10/15/2025
Like many toddlers, Abraham loves kicking balls, playing with cars and trains, and building towers for the sheer delight of knocking them down. But unlike most toddlers, Abraham was born with a rare life-threatening heart defect called Taussig-Bing anomaly.
At just four days old, Abraham underwent a long, complex surgery to repair the abnormal “plumbing” of his heart. Too much blood was flowing to his lungs and too little blood was going to the rest of his body. The situation puts stress on the heart, and a baby cannot survive for long without surgery to correct the problem.
Fortunately, Abraham's surgery went better than expected, according to UW Health Kids heart surgeon, Dr. Petros Anagnostopoulos. Even so, infants who’ve had open heart surgery are at higher risk of delays with their physical, mental and social development.
Part of what makes the UW Health Kids Heart Program excel is its attention to every detail. Staff not only stay on top of everything but also make families like Abraham’s aware of the resources available to monitor and support their child’s development. Dr. Jesse Boyett Anderson, a UW Health Kids cardiologist, has a special interest in this topic and works closely with her colleagues to ensure that all patient families are aware of risk factors.
Many of these infants are seen at the UW Health Kids Brain Care Clinic for what is called a neurodevelopmental evaluation. If signs of a delay are found, the clinic refers the family to services such as occupational therapy, physical therapy or speech therapy.
Fortunately, Abraham has not shown signs of neurodevelopmental delays, but doctors and nurses have advised his parents — Sarah and Lee — to read to their son regularly and be sure he gets plenty of “tummy time,” which helps strengthen his neck, shoulder and core muscles. He also will return to the Brain Care Clinic for future evaluations.
“These babies may show no signs of significant delays, which is what we always hope for,” says clinic coordinator, Lynne Sears, NP. “But even if something is found, outcomes are better when they’re discovered early, so having this service is incredibly reassuring to parents.”