Gigi’s Journey - Intracranial Pure Germinoma - Germ Cell Brain Tumor

Gigi’s Journey - Intracranial Pure Germinoma - Germ Cell Brain Tumor At 8 years old, Gizelle got diagnosed with brain cancer. Intracranial Germinoma on pituitary gland

09/06/2025

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Gigi is finally back to school face to face ❤️ we both cried like it was her very first day of preschool. This time they...
12/05/2024

Gigi is finally back to school face to face ❤️ we both cried like it was her very first day of preschool. This time they were happy tears of joy though. They were tears we thought we’d never have because it seemed like forever. Going through this journey is not easy but we’re making it happen. And by we I mean Gizelle and her school team. Couldn’t have asked for a better school support and staff. From being all on board with a 504 plan, medicines, nurses and accommodations and all the teachers help. Means so much to us.
They even had “ Hat Day “ for the whole school to welcome Gigi on her first day of school❤️🫶🏻😍
Feeling blessed and thankful to be able to go to school and not a hospital ❤️🫶🏻🙏🏻

09/02/2024

Update:
Once you see the world through the cancer lens you realize you won’t be the same person who walked in that storm. It teaches you how to live no matter how big those traumatic experiences were. We have faced so many challenges but we’ve been blessed to have the best support system a family can have. For that we are eternally grateful. Our daughter had cancer. Cancer didn’t have her. And although we know that the healing journey is just getting started ,today we can start breathing a bit more little by little and we’ll let our scars tell the story of survival for other families. Today we start to see the best view after the climb. Today we can say she’s a 2 time cancer survivor. Today she’s in remission 🙏🏻🙏🏻🙏🏻thank you god❤️❤️🫶🏻🫶🏻🫶🏻

06/05/2024

Update :
I couldn’t wrap my head around the fact that cancer was back. They called from school saying she was having a big headache and she was having trouble walking. By the time we brought her home she felt tingling in her feet and couldn’t walk . I first thought she was getting sick or it’s just side effects from last year. My heart told me to take her to ER though. And as you know it metastasized in her spine. You can imagine how much PTSD we’ve been going through since re diagnosed. Gigi has gone through so much these past months that I really didn’t know how to put it in words.

They recommended a treatment consisting of 5 days of 3 different types of chemo for 4 rounds at first. After having a board meeting, Drs decided on only 2 rounds. If we thought last years chemo rounds were hard on her, this year’s treatment was the hardest thing she’s been through. From having her port taken out just a few weeks before, to having to put in a pic line for her to receive treatment. The first round of chemo, she ended up in ICU for 2 weeks. She’s been through Scans, tests, MRIs, Lumber puncture and even a stem cell collection for a possible stem transplant. All the symptoms that come with chemo like the excruciating pains, vomit, fatigue, rashes, and an endless list of things made us burry ourselves in the only thing we could do at that/this point, get to our knees and pray 🙏🏻 pray with all our hearts and faith.

Drs will tell you what can happen and as a parent I refused to think of the worst. We decided to get in fight mode and ask for many prayers. I thank god we always encouraged our girl to have a strong mindset it’s mind over body always ! And to never loose her faith. But then we’d see and read many cancer cases where treatment doesn’t work, or it only shrinks it or sometimes it decides to spread even more. But god had other plans for her because her mind and body resisted and we finally got her scan results :

Clear scans : No evidence of mass/tumor . It’s gone and treatment worked. She won’t need a stem transplant or surgery or more chemo. We will be doing proton beam treatment only in a few weeks 🥹Cancer patients sometimes don’t get to hear these words. That’s how huge these results mean to us ❤️

Our hearts and souls have been crying with happiness. And we can’t thank enough to our family and friends that have been so supportive and have prayed with us all along❤️❤️❤️❤️❤️

I write this update because I know there will be parents searching and searching for cancer cases like ours and Gigis case will maybe help them decide on treatment when they search for Pure Germinoma Intracranial Tumor on pitiutary gland.

No podía entender el hecho de que el cáncer había regresado. Llamaron desde la escuela diciendo que tenía un gran dolor de cabeza y que tenía problemas para caminar. Cuando la llevamos a casa, sentía un hormigueo en los pies y no podía caminar. Primero pensé que se estaba enfermando o que eran solo efectos secundarios del año pasado. Sin embargo, mi corazón me dijo que la llevara a emergencias. Y como sabes, hizo metástasis en su columna. Pueden imaginar cuánto PTSD hemos estado pasando desde que diagnosticaron. Gigi ha pasado por tantas cosas estos últimos meses que realmente no sabía cómo expresarlo con palabras.

Recomendaron un tratamiento que constaba de 5 días de 3 tipos diferentes de quimioterapia durante 4 rondas al principio. Después de una reunión de la junta directiva, los doctores se decidieron por sólo 2 rondas. Si pensábamos que las rondas de quimioterapia del año pasado fueron duras para ella, el tratamiento de este año fue lo más difícil por lo que ha pasado. Desde que le quitaron el puerto apenas unas semanas antes, hasta tener que ponerle una nueva línea para recibir tratamiento. En la primera ronda de quimioterapia, terminó en terapia intensiva durante 2 semanas. Ha pasado por exámenes , pruebas, resonancias magnéticas, incluso una recolección de células madre para un posible trasplante de célula madre . Todos los síntomas que vienen con la quimioterapia como los dolores insoportables, vómitos, fatiga, sarpullidos y un sin fin de cosas nos hicieron enterrarnos en lo único que podíamos hacer en ese/este momento, arrodillarnos y orar 🙏🏻 orar. con todo nuestro corazón y fe.

Los doctores te dicen lo que puede pasar y como padre me negué a pensar en lo peor. Decidimos ponernos en modo lucha y pedir muchas oraciones. ¡Doy gracias a Dios que siempre alentamos a nuestra niña a tener una mentalidad fuerte: siempre es la mente sobre el cuerpo! Y nunca perder su fe. Pero luego veríamos y leeríamos muchos casos de cáncer en los que el tratamiento no funciona, o sólo lo reduce o, a veces, decide propagarse aún más. Pero Dios tenía otros planes para ella porque su mente y su cuerpo resistieron y finalmente obtuvimos los resultados de su escaneo:

Escaneo claro: No hay evidencia de masa/tumor. Desapareció y el tratamiento funcionó. No necesitará un trasplante de célula madre, ni cirugía, ni más quimioterapia. Realizaremos el tratamiento de radiación de protones solo en unas semanas

Nuestros corazones y almas han estado llorando de felicidad. Y no podemos agradecer lo suficiente a nuestra familia y amigos que nos han apoyado tanto y han orado con nosotros todo estetiempo❤️❤️❤️❤️❤️

03/24/2024

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