Lewy Body Dementia Association

Lewy Body Dementia Association The leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD). Learn more at lbda.org.
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The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), the second most common form of neurodegenerative dementia affecting approximately 1.4 million people in the United States alone. Established in 2003, LBDA’s mission is to optimize the quality of life for those affected by LBD by accelerating awareness, advancing research for early diagnosis and improved care, and providing comprehensive education and compassionate support.

Parkinsonism, including bradykinesia (slowness of movement), hypokinesia (small, reduced amplitude movements), rigidity ...
04/12/2026

Parkinsonism, including bradykinesia (slowness of movement), hypokinesia (small, reduced amplitude movements), rigidity and tremor are common motor features of both Parkinson’s disease and

This , take a closer look at how these symptoms are managed and why a coordinated care approach with an interdisciplinary health care team is essential.

Learn more in our free course, “Unpacking Parkinsonism” on the Lewy Learning Center:
https://lewy-learning=
center.thinkific.com/courses/unpacking-parkinsonism

Whether you have been diagnosed with Parkinson’s and are experiencing unexpected cognitive changes, or you are living wi...
04/10/2026

Whether you have been diagnosed with Parkinson’s and are experiencing unexpected cognitive changes, or you are living with dementia with Lewy bodies and noticing movement symptoms, our upcoming webinar “Converging Paths: The Intersection of Lewy Body and Parkinson’s” will help you understand the shared features of these conditions—and the resources available to support you.

📆 April 28 @ 2:00pm ET

Register today: https://ow.ly/xPOU50YEXbP

The ALTER Dementia Summit, April 23-25 in Atlanta, GA, brings together researchers, health professionals, and the Africa...
04/08/2026

The ALTER Dementia Summit, April 23-25 in Atlanta, GA, brings together researchers, health professionals, and the African American community to address dementia-related concerns, strengthen support for families, and advance meaningful, sustainable change in brain health and caregiving.

Attending the conference? Be sure to add to your schedule, “Seeing the Unseen: Supporting Families within the Black Church Facing Non-Alzheimer's Dementia,” presented by Brandi Hackett, LCSW, C-ASWCM, Director of Support Services at the Lewy Body Dementia Association, and Esther Kane, MSN, RN-CDP, Director of Support and Education at The Association for Frontotemporal Degeneration.

Register and learn more: https://ow.ly/q2K550YFQ99

The Lewy Body Dementia Association is proud to be a sponsor of ALTER Dementia Summit.

Improving the lives of families facing   (LBD) is possible because of people like you. Giving monthly is one of the most...
04/08/2026

Improving the lives of families facing (LBD) is possible because of people like you.

Giving monthly is one of the most easy and effective ways to make a lasting impact. Your donation is always at work, providing support to individuals and families when they need it most, strengthening education for care partners and clinicians, and moving research toward earlier diagnosis and better treatment options.

Become a monthly supporter: lbda.org/donate

Take part in research exploring new treatment options for hallucinations and delusions in   (LBD). The ILLUMERA study wi...
04/07/2026

Take part in research exploring new treatment options for hallucinations and delusions in (LBD).

The ILLUMERA study will evaluate an investigational drug for LBD psychosis that may help reduce these symptoms and allow researchers to learn more and move us closer to better treatment options.

By participating, you can help advance research that may improve care for future generations affected by LBD.

Find study sites and eligibility requirements: https://ow.ly/HPbU50YELHI

Stronger caregiving starts with caring for yourself. This  , explore how practicing self-compassion can support you as a...
04/05/2026

Stronger caregiving starts with caring for yourself.

This , explore how practicing self-compassion can support you as a caregiver and improve the care you provide.

Watch "Get REAL Compassion: Building Sustainable Skills through Lewy Body Caregiving" on LBDAtv: https://ow.ly/8cno50YElSk

Support a great cause this spring. 🌻🧢 Featuring classic tees and hats, yard signs and more, our merch helps turn everyda...
04/03/2026

Support a great cause this spring. 🌻🧢 Featuring classic tees and hats, yard signs and more, our merch helps turn everyday items into meaningful support.

When you shop LBDA, you raise awareness for and support those living with Lewy – every purchase makes a difference. Shop now and show the world you are .

🔗: https://ow.ly/lPjH50YCZIm

Did you know   (LBD) is an umbrella term for a type of dementia associated with the presence of Lewy bodies, including d...
04/03/2026

Did you know (LBD) is an umbrella term for a type of dementia associated with the presence of Lewy bodies, including dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD)?

April is . Learn more about the intersection of Parkinson’s and LBD, and what early cognitive changes to look out for with our webinar, "Navigating the Transition: Discussing PDD with Your Healthcare Team," on LBDAtv.

Watch now: https://ow.ly/JJjF50YCC3J

Now available on LBDAtv: “Opening the Conversation: Practical Tips for Bladder and Bowel Health in LBD” featuring Erica ...
04/02/2026

Now available on LBDAtv: “Opening the Conversation: Practical Tips for Bladder and Bowel Health in LBD” featuring Erica Vitek, MOT, OTR, BCB-PMD, PRPC.

In this webinar, we explored the causes of urinary and gastrointestinal symptoms in , how to manage them with practical solutions, and resources to improve quality of life for those living with Lewy and their care partners.

Now available to watch on YouTube: https://ow.ly/2RpQ50YCBnI

Families facing   (LBD) are navigating a difficult journey – one that requires answers, guidance, and support every day....
04/02/2026

Families facing (LBD) are navigating a difficult journey – one that requires answers, guidance, and support every day.

Individuals living with Lewy, their families, care partners and healthcare professionals turn to the Lewy Body Dementia Association to deepen their understanding of the complex symptoms of LBD, access resources to improve quality of life, and find compassionate support and community when the path forward feels unclear.

Improving the lives of families facing LBD is possible because of people like you.

Giving monthly is one of the most easy and effective ways to make a lasting impact. Your donation is always at work, providing support to individuals and families when they need it most, strengthening education, and moving research toward earlier diagnosis and better treatment options.

Become a monthly supporter today: https://ow.ly/kHmc50YCgxK

During  , gain tools to improve   (LBD) patient care. The U.S. Based DIAMOND Lewy™ Management Toolkit, provides a compre...
03/30/2026

During , gain tools to improve (LBD) patient care.

The U.S. Based DIAMOND Lewy™ Management Toolkit, provides a comprehensive overview of the management of the complex symptoms of LBD — including sleep, cognition, psychiatric symptoms, autonomic features, and motor symptoms.

Download DIAMOND Lewy™ at https://ow.ly/VcAP50XcPFK

For individuals and families navigating  , dedicated physicians and researchers play a critical role in care, support an...
03/27/2026

For individuals and families navigating , dedicated physicians and researchers play a critical role in care, support and progress.

During , we recognize those working together to advance care and improve quality of life through collaboration, clinical expertise, and a shared commitment to patients and families.

Address

912 Killian Hill Rd SW Suite 105
Lilburn, GA
30047

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