Addy's Fight With Leukemia

Addy's Fight With Leukemia On July 3rd 2024, Addy was diagnosed with B-Cell Acute Lymphoblastic Leukemia or ALL .

This page has been created for her prayer warriors to stay updated on her fight!
https://www.gofundme.com/f/hope-and-healing-for-addys-transplant-journey

This girl right here!! She’s been absolutely miserable all day. Something is making her very itchy! She’s scratching so ...
04/16/2026

This girl right here!!
She’s been absolutely miserable all day. Something is making her very itchy! She’s scratching so much, that it’s leaving whelps where she scratches. The Benadryl was no longer working. They gave her Hydroxyzine around 5 and some ice packs. So much better. She went for a walk (Look Molly), and since mom got 4hrs of sleep last night, we’re going to sleep! Praying for a peaceful night for us both.

Yesterday was another awful day. On the bright side, it was the last day of chemo 🙌🏻 but now we’re dealing with the fall...
04/14/2026

Yesterday was another awful day. On the bright side, it was the last day of chemo 🙌🏻 but now we’re dealing with the fallout. Her counts are dropping, and the only way to keep her nausea under control, is with medication that knocks her out. If she’s awake, she’s nauseous. She still hasn’t eaten a full meal since Thursday, and after her nausea meds earlier, she’s sound asleep again. Now we just wait.

Yesterday was a great day! We had the nausea under control, she was able to take and keep down all three doses of her or...
04/12/2026

Yesterday was a great day! We had the nausea under control, she was able to take and keep down all three doses of her oral medication, ate a little bit and even caught up on some schoolwork. BUT, today we’re dealing with stomach pain and more nausea. She gets so upset when she can’t keep her meds down. Now she’s soundly sleeping. Hoping she’s feeling a little better when she wakes up. We’re on day 4 of 5 in this chemo regimen. After tomorrow, we’ll be waiting for her counts to come back up before she can be discharged.

Addy slept great last night. We’ve started some IV meds versus oral, to hopefully avoid her throwing them up. There is 1...
04/11/2026

Addy slept great last night. We’ve started some IV meds versus oral, to hopefully avoid her throwing them up. There is 1 oral med that she has to take. Chemo breaks down the leukemia cells, and when it does, they release toxins into the bloodstream causing potential Tumor Lysis Syndrome or TLS. The medication is called Allopurinol, which will help in fighting TLS. She was able to keep down one dose on Thursday, but has since thrown them up. She tried again about an hour ago, and it’s not come back up 🙌🏻 small but significant win in my book!
Then we received a visit from George the therapy dog. His owner Summer, happens to be the school nurse at MJH where Addy was before her relapse. It was a wonderful distraction to visit with her and George. She was also given a school bag filled with goodies from Brave Like Me. They bring a decked out trailer to the hospital once a month, and allow patients to schedule an hour to spend with their own pets from home. We definitely plan to bring Luna over to see Addy. I hope everyone has a wonderful weekend!!

Very well said! Addy’s brothers don’t get enough credit or grace. Addy’s the baby of the family with 2 older brothers, C...
04/11/2026

Very well said! Addy’s brothers don’t get enough credit or grace. Addy’s the baby of the family with 2 older brothers, Cameron and Joey. Cameron is older, and living on his own, but Joey is a high school Junior. He’s going to prom tonight, and it’s tough on me that I’m not there for it. To take all the pictures and be in that moment with him. Siblings of cancer patients tend to take a backseat in the family, and it’s just not fair.

Well, it’s not going great over here. Addy hasn’t eaten since lunch yesterday. She started getting nauseous last night...
04/10/2026

Well, it’s not going great over here.
Addy hasn’t eaten since lunch yesterday. She started getting nauseous last night. That then came with lots of vomiting. This has continued through the morning, to the point where she can’t sit up without needing a bag. She’s had Zofran, Ativan, Benadryl and now Aloxi. Of course the side effects of most of these is drowsiness, causing her to sleep on and off all day. Hoping we don’t get to the point of malnourishment again, and need an NG tube. 
That’s the latest!! We’re trucking along with the chemo though.

We’re all settled!!Arrived at the hospital for 8 and met with her oncologists. We were informed of the different chemoth...
04/09/2026

We’re all settled!!
Arrived at the hospital for 8 and met with her oncologists. We were informed of the different chemotherapy she will be receiving. She went down for her lumbar puncture around noon. Everything went well, and now we’re all set up in her room, 442. She ate some Canes, and watched the Masters with Jon and I. Now she’s relaxing waiting for her chemo to get started.
Just to clear up any confusion, we are at Manning Family Children’s in NOLA. We are still on track for the CHOP trial, but they need more of her raw data from her biopsies, and those come from Seattle. Her oncologists are working to get that information over to them. CHOP, her oncologists and I, are all in agreement that she needs to start some sort of chemo now, before the disease progresses. Hopefully we will be out of her in 2-3 weeks, without any complications.

UPDATEThanks to a mom in a Leukemia/Car-T FB group, I learned Addy might be eligible for a CarT trial, that targets CD19...
04/06/2026

UPDATE
Thanks to a mom in a Leukemia/Car-T FB group, I learned Addy might be eligible for a CarT trial, that targets CD19 and CD22, at CHOP (Children’s Hospital of Philadelphia). Addy did SO WELL with CarT the first time, that I believe it’s what’s best for her, given how poorly her body handled chemo at diagnosis. Her oncologist is on board, and we are getting the ball rolling with the CarT trial. This would mean lots of travel to CHOP, so I’m sharing the GFM again, and if you feel led to donate we would greatly appreciate it. If not, prayers and SHARES of the GFM are just as important.
In the meantime, she will be admitted Thursday to start some chemo. I requested not to start anything until after our Nana’s memorial service on Wednesday, and they were very accommodating. We are looking at a being there for a few weeks. They are expecting her counts to bottom out and want to keep her inpatient until her counts start to come back up, to keep her infection risk down. If you know me, you know I like to have a plan, so being told today we’re being admitted in 3 days for a few weeks would normally put me in a spiral, but I’m truly at peace with it. I know this is temporary and CarT is her future. We just need to get through the hard stuff, beforehand. 🎗️🧡

https://www.gofundme.com/f/hope-and-healing-for-addys-transplant-journey

Throwback to our Covid stain glass door project.

Happy Easter Everyone!! 🐣 🐰 Praying I get to post some good news tomorrow.
04/06/2026

Happy Easter Everyone!! 🐣 🐰
Praying I get to post some good news tomorrow.

04/04/2026

UPDATE: There’s No Update 😩 I sent a message just asking if there’s been any news (we were told within 24hrs Wednesday afternoon). Even if there wasn’t, just let us know before the weekend. It’s going to be a long weekend ahead.

Happy Good Friday!!We’re waiting on some important news from Addy’s oncologist today. Fingers crossed we get that phone ...
04/03/2026

Happy Good Friday!!
We’re waiting on some important news from Addy’s oncologist today. Fingers crossed we get that phone call before the weekend. I’ll update once we do!

Not the call I was expecting on a Friday, but here we are…..Addy’s oncologist called to tell me the preliminary results ...
03/27/2026

Not the call I was expecting on a Friday, but here we are…..
Addy’s oncologist called to tell me the preliminary results from her biopsy on Tuesday came back positive for leukemia at 4% (she was negative a month ago). This means the 28 day Blina infusion she got was pointless. Blina targets the CD19 cell marker (which was the cause of her leukemia at diagnosis), however, this new 4% is CD22. Cancer is smart y’all! It knew the CarT she received last year was killing the CD19 cells, so it moved onto a new one.
Just to backtrack, on paper Addy was still in remission 2 months ago. Her NGS (Next Generation Sequencing) came back positive, which means the leukemia was coming back, but we didn’t know when.
Now that she has full blown leukemia again, she’s now relapsed and her transplant is off the table. We will basically have to start over again, but with different chemotherapy than previously given, due to her extreme sensitivity to what she received in the past. Talk about a gut punch!!
Everything is now on hold. Upcoming imaging, appointments and donor collection is cancelled. They are coming up with a plan and will call me next week with how we’re going to proceed, and we’ll plan to start a new regimen the 2nd week of April. The sooner the better!
This was not on my bingo card. We had mentally and physically prepared for this upcoming transplant. Now it’s a whole new ballgame, which terrifies me even more. Begging you all for prayers. This new path HAS TO WORK!

Address

111 DAVIS Street
Madisonville, LA
70447

Telephone

+19852767691

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