CHARLES E. HOLMAN FOUNDATION

09/08/2025

09/08/2025

Different strains are found in different parts of the country.

https://igenex.com/webinars/

09/08/2025

Latest update on the Morgellons Lived Experience book project.

📚✨ Research Project Update!

Hi everyone! I wanted to share some exciting news and keep you in the loop about where our work is heading.

I’ve started working with Routledge Press (part of Taylor & Francis), a highly respected academic publisher. If you’d like to check them out, here’s their site: 👉 www.routledge.com

The process of publishing a book usually takes several steps — starting with a one-page proposal, then a full proposal, followed by review from academic authors, and eventually, if all goes well, a book contract. From there it’s drafting, revising, and more review until the manuscript is finalized and published.

The exciting part? 🎉 Our one-page proposal was accepted right away (in less than 24 hours!) and the full proposal only needed minor edits before being sent out for peer review. That’s a really good sign the publisher is interested! Right now, the proposal is in review, which usually takes about six weeks.

In the meantime, I’m already starting to draft chapters. ✍️ Once I know more — especially if we move forward with a contract — I’ll share updates, including the Table of Contents and more details about what’s inside.

Thank you all again for your support and for sharing your stories. None of this would be possible without you! 💙

09/08/2025

Many of you participated in this project by doing an interview about Morgellons and how it affects your daily life. On behalf of the CEHMDF, I want to thank everyone who participated. We also wish to thank Professor Chris Daley and her team at Lehigh university for their interest in Morgellons as a contested illness. We hope this book will illuminate what we all experience with the dismissal and denial from the medical community and even our families who don’t understand the illness and often dismiss the suffering associated with it. Check out the page Morgellons Lived Experience Project and follow along with the progress being made on this important publication.

A heartfelt THANK YOU to everyone who participated in our project! We’ve officially completed interviews with over 70 participants, including patients, family members, medical providers, and researchers. Your willingness to share your stories has been incredibly powerful and deeply moving—we’re honored to be part of this journey with you.

💬 Every interview was raw, real, and humbling. We know how much you carry every day, and we’re committed to making this research matter.

📚 What’s next? We’re currently analyzing the interview transcripts and are aiming to have a draft of the book completed by the end of the year. It’s an ambitious timeline, but one we’re excited about. We're also exploring future possibilities like:

Provider education & CME resources

An online map of disease distribution

And maybe even more books...

Stay tuned for updates here on our page. If you’d like to reach out in the meantime, you can contact us at researchmorgellons@gmail.com.

Thank you again—for your stories, your trust, and your patience. We’re so grateful to walk this path with you. 💙

09/06/2025

09/05/2025

A severe case of Lyme disease gastroparesis ignored persistent infection—highlighting bias in chronic Lyme care.

09/05/2025

By Jana Steck I am a Lyme warrior, five years into remission, with a calling to help others still in the midst of their battle to feel a little less

09/05/2025

GET READY FOR FIERCE FASHION FIGHTING LYME AT NEW YORK FASHION WEEK

LymeLight Foundation is 501(c)(3) non-profit dedicated to providing treatment grants to children and young adults struggling with Lyme disease who can’t afford care. LymeLight Foundation has awarded grants totaling $11 million to over 1,500 individuals in ALL 50 states. As a result, children and young adults are thriving – going back to school and their jobs, and reengaging in their lives and communities!

We are excited and honored to partner with Global Lyme Alliance and Project Lyme for PROJECT LAB COAT debuting during New York Fashion Week on September 13th. Special thanks to Christina Kovacs and Runway 7 for sparking change and featuring Lyme disease at this unique runway show.

This event is a huge win for the Lyme community and for all Lyme organizations. For all of us who have suffered with Lyme, WE are being seen, WE are being heard, and WE are on the RUNWAY!

Join us in person, stream virtually from anywhere, and donate to support three incredible organizations at once — whether it’s $5 or $500, every single dollar counts in the fight against Lyme!

🎟 Tickets & donations: www.projectlabcoat.com

100% of donations and ticket proceeds will fund research, education, and patient support programs.

Project Lyme Global Lyme Alliance LymeLight Foundation Runway 7 Fashion .labcoat

09/04/2025

ACTION ALERT: Support 5 tick-borne disease bills in Congress. Your voice matters! https://www.lymedisease.org/support-5-house-bills/

09/01/2025

Health coach and wellness advocate Erika Schlick shares her long journey with Lyme disease, a tick-borne illness that can lead to debilitating symptoms. The 44-year-old's symptoms persisted for two years before she was officially diagnosed with Lyme

08/29/2025

Ticktective Podcast Transcript In this episode of Ticktective™, host Dana Parish interviews Joe Burrascano, MD. Dr. Burrascano is a pioneer in the field of Lyme disease, having treated patients since the early days of the illness in the 1980s and 1990s. He co-founded the International Lyme and Ass...

08/29/2025

This article highlights UCSF’s doctorate program for nurses. The last example in the article is about our very own Melissa Fesler, DNP who valued the program’s instruction on making change in policies and guidelines. She developed diagnostic criteria for Morgellons! Melissa has spoken at many of our past conferences on Morgellons. Read more here….

Meet three members in the first class of the School of Nursing's BSN to DNP program cohort, all from very different backgrounds, who share why they are pursuing a DNP and what they hope to accomplish with this advanced degree.