

12/14/2019

Thank you to our friends at the Vanderbilt Music Cognition Lab for making us aware of this research opportunity! This survey study is supported by Vanderbilt University Medical Center and the National Endowment for the Arts Research Lab program. Please participate!

Music in Children and Families Online Survey Study
The Music in Children and Families study is recruiting parents of young children (6 months to 5 years old) with or without developmental, medical, or other health impairments to take part in an online questionnaire study on musical experiences and social and emotional well-being in young children, parents, and families. Participation will take approximately 30 minutes, and participants receive a children's music CD download and can enter to win a $25 gift card.

Access the survey at https://is.gd/MusicChildrenFamilies

10/20/2017

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Volunteer, donate, read reviews for AmeriFace in Las Vegas, NV plus similar nonprofits and charities related to Birth Defects & Genetic Diseases, Centers to Support the Independence of Specific Populations, Health, Health Support, Human Services

10/18/2017

Friends, if you have just a minute, please let folks know about your experience with our 501(c)(3) non-profit organization. Click over to https://greatnonprofits.org/reviews/write/ameriface and you can even upload a picture! Whether you've just joined us or have been with us for decades, please help spread the word! Did you know? AmeriFace and its family of programs, including cleftAdvocate and the Pathfinder Outreach Network, is a 100% volunteer organization...no paid employees, including myself and our leadership team! Thanks for what you do for each other - Making a World of Difference in a World of Facial Differences!®

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

03/25/2017

Hello, AmeriFace/cleftAdvocate Families!

As the largest, most active support organization for the cleft/craniofacial community, many of our families will remember participating in the very first phase of this study. And now it's time to rally the troops again! If you have a child age 3 or younger, born with a cleft lip with or without cleft palate, this is your opportunity to shape the future of care for your child for years to come! Click now!

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

Below is the survey introduction from the researchers - my friends and colleagues who take the care of your children very seriously, who have worked tirelessly for decades to improve on treatment and outcomes. Your input is desperately needed. Should you have any questions, feel free to contact me or the researchers at your convenience. debbie@ameriface.org

ICOO Introduction:

Researchers in Seattle and Chicago are inviting parents of young children with a diagnosis of a cleft lip with or without palate to join this research study. The goal of our study is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. In a previous part of this study, we asked caregivers to share about their child’s cleft, cleft treatment, and observations of their child’s health and well-being.

In this next part of our study, we need parents and caregivers who have a child who is three years old or younger, and has a diagnosis of a cleft lip with or without cleft palate, to help us! We are asking parents to take the observations we’ve received from previous parent interviews and prioritize them, so we’ll know the most important items to include in our questionnaire.

To learn more about the study or take part in the survey, please go to:

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

08/03/2016

Our AmeriFace/cleftAdvocate partners at Seattle Children’s Hospital and the University of Washington are inviting parents of young children (under three years of age) with a diagnosis of a cleft lip with or without palate (not cleft palate only) to join this new research study! The goal is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. The questionnaire will be called the Infant Cleft Observer-Reported Outcomes Instrument, or “ICOO.” I've attached a flyer with full information, including a link to the start page (see the QR code). Spread the word! With your help, we are making a world of difference in a world of facial differences! https://redcap.iths.org/surveys/index.php?s=N8XWT7X98D

07/23/2016

Very proud to publish photos of these significant recognition certificates! The first is from the United States Senate, and the other is our State of Nevada Governor's Proclamation, both in honor of our 25th Anniversary of Service to you and your families, and our crown jewel, National Cleft and Craniofacial Awareness and Prevention Month (NCCAPM)!

07/21/2016

Here's a picture of our Founder/CEO with the President & Executive director of AmeriFace! Today was a heart wrenching, educational, inspiring & beautiful convention! So honored to meet all of the unbelievably strong & brave individuals. Debbie Oliver AmeriFace

07/21/2016

Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) by telling us about your interaction with our organization! From all entries in July, we will randomly select a winner for a $50 Visa gift card! http://greatnonprofits.org/reviews/write/ameriface

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

07/01/2016

One of the most important accomplishments of our organization in these past 25 years, and of my own non-profit career personally, is the establishment of THE official cleft/craniofacial awareness month - if it's July, then it's National Cleft & Craniofacial Awareness & Prevention (NCCAPM)! The only cleft/craniofacial awareness month recognized by the CDC, the US Department of Health and Human Services, and by cleft/craniofacial clinics around the country and the world, we celebrate with all of you and recognize YOU - our volunteers - in all the fabulous work you do. AmeriFace, including the cleftAdvocate program, is the ONLY national/international cleft/craniofacial support and outreach organization that is 100% volunteer in nature, including myself and the entire staff. Our work in the field, on state and federal legislation to force insurance companies to honor their contracts for cleft/cranio care, and our award winning outreach program, the Pathfinder Outreach Network, are unsurpassed! So here's to another 25 years (at least) and to spreading the word during July - join us in Making a World of Difference in a World of Facial Differences!® http://www.nccapm.org

July is National Cleft & Craniofacial Awareness & Prevention Month (NCCCAPM). Organizations across the country unite to raise awareness and assist patients and families.

06/28/2016

Making a world of difference in a world of facial differences!® Folks, don't miss our 25th Anniversary Conference and Celebration...it's right around the corner! Las Vegas area locals, be sure to get there! Incredible room rate extended for a few more days and some registration fee scholarships still available. E-mail me directly at debbie@ameriface.org or call toll-free (888) 486-1209 for additional information or to request a registration scholarship. See you there! http://www.ameriface.org/2016nacfc_registration.html

Are you caring for a child with cleft lip and/or palate or other craniofacial condition? Welcome to AmeriFace, the premier support organization for the cleft/craniofacial community!