Conner, Charles and Cancer

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Conner, Charles and Cancer 1 week after his 20th birthday - Conner was diagnosed with DIPG. This is our journey.

Well Bub - its been 2 years since we celebrated a birthday with you.  October used to be a fun month with all of our bir...
16/10/2025

Well Bub - its been 2 years since we celebrated a birthday with you. October used to be a fun month with all of our birthdays to celebrate, costumes to create, pumpkins to carve and conference to serve at. My memories are flooded with photos of you and Archer's birthdays. It all looks different now and we are all learning to navigate life and its moments with the love and memories you blessed us with. You should be 23 today - but you are forever 21. I loved and treasure every moment of our journey with you - from the day you were born to the moment you drew your last breath - you just had a way of you that made every moment special. I would do it all again. Tonight we will celebrate with steak for dinner and game night with the boys - I've already had coffee for you and we will find some dessert - I sure miss your bumpy cookies. You are loved and missed every moment of every day.

It has been one year since we heard you laugh or seen your smile.  The pain of missing you eases but the challenge of na...
13/02/2025

It has been one year since we heard you laugh or seen your smile. The pain of missing you eases but the challenge of navigating life with your absence remains. We spent today together as a family and did some things you would have chose - we started with coffee and flowers, Hawaiian shirts, went to see the new Captain America movie and had dinner at one of your favorite places. We will wrap it all up with game night and sharing more memories. Oh how we love you and miss you - but we know you wouldn’t want us to be sad so we focus on the happy - it doesn’t stop the tears sometimes - but the pups are quick to offer comfort. I love you.

Happy Birthday Conner ♥️ Today you should be 22 but you are forever 21. You are still very present in our lives - and so...
16/10/2024

Happy Birthday Conner ♥️ Today you should be 22 but you are forever 21. You are still very present in our lives - and so many who keep your memories alive with us. Yesterday we paid a visit to the cemetery - still not used to that. Today we wear Hawaiian shirts and will have your favorite dinner - and make a batch of your no bake (bumpy) cookies. You are forever loved and missed. Thank you for all the blessings you left behind - you definitely knew what you were doing.

Happy Birthday Granny!  We are so blessed to have you ♥️ you are the best!
20/06/2024

Happy Birthday Granny! We are so blessed to have you ♥️ you are the best!

Happy Father’s Day!This year is different and there have been tears - my heart breaks for my sweet husband as we spend t...
16/06/2024

Happy Father’s Day!
This year is different and there have been tears - my heart breaks for my sweet husband as we spend this first Father’s Day missing both J’s Dad and Conner.
Family is what is important - Make the most of the time you have. Laugh hard - Love HARDER!♥️

Gossip, prejudice, mistreatment and brutal honesty.It’s been 17 weeks today, Conner I love and miss you so much! I do wa...
11/06/2024

Gossip, prejudice, mistreatment and brutal honesty.

It’s been 17 weeks today, Conner I love and miss you so much! I do want to thank you for the things you planned ahead on - your wildflowers, fruit trees, pups….ALL the things! I haven’t posted in a few weeks - partly because I have been sick and partly because a few things have really been on my mind.

Gossip is the sharing of untrue information - or opinions - for the purpose of malice. Such an act leads to prejudice of those you share it with - which leads to mistreatment of those you are speaking of. It spreads like a poisonous wildfire and the effects last for years. Some mistreatment stems from the ignorance of those who just don’t even care to have the whole story, or consider themselves (or their offspring) capable of doing such harm or being touched by disappointment. Members of the church are not impervious to the situation or condition I think it could even be called.
I volunteered at the school when the kids were little during book fair. There was a prestablished mom clique volunteering at the same time - the gang leader was horrible to me - I never went back. She went on to be employed by the school - terrifying as the thought was - I avoided her. She was a screamer, rude, mouthy to the kids - same as she has done to me in the library. Years later C was in high school and she reached out to me accusing C of bullying her son on the bus. As it turned out - her son was calling C “Phillips Screwdriver” because of his name - thinking he was playing - C called the kid “Garden Gnome” (a play on his name). This young man was very small and told his bigger friends C was picking on him - which resulted in C being placed in a headlock and lifted over the back of a bus seat - and not able to breathe. J took C to the kids house and spoke with the parents - the young man admitted to the actions - and apologized. The mistreatment eats at me because of the kind soul C was. I wonder if that young man feels any different about his actions now that C is gone?
I had a situation within the church - a young man that would go out of his way to pick on one of our kids - it happened on Sunday School, Wednesday nights, in front of J and I. Now we spoke to parents and grandparents - both of which believed that we were just picking on their child. The mom shared false information with the grandma - which lead to prejudice - the grandma is cold to us to this day. Mistreatment.

I will always fight for my children, that being said - I will also be the first to call them out when they are wrong.

Mistreatment can also happen out of selfishness. I did not visit my grandpa in hospice because I did not want to remember him that way. Mariah and I were with my grandma when she passed in the same hospice. C had home hospice and he was surrounded by friends and loved ones after he went to sleep - Pastor, J and I were here with him - he waited until we had all nodded off and passed - with the kids asleep upstairs and his pup by his side.

Learning from poor choices is an important part of life. C had friends who showed up weekly (and that last night), some who texted regularly, and one who disappeared not wanting to remember him sick. That friend has struggled with the guilt of their choice - we have talked - I was brutally honest. I pray they make a different choice in the future.

There are some friends who you think will always have your back - who freak out when your life becomes too real. This stems from them having a false reality that they are untouchable by disappointment. I was talking with a friend journey not to different from ours and she mentioned the people who ghosted them - people they felt were close friends. (Which triggered LOTS of loud feelings.) Our journey brought new friends who had our backs and were truly hands on - only a phone call away! We had friends we knew always had our rope and prayed, visited a few times and helped from a distance. My close group were always busy behind the scenes - even without me having to ask - but I didn’t necessarily see them often. These were always there.

Now what hurts my heart most - for anyone in this situation - are the ghosting friends. Friends who say call me, text me, I am happy to help….and they ghost you - don’t return calls or texts. This is pure evil. Sometimes in grieving you just don’t want to be alone, or feel alone - that might mean a cup of coffee, a shoulder to cry on, a presence so you don’t cry, just being there. Some days motivation is limited - and that presence is nice. Some days I just need quiet and want your presence. I have a “friend” who I reached out to on a particularly hard day and just didn’t want to be alone. The family doesn’t live very far away and a short visit was all I was looking for….she ghosted me. It’s been weeks….WEEKS!!! Don’t pretend. That is the worst thing you can do - if you love someone - BE THERE! SHOW UP! I am not talking about life happened and plans changed - I’m talking about failure to be present in any fashion. It’s heart breaking and sometimes hits even harder than grief itself.

I have 4 children - each with a different approach to life choices - but I have always told them to own their actions. You made a poor choice? Own your actions! Yep I did that and yep I will pay the consequences - good or bad.

Life gets real sometimes. Be present for those you love. Life isn’t just about you. When someone you have mistreated is gone - it’s too late to fix it and you are the one who has to live with the pain and consequences. When you mistreatment someone you love who is going through a non ideal situation - you may never be able to repair that relationship or hurt. Don’t be selfish.

Brutal. Honesty.
If something I said hits you - step back a take a look at your actions because it’s not me talking to you.

Like Mom always says - We Love Each Other!
Laugh hard. LOVE HARDER!♥️

It’s been 14 weeks - we celebrated Mariah at graduation, your monument was set and Granny got to visit her pup.  I can o...
27/05/2024

It’s been 14 weeks - we celebrated Mariah at graduation, your monument was set and Granny got to visit her pup. I can only imagine what you would have to say to Mariah about her new car, college and still scaring off the boys. (She has an amazing group of friends!) your headstone is beautiful - seeing our names on it is responsible pre planning - but seeing your on it is unnatural. I have some aggression towards the enemy - doubt that is likely to change. Miss you BIG Bub ♥️ … but I love you BIGGER!

It’s been 13 weeks. Mariah completed her program at CTC - graduation is Friday. Charles has a new haircut - we left his ...
20/05/2024

It’s been 13 weeks. Mariah completed her program at CTC - graduation is Friday. Charles has a new haircut - we left his goatee. Charles and Wren are big siblings - Granny has her eyes on one of the pups ♥️. We went and bought some fish for Granny’s pond - I managed to not fall IN the pond. We have acquired a guard toad - his name is Brutus. We took the tarp off of the deck - and the dogs love having the doors open! I know you would love to be in your recliner - it seems to be Mariah’s favorite place now 😘
Love you BIG Bub!

Well Bub - it’s been 12 weeks. I wasn’t sure how I was going to feel today - but it’s been pretty amazing! I still miss ...
13/05/2024

Well Bub - it’s been 12 weeks. I wasn’t sure how I was going to feel today - but it’s been pretty amazing! I still miss you, I cried through praise and worship at church service and then full on ugly cried - yes it was all your fault - but it was all the love you sent to me through others ♥️ I wasn’t prepared for all the hugs, hand squeezes, cards and gifts. Conner my sweet boy - you never cease to amaze me! We took Mariah to Kent State for a visit this week - I remembered taking you to UNOH - we decided to commemorate our visit with a plant. I promised you I would get Granny and I rose bushes - yellow for Granny but felt bad (ok hot mess!) because I count remember my color - I picked orange but have felt like I done something terribly wrong - because I couldn’t remember. As we walked through the nursery I looked down and there sat a rose bush that you placed in my path - a beautiful red and yellow flower named Ketchup and Mustard - ♥️ I heard you loud and clear - I brought it home! Mariah’s grad party was this weekend - I really tried to stay busy this week! - there were touches of you - Aunt Kathy brought cheesecake squares because you requested them at your grad party. My heart is full - thank you for the winks. Happy Mothers Day to all the Moms out there - for my friends who are missing their children - I pray you had winks too.

I love you big Conner ♥️

Last week was 11 weeks - we went fishing at Granny’s - first time without you and Papaw. We laughed at the last time we ...
07/05/2024

Last week was 11 weeks - we went fishing at Granny’s - first time without you and Papaw. We laughed at the last time we were all at the pond together - Papaw through a crabapple and accidentally hit you in the head - oh we all laughed so hard that day! I will use the term fishing lightly - Granny and AJ fished - the rest of us were really just drowning worms. Charles surprised us all and jumped in the pond - he is a pretty good swimmer. Mariah’s grad party is this weekend - you will be there amongst the fine details. Love you big Bub.

Tuesday was 10 weeks. I went to The Cure Starts Now Moms Retreat last weekend - it’s been an up and down week. Charles a...
28/04/2024

Tuesday was 10 weeks. I went to The Cure Starts Now Moms Retreat last weekend - it’s been an up and down week. Charles and Wren turned 1 this week - wish you were here to celebrate. I choose to not be a mess but some days mess happens. Your flowers are really starting to take off - I need to fill in a few patches that are a little slow starting this year. I miss your hugs. Laugh hard, love harder.

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1691 Scheying Rd

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