Tiny Mighty Titus Devin

Tiny Mighty Titus Devin Our medically complex warrior; Titus Devin

12/08/2025
It’s 4:21 am, and my Titus is finally fully asleep in the bed.I held his little sick body for several hours before I was...
11/19/2025

It’s 4:21 am, and my Titus is finally fully asleep in the bed.

I held his little sick body for several hours before I was able to lay him down.

Please pray that we figure all of this out so soon!

Swallow studies aren’t something that Titus really enjoys. He has had to do a few of them! During his last swallow study...
11/14/2025

Swallow studies aren’t something that Titus really enjoys. He has had to do a few of them!

During his last swallow study, the speech pathologist couldn’t get him to eat or drink much at all.

He has been in feeding therapy for almost 2 years now.

I am so so proud of him for taking a few sips and eating a few bites of things that he doesn’t typically like.

He did show some pe*******on while eating and drinking.

We are still continuing thickened liquids

Titus has also been having more joint pain than usual and using his wagon more often.

A week later…and we are sick again. This is his temperature after Motrin.He is absolutely miserable, and I don’t know ho...
11/08/2025

A week later…and we are sick again. This is his temperature after Motrin.

He is absolutely miserable, and I don’t know how else to help him.

I want to scream and cry. He’s in so much pain…and I just want to take it all away from him.


Titus’ little glow up from 2023-2025 My little rare disease warrior 💚We’ve learned so much about his little body in the ...
11/02/2025

Titus’ little glow up from 2023-2025

My little rare disease warrior 💚

We’ve learned so much about his little body in the last two years!

11/01/2025

Thank you all so so much for the prayer and messages!

Titus is back home and quarantined. He honestly is such a trooper. He bounces back so fast..even with an infection and a collapse of air in the upper part of the left lower lung (atelectasis)

Unfortunately, being sick has been his life

For now, we are snuggled up on the couch watching The Little Mermaid..with a Hot Wheel in each hand 🚗 🚙

He’s been up and playing some today with spurts of energy here and there. ❤️

After zofran, respiratory therapy, pain meds, and a dose of antibiotics, he is feeling better and more alert! Praise God!

The scary part is the unknown. These episodes are happening more and more frequently.

We go back to Baptist Wednesday and to see a specialist at Children’s Hospital Friday.

11/01/2025

When I’m afraid of another diagnosis, let peace reach me before panic does. When the what-ifs start to spiral and my mind fills with worst-case scenarios, please meet me there—with calm, not fear. I don’t need all the answers right now; I just need to feel Your presence before my thoughts race too far ahead. Wrap me in the kind of peace that doesn’t wait for good news, but comes simply because You are near.

You know the fear that grips my chest, the memories that echo every time I hear the word test, result, or doctor. You know the way my heart tenses before I even hear what’s next. Please, God, help me not to live in dread of the unknown. Teach me to remember that no matter what I’m told, no matter what comes, You’ll face it with me. You’ve never once let me walk through pain alone, and You won’t start now.

Please slow my heartbeat when the waiting feels unbearable. Still my thoughts when they start to drift toward fear. Help me take this one breath at a time, one moment at a time, trusting that You already know what I don’t. When I can’t stop imagining the worst, remind me that imagining You—faithful, constant, loving—is far more powerful than imagining the fear.

God, when I’m tempted to let anxiety write the story, remind me that You are the Author. You hold the beginning, the middle, and the end—and nothing surprises You. You’ve seen every outcome, every path, every possibility, and still You whisper, “Peace. Be still.” Help me to believe those words, not just hear them.

If the news is heavy, give me courage to carry it. If it’s uncertain, give me grace to wait without despair. And if it’s good, let gratitude flood every corner of my being. But in all of it—before, during, and after—let Your peace go first.

Please, God, let Your peace come quickly—like a steady hand over my trembling heart, like a deep breath that reaches all the way into the worry, like sunlight breaking through the clouds of my mind. Remind me that even when fear rushes in, it can’t stay where Your presence dwells.

And if I forget—if I panic anyway—still meet me there. Meet me in the tears, in the pacing, in the desperate prayers. Let Your comfort find me even in the chaos, reminding me that peace isn’t the absence of fear, it’s the assurance that You are greater than it.

So, dear God, when I’m afraid of another diagnosis, let peace reach me before panic does. Let Your calm rise faster than my fear. Let Your voice speak louder than my anxious thoughts. And no matter what I hear, let my first and last thought be this: You are here, and that’s enough.

Amen.

Titus is up and on room air. 💚I’m so thankful. A few hours ago, I wasn’t sure what the future held. He isn’t wanting to ...
10/31/2025

Titus is up and on room air. 💚

I’m so thankful. A few hours ago, I wasn’t sure what the future held.

He isn’t wanting to eat, drink, walk, or do much YET…but him being awake and on room air now…is nothing less than a miracle.

He had a catheter placed, pain meds, and strong antibiotics through his IV.

His labs came back and we know that he has bilirubin in his urine, a partial collapse of his left lobe, pneumonia, and an infection of the blood.

That’s what we know right now.

He was very lethargic when we were first admitted. His doctors were beyond surprised when they came in to him awake and moving to room air

10/31/2025

Look who is up and on room air 💚

10/31/2025

I’ll come back for a real update later. Titus has been transported to Children’s from Searcy. He is on oxygen and IV

Titus has been so strong his entire little life. This is the first time in his life that I’ve seen him not have the strength to keep going.

He’s so tired yal. Please pray for the strength for my baby

10/31/2025

I’m asking all of our prayer warriors to please pray for my baby.

He is not urinating, eating, and his walking has become weak. He has been very sick since the beginning of September, and just able to get out for short periods of time before becoming fatigued or needing to recharge with more sleep than usual.

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