Meningioma Companion

Meningioma Companion Meningioma Companion is a public group to share brain tumor stories, seek information, post pics, & educate.

This is a peer to peer support platform, also known as Brain Tumor Companion, a 501c3 non profit organization. If you seek something more personal than social discussion boards, please schedule a real human call. This journey can be challenging & Meningioma Companion can help ease your worry. Together we manage the tears and the fears all while celebrating our successes along the way!

Let’s talk about RADIATION!
08/29/2025

Let’s talk about RADIATION!

59 likes, 9 comments. “Today I want to talk about radiation. Share this post, tag a friend, or visit braintumorcompanion.com to learn more, get involved, or find support. Together, we are stronger. 🩶 Click here for Terri’s interview https://m.youtube.com/watch?v=_07I6HY5ABw To order your BTCo...

Proud of our Brain Tumor Companion Brenda for always working to find eating, exercise, and life habits that will benefit...
08/16/2025

Proud of our Brain Tumor Companion Brenda for always working to find eating, exercise, and life habits that will benefit her on this brain tumor journey. Knowing her for over 5 years now, an attendee of 184 of my Brain Tumor Zoom Support Group Sessions, and someone who has truly tested all the diets, she is a wealth of knowledge and a reminder that where there is a will there is a way. She is the poster child for never giving up on your fight for wellness. Thank you Brenda, our BTC Board Secretary, for always sharing your story.

Make note, what works for one person may not work for someone else. It is known that drastic diet changes can shock your body, come with challenges and risks. I personally have tried a variety of things and thrive most on all foods in moderation, but the message in all of this is stay motivated and diligent to find what works for you. We all deserve to feel our best!

Brenda talks about her journey on the carnivore diet.✅ Watch this video next 👉 https://youtu.be/LZmK5otR4uY✅ Please support me here 👉 https://youtube.com/@...

If this article is accurate, Grade 3 Meningiomas are now fast tracked for social security disability. I guess we can be ...
08/14/2025

If this article is accurate, Grade 3 Meningiomas are now fast tracked for social security disability. I guess we can be happy that this is a start to prioritizing meningiomas.

Thirteen serious illnesses have been added to the Social Security Administration’s list of conditions that clears the way for faster approval of disability benefits.

😭🤕😴
08/10/2025

😭🤕😴

They said the word — tumor — like dropping a stone in a still pond. No echo. Just ripples that never end. I smiled at first, as if politeness could soften the shock, as if bravery could cancel biology. But inside, a scream curled up and never quite uncoiled. The nights became long corridors with...

08/07/2025

Half a Tank, Still Fighting

They said the word — tumor —
like dropping a stone in a still pond.
No echo. Just ripples that never end.
I smiled at first,
as if politeness could soften the shock,
as if bravery could cancel biology.
But inside, a scream curled up
and never quite uncoiled.
The nights became long corridors without doors.
Google searches like scavenger hunts
that never find treasure, only dead ends and panic.
Doctors in white coats speak in tongues,
stats and scans like riddles,
and I’m left to translate it all
on a heart already breaking.
The world went quiet.
Not in peace, but in absence.
Friends and family faded like fog.
Support was something I read about
in pamphlets I never asked for.
Why would anyone ever get it?
I don’t get it.
A forever pain and worry I can’t explain,
it's just loneliness and fear.
They say, “You’re so strong,”
but what they don’t see
is me crying into my own shoulder,
because my wound is invisible.
Me fighting with insurance
while my brain fights for balance.
I live every day now on half a tank.
Good days are rare, like birds in winter.
One moment I’m laughing at breakfast,
the next I’m weeping at my doctor’s office
because they canceled my appointment with no warning.
The roller coaster doesn’t ask
if I’m ready for the next drop.
It just drops.
And I scream.
I survive.
And then it starts again.
But yes, I am alive.
I woke up today, again.
And for that, I say thank you
with tired eyes
and a heart that’s still learning
how to hold both grief and grace
in the same breath.
I survive most days with trembling hands that nobody sees.
I endure it all with a smile no one knows is stitched on.
This is life now. My every day.
It’s not perfect. It’s not fair.
But it’s real.
I am still here.
And while I am here and able,
I will spread brain tumor awareness
until my last breath
for all who will join the club nobody wants to be in.
Author -Angel

All the things they DID NOT TELL me on this brain tumor journey. Do better medical system. Please!!! 🙏🏼
08/06/2025

All the things they DID NOT TELL me on this brain tumor journey. Do better medical system. Please!!! 🙏🏼

69 likes, 6 comments. “Let’s talk about the things they did not tell me on this journey! Share this post, tag a friend, or visit braintumorcompanion.com to learn more, get involved, or find support. Together, we are stronger. 🤍 To order your BTCompanion awareness merch click here: https://www...

Taking about the importance of multiple medical opinions. Listen now!
08/02/2025

Taking about the importance of multiple medical opinions. Listen now!

41 likes, 4 comments. “Why I think getting multiple opinions is important. Share this post, tag a friend, or visit braintumorcompanion.com to learn more, get involved, or find support. Together, we are stronger. 🤍 To order your BTCompanion awareness merch click here: https://www.braintumorcompa...

Fatigue that simply never goes away. 😭😩🤕🧠🩶 On a scale of 1-10 w/ 1 being not tired at all & 10 being the most tired ever...
08/01/2025

Fatigue that simply never goes away. 😭😩🤕🧠🩶 On a scale of 1-10 w/ 1 being not tired at all & 10 being the most tired ever, how TIRED are you when you WAKE up & start your day? Post craniotomy, almost 7 years later, I personally wake up with a half tank of gas every day. So I’m starting at a 4-5 daily. Waking up feeling rested in the AMs or even through the day has never retuned post my craniotomy and no amount of caffeine or rest has been able to revive my energy. This was not something I expected and nobody on my medical team warned me about it! 😩 Share you thoughts!

Follow me on TikTok. Dropping videos often to help everyone on this brain tumor journey! This video covers the topic of ...
07/25/2025

Follow me on TikTok. Dropping videos often to help everyone on this brain tumor journey! This video covers the topic of bein DISMISSED!!!

Check out Brain Tumor Companion’s video.

07/24/2025

A question from someone in our community: How many of you are educators who returned to the classroom after surgery? If so, how long did you wait before returning?

If there are any teachers out there please let us know what your path back to work looked like. 🩶🧠🙌🏽

Address

Los Angeles, CA

Telephone

+14242399366

Website

http://braintumorcompanion.com/

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