Idaho Fibromyalgia & Chronic Pain Network

01/06/2018

KLAS in Nevada is telling the other side of the "opioid crisis" -- the chronic pain crisis. While nightly newscasts across the country are filled with stories about the opioid epidemic, millions of Americans find their suffering increased by government agencies that are stepping up to put limits on legal, and helpful, medications. For the millions of chronic pain patients, the crackdown has been a nightmare. They are the forgotten victims in the opioid debate.

Approximately 50,000 people a year die with opioids of one kind or another in their systems -- legal or illegal. The number you don't hear is this one -- there are as many as 25 million Americans who suffer with chronic pain. For many of them, opioid medication means the difference between leading somewhat normal lives, or surviving in constant agony.

These are not the people who O.D. on he**in or mix drugs with booze. For the most part, they suffer and die in silence.

https://www.youtube.com/watch?v=72Y8YB6OY_U&feature=youtu.be

LAS VEGAS - Nightly newscasts across the country are filled with stories about the opioid epidemic -- the opioid crisis. Tens of thousands of Americans who d...

03/08/2017

The government and media are pushing skewed statistics and fake news in the "War on Opioids." We aren't saying we don't have a problem in this country, but the current course is solving nothing and creating more problems. We need to push the truth, so we can solve this.

https://www.painnewsnetwork.org/stories/2017/2/16/an-epidemic-of-fake-opioid-news

By Roger Chriss, Guest Columnist The New England Journal of Medicine recently published a study called “Opioid-Prescribing Patterns of Emergency Physicians and Risk of Long-Term Use.” It looked retrospectively at Medicare patients and found that some emergency room physicians prescribed up

11/19/2016

We are stronger together and raised our voices in unison during the NFMCPA campaign this summer. Stories of living with chronic pain flooded social media and led to more than 10,000 signatures on our petition to the White House to implement the National Pain Strategy. While the petition didn’t receive enough support to be addressed by the White House, we cannot thank you enough for the visibility you gave chronic pain or the courage you showed in sharing your story. Learn more at http://yourvoicematters.info/

National Fibromyalgia & Chronic Pain Association invites people affected by pain to share their stories about daily living experiences. The stories illustrate the challenges and unintended consequences from policy changes affecting access to pain relief medications and treatments.

08/22/2016

What if your body could learn to forget your pain? See what's happening in the world of pain research.

http://www.pbs.org/wgbh/nova/next/body/chronic-pain/

To the nervous system, memories and chronic pain are strikingly similar. Can we use the same neurochemical technique to erase them both?

08/04/2016

Have you signed the White House petition to implement and fund the National Pain Strategy? It will not only help those who live with pain, but it will help those who fight addiction as well. In fact, it has the potential to do more to combat addiction and abuse than the government's current war on opioids.

Please sign today!

Do you want increased insurance coverage for individualized pain care? Support the implementation of the by signing the White House petition. bit.ly/whp-nps

08/02/2016

Less than 2 weeks left to sign for . Together, not alone, we speak for pain. Have your voice heard! bit.ly/whp-nps

07/13/2016

Family and Friends -- The Consumer Pain Advocacy Task Force and the National Fibromyalgia & Chronic Pain Association's White House petition is live. The National Pain Strategy not only helps those who live with chronic pain, but it also has the potential to do more to combat drug addiction and abuse than the current war on opioids. This petition is to urge our government to move forward with the National Pain Strategy.

Please sign this petition, share it, and urge others to sign it as well. We need 100,000 signatures, and we can do it if YOU SIGN NOW!

Note: The signing process is two steps. First you sign, and then you respond by clicking a link in a generated e-mail. Please be sure to remember to check that e-mail.

PLEASE sign this petition! It will help millions, probably even someone you love. Thank you!

bit.ly/whp-nps

Costing $635 billion annually, 100 million Americans and 80% of veterans returning from Iraq and Afghanistan (and 50% of all veterans) suffer from chronic pain. Current research, education and treatment efforts are inadequate to address this epidemic, which often leads to su***de. In response, the D...

07/11/2016

The White House Petition launch is almost here! Help us urge the White House to call on Congress and Department of Health and Human Services to implement and fund the National Pain Strategy, which will advance discovery research, education, and access to pain care. Join the Thunderclap TODAY at bit.ly/whp-thunderclap to announce the July 13 petition launch on your profile so we can get 100,000 signatures! https://youtu.be/xg_jG61lsB8

bit.ly/whp-thunderclap We need the National Pain Strategy. Now. The NPS will advance discovery research, education, and access to pain care. Urge the White H...

07/01/2016

It's Day 9 of the Blitz. Arts and crafts can be terrific diversions from pain, so let's turn your craftiness into advocacy. Knit, crochet, or cross stitch a piece; create a t-shirt; draw or paint a picture; or color this great image. Whatever you do, take a picture of it and post it to your social media accounts. Just be sure to include in your post. Let's see your Art for Advocacy!

http://yourvoicematters.info/images/campaigns/ISpeakForPain/ISpeakForPain-Coloring-Page.jpg

06/30/2016

It is day 8 of the Blitz! Today, we are asking for you to share your story with policymakers. Just visit http://yourvoicematters.info/submit-your-story. You can make it as detailed as you want. Anything is something! They need to hear from you, and this is your chance!

Terms and conditions for submitting your personal story to be used by the National Fibromyalgia & Chronic Pain Association to inform policy makers about the concerns and challenges of people with chronic pain conditions.

06/29/2016

It's Day 7 of the Blitz, and it is another chance for you to share your photo! Our portfolio is growing, and we would love for you to have a spot in it. Also, take a second to change your profile picture or cover photo to show your support. Your voice truly matters and is the only way a difference will be made. Visit yourvoicematters.info for more information.

06/28/2016

It's Day 6 of the Blitz! Today, make a short video about why you speak for pain, and share it on your social media -- Facebook, Twitter, Instagram, and YouTube. The goal is to raise awareness about chronic pain. Then visit yourvoicematters.info/ispeakforpain-blitz for more information on how to get involved.

National Fibromyalgia & Chronic Pain Association invites people affected by pain to share their stories about daily living experiences. The stories illustrate the challenges and unintended consequences from policy changes affecting access to pain relief medications and treatments.

06/27/2016

It's Day 5 of the Blitz, and it's Twitter Day! Head over to Twitter and follow us , and we'll follow you in return. Then get ready for the July 13th Twitter Flare and launch of the White House Petition! Don't have a Twitter? Make one! It's easy, but you can always just keep the posts coming on Facebook.

06/26/2016

Have you written to your members of Congress yet about the National Pain Strategy? Over 1,000 people have, but we need that to keep rising! It only takes 5 minutes and will make a huge difference. Ask all of your family and friends to write as well.


http://bit.ly/299dT9e

National Fibromyalgia & Chronic Pain Association invites people affected by pain to share their stories about daily living experiences. The stories illustrate the challenges and unintended consequences from policy changes affecting access to pain relief medications and treatments.

06/25/2016

It's Day 3 of the 10-Day Blitz, and it's time for you to speak out! Share your photo. It's quick, easy, and will make a difference. Make sure to use the hashtag in your post and challenge others to do the same. Your voice matters! It is not one face that matters, but the 100 million who suffer from chronic pain everyday. Share your photo today!

06/24/2016

It's Day 2 of the Blitz, and today we're asking what do you know about the National Pain Strategy?

The NPS could potentially do more in the battle against addiction and abuse than the current war on opioids, so why isn't it being implemented and funded?

You can find the entire NPS document athttps://iprcc.nih.gov/docs/DraftHHSNationalPainStrategy.pdf

06/22/2016

We couldn't be more excited for Day #1 of the blitz! In just 6 minutes, you can learn how your voice matters in policy matters, like implementing the National Pain Strategy, and sign up to receive e-alerts about upcoming calls to action. Let's start the patient revolution to create a better future for ourselves! Check out today's activities and a schedule of events here: http://yourvoicematters.info/ispeakforpain-blitz

06/22/2016

It's the 10-Day Blitz!

Jan Chambers, President of the National Fibromyalgia & Chronic Pain Association, talks about the 10-Day Blitz, which begins June 22. Simple and free awareness activities you can do will be posted daily. Share them across social media so we can flood the world with the voices of chronic pain patients.

Get the details from Jan, and then share this message, as well as each of the upcoming activities, with your family and friends.

Join us as we all say !

https://www.youtube.com/watch?v=Xjhny_3Dd-A

Join National Fibromyalgia & Chronic Pain Association President Jan Chambers in the 10 Day Blitz beginning June 22. Simple and free awareness ...

06/16/2016

We've made it even easier for you to say .

Send a letter to your Senator or Representative asking that they support the National Pain Strategy by simply filling out one of the two forms. We'll locate your correct Senator or Representative for you and send your letter on it's way.

It is URGENT that you send your letter NOW if you have not already done so!! This is the ONLY way we can get research, more options, etc.

(1) Sign the letters to your Senators and Representatives here:

(A) http://yourvoicematters.info/nps-congressional-support-letters/us-house-nps-constituent-ltr; and

(B) http://yourvoicematters.info/nps-congressional-support-letters/us-senate-nps-constituent-ltr

(2) tell your story by 6/17 here: http://yourvoicematters.info/submit-your-story.

National Fibromyalgia & Chronic Pain Association invites people affected by pain to share their stories about daily living experiences. The stories illustrate the challenges and unintended consequences from policy changes affecting access to pain relief medications and treatments.

04/27/2016

Have you checked this out?

04/20/2016

In case you missed it!

02/18/2016

Support my question!

12/02/2015

Celebrate by donating to the National Fibromyalgia and Chronic Pain Association. Fibromyalgia and chronic pain are far behind other causes in raising funds to support research, education and advocacy. Here is your chance to make a personal difference in the lives of those with fibromyalgia and chronic pain.

http://www.fibroandpain.org/index.php/givingtuesday

is the “Black Friday” or “Cyber Monday” for nonprofits. On the first Tuesday after Thanksgiving people world-wide can show their generosity and donate to their favorite cause. is more than just another nonprofit fundraising day – it is a call to action; a movement to he…

10/16/2015

How does a college student live with an invisible disability? Figuring out how to level the playing field isn't easy. Discover what it's like.

'You have less credibility when your disability isn’t visible. People doubt you, or just think you’re trying to get out of work.'

10/05/2015

Who are the expert speakers for the Treating & Preventing Chronic Pain Conference? What are their topics? You won't want to miss the 2 days of Live Stream for conference and to ask them your questions. Please click on image below for full information. Intro price includes playback link for you to see again and again. $35 thru Oct 5th.

Who are the expert speakers at the TAP Conference? Watch 2-day Live Stream and ask them your questions. Sponsor: National Fibromyalgia & Chronic Pain Association. Intro price includes playback link to see again later. $35 thru Oct 5th.

05/15/2015

Act Now to Support First National Strategic Plan for Pain! This is crucial for people with pain We are at a crucial time in history for people with pain. The very first national strategic plan to advance pain research, education and treatment—The National Pain Strategy (NPS)—has been released for pu…

04/26/2015

More pressure is being brought upon the FDA to suppress our access to prescription opioids, this time by the U.S. Senate.

http://nationalpainreport.com/us-senate-bill-will-pressure-fda-on-opioid-approvals-8825956.html

While chronic pain patients continue to worry about what they believe is a decreasing access to certain narcotic pain medications, two U.S. Senators are introducing a bill that would make it more d...