Lewy Body Dementia Association

Lewy Body Dementia Association The leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD). Learn more at lbda.org.
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The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), the second most common form of neurodegenerative dementia affecting approximately 1.4 million people in the United States alone. Established in 2003, LBDA’s mission is to optimize the quality of life for those affected by LBD by accelerating awareness, advancing research for early diagnosis and improved care, and providing comprehensive education and compassionate support.

Have questions about (LBD)? Find trusted answers and practical guidance on the Lewy Learning Center. Our Community Edu...
02/27/2026

Have questions about (LBD)? Find trusted answers and practical guidance on the Lewy Learning Center.

Our Community Education curriculum will provide you a deeper understanding of LBD symptoms, ways to navigate challenges and changes during the disease progression, and guidance on how to access and advocate for support resources.

Start learning for free at https://ow.ly/fqqL50YmKR0

02/26/2026

The Lewy Body Dementia Association’s 2026 Community Webinar Series: Insights, Innovations & Everyday Impact brings together cutting-edge science, compassionate care and the power of the lived-experience.

Explore the series at https://ow.ly/tHkx50YmcgA.

Sponsored by GE HealthCare.

Parkinson’s IQ + You is a free, in-person event presented by the The Michael J. Fox Foundation for Parkinson's Research,...
02/25/2026

Parkinson’s IQ + You is a free, in-person event presented by the The Michael J. Fox Foundation for Parkinson's Research, designed to empower you to manage the disease, learn about the latest research and connect with local resources.

This event features sessions on navigating Parkinson’s, managing care and learning about research participation. The accompanying Partner Expo includes information on treatment options and local resources for the Parkinson’s community.

📆 March 14 @ 10:00am PT

Register today at https://ow.ly/YKwI50YlG4r

Much was lost with the passing of Robin Williams in 2014. What the world didn’t know was that Robin and his wife, Susan ...
02/24/2026

Much was lost with the passing of Robin Williams in 2014. What the world didn’t know was that Robin and his wife, Susan Schneider Williams, were on a quest to find the cause of the changes he was experiencing. The answer came months after his death: (LBD).

In “SPARK: Robin Williams and His Battle with Lewy Body Dementia,” Susan shares an intimate look into their journey, raising awareness of the disease and reflecting on what could have been different with an early diagnosis. SPARK offers a dive into LBD, including its biology, clinical symptoms and its impact on both the person and their care partners.

🎥 Watch for free on Mediflix: https://ow.ly/w9LI50YkN1H

02/23/2026

Your health story is as unique as you are, a testament to your resilience in the face of the challenges of living with . Your firsthand experience with this disease provides invaluable insights into its complexities.

Sign up for the Lewy Trial Tracker to receive notifications about the latest clinical studies that may interest you, or for which you may qualify.

Start changing the future at https://www.lbda.org/lewy-trial-tracker

Today is – a day to recognize and thank those who dedicate themselves to caring for others. Supporting someone living ...
02/21/2026

Today is – a day to recognize and thank those who dedicate themselves to caring for others. Supporting someone living with (LBD) is not easy. The time, energy and heart you bring to caregiving truly make a difference. Thank you. 💜

If you are looking for additional support, we have gathered a few care partner-focused Community Webinars you may find helpful:

• It’s Just Different: Understanding the Unique Challenges and Needs of the LBD Care Partner
• Strategies for Modern, Meaningful
• Get REAL Compassion: Building Sustainable Skills of Compassion and Presence through Lewy Body Caregiving

Find these webinars on LBDAtv: www.youtube.com/

In “Hallucinations and Delusions: Making Sense of Psychosis in Lewy Body Dementia” on Feb. 24 at 2:00pm ET, explore psyc...
02/20/2026

In “Hallucinations and Delusions: Making Sense of Psychosis in Lewy Body Dementia” on Feb. 24 at 2:00pm ET, explore psychosis in with Dr. Greg Pontone of the University of Florida. Learn the basics of the symptom, how it differs between other forms of dementia, current treatment options, and what research is revealing to us about the future.

Register Now: https://ow.ly/rINN50YisCa

Join the fight against (LBD) with our essential styles and merch. Every purchase increases awareness of LBD, advances ...
02/18/2026

Join the fight against (LBD) with our essential styles and merch.

Every purchase increases awareness of LBD, advances research and provides comprehensive education and support services for families .

Show your support today: https://ow.ly/VJ2S50X7f4X

LBDA will be closed in observance of Presidents’ Day on Monday, February 16. We will resume normal hours on Tuesday, Feb...
02/16/2026

LBDA will be closed in observance of Presidents’ Day on Monday, February 16. We will resume normal hours on Tuesday, February 17.

Our Support Services team will be away from the Lewy Line during this time. Send us an email at support@lbda.org or leave a message at 800.539.9767.

Living with (LBD) can be challenging in many ways. While cognition and movement problems are often discussed, many peo...
02/15/2026

Living with (LBD) can be challenging in many ways. While cognition and movement problems are often discussed, many people also experience hallucinations or delusions. These symptoms are known as LBD psychosis, and they are common in both dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD).

The ILLUMERA Study is a clinical research study testing an investigational medication designed to help reduce and delusions in people with LBD, including both DLB and PDD.

Learn more about the study today, including where it is taking place and who may be eligible to volunteer: https://ow.ly/srqc50YgcoU

can feel different after a (LBD) diagnosis. While roles and relationships may change, connection can be nurtured in ...
02/14/2026

can feel different after a (LBD) diagnosis. While roles and relationships may change, connection can be nurtured in meaningful ways.

Our Lewy Learning Center course, Redefining Intimacy: Connection After Diagnosis, explores the unique challenges encountered after an LBD diagnosis and offers guidance for nurturing , easing difficult discussions, and strengthening emotional bonds in this new chapter of life.

Explore the course: https://ow.ly/C4zW50YfWWX

Sleep disorders are common in (LBD), and many are treatable. In our Community Webinar “Counting Sheep with Lewy: Copi...
02/14/2026

Sleep disorders are common in (LBD), and many are treatable.

In our Community Webinar “Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,” Dr. Bhavana Patel discusses common sleep symptoms in LBD, offering advice to help you better manage these disturbances and find the support you need to improve sleep quality with Lewy.

Watch now on LBDAtv: https://ow.ly/YITT50YfrV8

Address

912 Killian Hill Rd SW Suite 105
Lilburn, GA
30047

Telephone

+18005399767

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