Colors of Lupus Nevada

07/20/2025

Lupus awareness should happen 365 days, 24 hours, 7 days a week. Although they say Lupus can be invisible, there are times that the Warrior’s Lupus is visible to the human eye. For me, one of my visible realities of Lupus is called alive so Reticularis which is a common skin finding consisting of a mottled reticulated vascular pattern that appears as a lace-like purplish discoloration or transparency of the skin.

Livedo reticularis (LR) can manifest as a result of a wide range of conditions, including:
Hematologic and hypercoagulable states: Such as thrombophilia, an increased tendency for blood to clot
Connective tissue diseases: Such as systemic lupus erythematosus (SLE) and rheumatoid arthritis.

The stretching and transparency of the skin is VERY painful. I haven’t felt this way in a long time, can somebody tell my insurance company that they need to approve my Saphnelo (Lupus treatment) so that I can not have to suffer with the Livedo Reticularis. .o.l.n. 💜

07/09/2025

Lupus can cause depression, anxiety and PTSD so we want to check on everyone’s mental health status. Today’s Mental Health Check-In 💬🧠

How are you really feeling today? Take a moment to pause, breathe, and check in with your mind and emotions. It's okay to not have it all together. Give yourself grace.

Whether it's rest, prayer, a walk outside, or talking to someone—do one thing today that nurtures your mental health.

Remember: your peace is worth protecting. Your mind matters every single day. 💚

06/20/2025

06/20/2025

Walking the World Purple

05/31/2025

MAY IS LUPUS AWARENESS MONTH | DAY 1 FACT 1:

Sensitivity to ultraviolet light (present in both sunlight and artificial light) affects as many as two thirds of individuals with lupus, and may cause fever, debilitating fatigue, joint pain, rashes and other symptoms.

💜 .o.l.n.

05/31/2025

MAY IS LUPUS AWARENESS MONTH | DAY 30 FACT 30:

People with lupus usually are encouraged to engage in appropriate daily exercise to maintain muscle and bone strength, but they also need to balance exercise with rest.

💜 .o.l.n.

05/29/2025

MAY IS LUPUS AWARENESS MONTH | DAY 29 FACT 29:

People with lupus take on average nearly eight prescription medications to manage all of their medical conditions including lupus.

.o.l.n. 💜

05/29/2025

MAY IS LUPUS AWARENESS MONTH | DAY 28 FACT 28:

Anti-inflammatory drugs, anti-malarials, and steroids, such as prednisone, are used to treat lupus. Non-steroidal anti-inflammatories (NSAIDs) and Cytotoxic chemotherapies similar to those given in the treatment of cancer are also used to suppress the immune system of people with lupus. Hydroxychloroquine (HCQ) was approved by the FDA for lupus in 1955. HCQ and Corticosteroids like prednisone were the only real treatment for lupus for 56 years. Finally, in 2011 Belimumab (Benlysta®) a Monoclonal antibodies (mAbs) was approved by the FDA for the direct treatment of lupus. Ten years later in 2021, Anifrolumab-fnia (Saphnelo®) was approved.

The goal of lupus treatment is not just to reduce the symptoms, but to maintain full function. Even with good treatment, symptoms are likely to fluctuate over time. Lupus is always unpredictable.

💜 .o.l.n.

05/28/2025

MAY IS LUPUS AWARENESS MONTH | DAY 28 FACT 28:

Communities of color are more likely to receive lower quality of care due to systemic racism and implicit biases in healthcare.

There is a large historical context that has created mistrust for the health care system among communities of color, with Black Americans in particular bearing the weight of this history. This has resulted in less participation in preventive care, a longer time from symptom development to diagnosis which leads to less effective treatment, lower rates of vaccination, and less participation in clinical trials among people of color. All of these factors contribute to the poorer health outcomes and higher rates of death due to chronic illness in communities of color. (Source Lupus Foundation of America@

💜 -guru .o.l.n.

05/26/2025

MAY IS LUPUS AWARENESS MONTH | DAY 26 FACT 26:

Although there is no cure for lupus, it can be managed with proper treatment, and people with lupus can go on to live long, happy lives. The goals of treatment are to manage current symptoms, prevent future flares, and prevent damage to joints and organs by calming the immune system. Because the symptoms of lupus vary widely, management depends on a person’s individual symptoms and needs. Seeing a doctor regularly and following the prescribed course of treatments is important. Beyond that, adopting healthy behaviors and learning skills to manage the disease can also be beneficial.

.o.l.n.
💜

10/19/2024

These last 2 weeks have been extremely successful for us with our “Managing your Lupus” series and we only hope that this continues to grow and prosper; we love meeting new Warriors and being able to discuss the trials and tribulations that come along with living with Lupus. Join us tomorrow Saturday, October 18th from 11:30-12:30 as we discuss, “Love & Lupus”; how Lupus effects that one’s you love. Log-in information on flyer, hope to see you there!!!