Pediatric Epilepsy Surgery Alliance

04/24/2026

You don't have to navigate this alone. There is a community of thousands of families who have walked this road. And this July, we're gathering again to learn and celebrate how far our kids have come.

Share this post with a family who needs to find their people!

📅 July 17–18, 2026 | 📍 Kalahari Resort, Round Rock, TX

🔗 bit.ly/PESA2026

04/22/2026

If you've attended one of our family conferences, what was the most valuable part?

A) Learning from medical experts
B) Connecting with other families
C) Kids' activities and childcare
D) The family reunion atmosphere

Tell us in the comments and be sure to tag a parent who needs to be at this year's conference! July 17–18 | Kalahari Resort, Round Rock, TX.

Learn more at 🔗 bit.ly/PESA2026

04/21/2026

What's the story behind one of our most popular community photos? Meet Samantha, who gives back by serving as one of our volunteer parent support navigators.

If you want to talk to a parent who's been there, just click on the link below to get started. Our parent support navigators speak multiple languages and are ready to help.

🔗 https://ow.ly/7KXC50YMQCt

04/20/2026

The 2026 Pediatric Epilepsy Surgery Conference + Family Reunion is happening July 17–18 at Kalahari Resort & Convention Center in Round Rock, TX!

Whether your child has already had epilepsy surgery or you're still exploring the path, this family-centered event is FOR YOU.

✅ Learn from world-leading neuro-professionals
✅ Connect with hundreds of families who truly 'get it'
✅ Professional childcare available
✅ Kalahari Resort - America's largest indoor waterpark!

SHARE with any family who needs to find their people. 💜
Early bird ticket sales end April 30th.
Registration link: bit.ly/PESA2026

04/16/2026

Navigating "Developmental and Epileptic Encephalopathies" (DEEs) (like Lennox-Gastaut syndrome, infantile spasms, or DEE-SWAS) can be difficult without a roadmap. We're proud to share that Dr. Charuta Joshi is joining our conference to dive deep into complex epilepsy care for parents of children with DEEs.

Her session will explore how medication choices impact more than just seizure frequency, when it's time to consider surgery, and how to balancing risks, benefits, and the long-term goals that matter most to you.

🎟️ Early bird ticket salesfor our family conference end April 30th!
🔗 bit.ly/PESA2026

04/14/2026

If Rachel's story is familiar to you, it's because so many of our children have traveled an incredibly challenging road. You don’t have to face the challenges of your child’s epilepsy surgery journey alone. Connect with a Parent Support Navigator who truly understands. They've been there and can walk beside you with guidance and hope.

Get started: 🔗 https://ow.ly/YKOG50YIj1B

04/10/2026

Happy National Siblings Day! If you're raising a child with hard-to-control epilepsy, your focus is on their treatment. But many parents tell us they secretly worry about how all of this is impacting their other kids. Our sibling resources pages gives you the tools you need to navigate all that goes with sibling experience in our community.

And we're resharing a wonderful essay from James DiBitetto. He writes about growing up with his brother, Gavin, through multiple brain surgeries. He shares how he watched his brother lose the ability to play basketball, but found a way to connect through video games. His story shares what is so often left unsaid.

🔗 https://ow.ly/7GTQ50YH38T

04/09/2026

There is a community of thousands of families who have walked this road. This July, we're gathering again - to learn, to heal, and to celebrate how far our kids have come.

Our family conference is for anyone navigating the pediatric epilepsy surgery journey.

July 17 - 18, Kalahari Resort, Round Rock, TX.

Share this post with a family who needs to find their people.

🔗 bit.ly/PESA2026

04/07/2026

Many children in our community face a very challenging road. Sometimes multiple brain surgeries don't take away the seizures altogether. But reducing the seizure burden can often be enough to greatly improve a child's quality of life.

Meet Sutton, who's now thriving even though she's not 100% seizure-free.

Drop a heart in the comments for this sweet, brave girl!

04/06/2026

What do parents and caregivers say about our family conference? Here are just a few quotes submitted over the years.

🎟️ Early bird ticket sales end Aprli 30th. Don't miss out on the best opportunity to learn from experts, participate in research, and surround yourself with a community that gets it.

🔗 bit.ly/PESA2026

04/03/2026

Has your child had epilepsy surgery? Your experience could be the light another parent is searching for. Sharing your journey, whether through a short video or a written reflection, helps families feel less alone and gives them courage to take the next step.

Share your story Together we can create a community of courage Every family’s epilepsy surgery journey is unique, and your voice can bring hope, encouragement, and guidance to others walking the same path. By sharing your experience, you help raise awareness, support other parents,