Addy's Fight With Leukemia

05/29/2026

We have some answers!!

The results from Addy’s CT scan showed that she has early signs of Typhlitis.
Typhlitis (also known as neutropenic enterocolitis) is a life-threatening, necrotizing inflammation of the cecum and nearby intestines. It primarily affects immunocompromised or severely neutropenic patients—most commonly individuals undergoing chemotherapy for blood cancers or receiving bone marrow transplants.

Thankfully, it is early stages and minor/minimal. This is why they have put her on NPO (nothing to eat or drink by mouth or feeds). They have her on a targeted medication now for that, and she will be on bowel rest. She will have to start TPN (Total Parenteral Nutrition), via IV until it resolves. This isn’t something she can go home with like the NG pump. It’s not believed to resolve until her ANC comes up (still at zero today), which isn’t expected until chemo is done and that won’t be until 6/9. Looks like we’ll be here for 2-3 more weeks. She has her next biopsy on 6/16, which will determine next steps based on the results.
MRD- (no detectable disease) = transplant
MRD+ = more chemo

I’m hoping my girl can get a break at home between whatever next steps are, but we will do what we need to do to keep her healthy. Keep those prayers coming!! 🩷

*Addy and I about 2 months before her diagnosis in 2024, after her very last softball game.

05/28/2026

I’ve been awake since 2:30 this morning….

Addy woke up to use the restroom and it brought on some nausea. We had to stop her Pedialyte. She also has a slight cough. Her stomach pain isn’t letting up, and Ativan is the only thing that helps her nausea. At one point today, she threw up what looked like blood clots.

She received some platelets, had a CT scan and chest x-ray, and now we’re waiting on results. Our biggest hurdle is getting something in her stomach. We’re going back to Pedialyte tonight and we aren’t going to titrate up at all. Just want to see if she can tolerate 5ml per hour and go from there. Chemo is done for the day, and we’re just going to rest. Praying for a smooth night and better day tomorrow, with higher numbers (her ANC is still at zero).

*Baby Addy, with her big brothers Joey and Cameron - May 2013.

05/28/2026

Today is World Blood Cancer Day. A day I wish my family and I weren’t a part of. Blood and platelets play a crucial part in Addy’s treatment, and the treatment of many others battling various blood cancers. Yesterday she received 2 units of blood, and today she will receive platelets. If you are willing and able, please visit any Blood Center site to donate. As always, “replacement for Adalyn Jensen” when doing so. Find a list of available locations at this link 🔗 below ⬇️

https://www.tbcdonors.org/donor/schedules/centers

05/27/2026

Addy Update!! 🩷

Nothing too surprising today. Her counts have dropped to the bottom, with her ANC at zero, hemoglobin 6.4 (transfusion planned this afternoon), and platelets are at 15.

We are going to start with some pedialyte this evening very SLOW! She is still having stomach pain, so we will increase as tolerated, in hopes that she can either move on to the pediasure or eat more by mouth. She requested a bag of cheese puffs last night, and of course I obliged.

Her chemo infusion will start in about 30 minutes with a blood transfusion to follow. Other than that, we are just hanging out, sending each other funny cat TikTok’s from across the room.

05/27/2026

It’s was fun while it lasted…..kinda

We are back at our second home, unexpectedly. Today was supposed to start Addy’s outpatient chemo infusions, but she was not doing well. Addy has been having some really intense stomach pain. She hasn’t tolerated the Pediasure feeds at all. Last night, we tried Pedialyte from 10pm-4am, when she woke me up with the stomach pains again, so we turned the pump off. She was really lethargic and pale by the time we arrived to clinic. She quickly received a bolus of fluids and we spoke to her oncologist, who was very concerned. He said that she needed to be admitted. So, since we showed up with nothing but a pillow, blanket and one car, I left Addy and Jon here while I drove back home to pack the car. Then Joey followed me back to the hospital, so Jon could ride home with him. While I was out, she had an ultrasound, where there was some slug found in her gallbladder, but nothing of immediate concern.
Things we need to work on are her intake, whether it’s by mouth or tube, getting her nausea under control and eliminating her stomach pain. We are going to try some new medications to help with that. She will also continue to receive her IV chemo as scheduled. Just a little bump in the road. 🩷

05/23/2026

Well this was a welcomed turn of events!! 🐈

Last night, Addy couldn’t take her meds by mouth after the NG tube came up. So, I made the decision to have it replaced. Thankfully, it went smoothly, with her favorite nurse Jenna. Finally got to sleep around midnight. Woke up to find that Addy’s bloodwork looked amazing!! All of her numbers came back up on their own, and her CMP numbers looked great too. Since today was her last day of chemo, I requested to be discharged and her oncologist agreed. She is happy to be home with her Luna. Say some extra prayers that her feeds go well tonight and we can keep this nausea at bay.

05/23/2026

So much for a quite night 😩

Addy threw up her NG tube!! I didn’t even know that could happen. So we removed the tape and pulled the tube. It’s the feeds, every time! Her stomach just can’t handle it. I said we are not going to put another one back tonight. She’s going to try her best to take all of her meds tonight, but if not she will have to get another tube placed tomorrow. Really hope this doesn’t hinder our chances of going home on Sunday.

05/22/2026

Feeds have started!!
Today has been pretty uneventful. Addy slept most of the day, and has only been awake since 3pm. No vomiting, though she is still a little nauseous from the tube and starting her feeds. She definitely doesn’t like the feeling.
The plan is for her to be discharged on Sunday, go home for the night. She will have to come back Monday-Thursday for chemo infusions, but can go home after if she tolerates them. Should be a quiet weekend!
🩷

05/21/2026

UPDATE: Tube is in place!!!

I was so proud at how she worked to calm herself down, take deep breaths and put her headphones on. It’s never easy on the patient to have a tube shoved down your nose and into your stomach, but she got through it. Shoutout to Nurse Meghan and Amanda 🙌🏻
She’s already had a dose of her medicine down the tube and she did just fine. They are also going to talk with nutrition regarding her weight loss. She may have to receive supplemental feeds until she can get her appetite back fully.
Addy is now sleeping comfortably!

05/21/2026

Y’all, say some extra prayers today!! 🙏🏻

Addy hasn’t been able to keep anything down, and it’s starting to become hit or miss when it comes to meds. There is oral chemo that she must take! She’s also lost more than 10lbs!! So we’ve unfortunately gotten to the point where she needs another NG tube placement. If you’ve been following for awhile, you’ll remember that she’s had one before and while it’s a game changer to give meds through, the placement is always the worst for her. Her IV chemo is done for the day, so we will wait until this afternoon to place it. I’ll update tonight once she’s all done.

05/21/2026

I know for most of our followers, it may be too soon to donate, but please share!
An immediate "Call to Action" to give blood asap as we approach Memorial Day. Starting tomorrow donors will receive a special edition black polo honoring America's 250th Anniversary.
The area blood supply is at 25% and needs your immediate lifesaving donation.
Remember to say “Replacement for Adalyn Jensen”.
Links 🔗 below ⬇️
Locations: https://bit.ly/TBCDonorCenters
Sign-up: https://www.tbcdonors.org/donor/schedules/zip

The Blood Center 2609 Canal St. New Orleans, LA 70119, US Phone: (504) 524-1322 1-800-86-BLOOD Fax: (504) 592-1580 info@thebloodcenter.org