02/24/2024
One of the things I can’t wait to see this year is a lifetime change for me. After my whole life of dealing with seizures, surgeries, emergency surgeries, hospitalizations, lab work, going into comas, tons of testing, & other, I cannot wait to see me free of seizures this year. I have been blessed sense this last surgery to not have any major seizures. The last 3 years have been very uplifting because my drs and nurses have always been so thoughtful and supportive. I am here today after 9 brain surgeries with 3 parts of my brain gone, an implant, and happy to say the infections I have are stable. I can’t thank everyone enough who has also been supportive of me as well I couldn’t had gotten through these operations without your thoughtfulness and support. Ever sense I was 14 months old these seizures have been the most stressful thing I have had to deal with because no one really understands how to deal with them or how to support you. People will accuse you of being on drugs which is the most saddest thing ever. I have been so particular who had came in my life and helped me because people now days don’t know how to react towards someone having a seizure. People have said I am crazy for letting them cut my brain open so many times but until you have had no choice but to let them do that because your seizures are so out of hand you will never get it. I was at a point in my life were I had no choice but to let them open my brain and remove 3 parts because medications were not controlling my seizures and I was at a serious risk to my self and others. I can’t wait to start being a patient advocate for them and start talking to patients about what I been through because it hasn’t been as bad as people think it to be. I am thankful for my neurologist who has always been the one to encourage me when I was ready to give up no matter what the moment was about. Thankful for my surgeon who always made sure I laughed and who always had his best interest in me. Thankful for my infectious disease dr who is so helpful and thoughtful no matter what the situation is and always willing to listen and I am thankful for her nurse because she’s fun to pick around with and play phone tag with. They have been my circle to make sure I was taken care of no matter what and always dependable. I was in the hospital crying and wanting to come home my neurologist heard me I had been in the hospital a week for my surgery she came in and hugged me and gave me the sweetest advice. I will never forget that. Every time I went to the Dr or into pre op I was scared and stressed because I didn’t know what was going to be said or happen. But they all made sure I came out of that room either smiling or laughing. That is why trust them to do this to me because they are a wonderful support when you need them to be. But this journey my whole life has been scary, tough, hard you name it. In the end it would always turn out fun in some way which I can’t be more grateful for. I can’t wait to be there to support others and guide others through the same journey I have been through and show them it can turn out as wonderful as mine has. Thanks to my team!! 🥰😄
