Club 21 South Bay Community

07/11/2024

Research – Intellectual DisAbilities Communication Lab at UIUC

Research Studies for anyone interested!

Hi! My name is Sarah Woodford, and I am a graduate student at the University of Illinois.
I came across your organization and wanted to connect. My research lab is recruiting for 2 online research studies, one for caregivers of individuals with Down syndrome 6-18 years old (https://idclresearch.web.illinois.edu/publications/) and the other for adults with Down syndrome (bit.ly/4773bfN). Would you be willing to share our flyer with the individuals and families that you serve? I have added links to general information about both studies, but I am also happy to set up a call with you to discuss more, thank you so much! 😊

https://idclresearch.web.illinois.edu/publications/?fbclid=IwZXh0bgNhZW0CMTAAAR1vi-aM7gemCeuS0DV_2EhYfQP0ev7eEKqzOnBp99AMCod8WvrEdLP1EQk_aem_gvkjOH_WKlkptRN5j9kW0g

Research Current Projects: Now Recruiting Families! New NIH Grant-Funded Study: ASD Screening Tools in Down Syndrome Dr. Channell was recently awarded an NIH INCLUDE R21 grant to determine how to best use autism screening tools in children with Down syndrome. Project collaborators include Drs. Laura...

08/19/2023

The shortage of special education teachers in California is a significant issue. According to the California Department of Education (CDE), there has been a consistent shortage of special education teachers in the state for several years.

08/17/2023

Job Fair at the Carson Community Center. Join DOR and Carson One Stop as they host a job fair for individuals with disabilities. Everyone is welcome.

Feria de Empleo en el Centro Comunitario de Carson. Únase a DOR y Carson One Stop a la feria de trabajo para personas con discapacidades. Todos son bienvenidos.

08/17/2023

Ruby’s Rainbow is partnering with LinkedIn to host a FREE virtual mentoring + networking event! Who: Anyone with an Intellectual Disability! What: FREE virtual event to help people of all abilities connect and learn more about LinkedIn! When: Thursday, August 24 – 12-1pm (CST) Where: Zoom Expect...

08/15/2023

Get ready for CalABLE 2.0!

Our webinar on August 23 from 2 - 3:30 PM will focus on everything you need to know about CalABLE. There will be new features to explore and updates to the program. Be sure to register for this informative webinar: https://us06web.zoom.us/webinar/register/WN_lBRc45zmQcC6TljayUQSRg

08/13/2023

My colleague, Dr. Stephanie Santoro, is recruiting parents with sons or daughters with Down syndrome (age 0-21 yrs) for a survey project – should you, or any families you know, be interested, please contact: MGH Research Down Syndrome at researchdownsyndrome@MGH.HARVARD.EDU

08/09/2023

Don't forget to apply to the World Down Syndrome Day Sock Design Contest! Your sock design could be the official sock of World Down Syndrome Day 2024.

Apply here: https://johnscrazysocks.com/pages/world-down-syndrome-sock-design-contest

08/08/2023

Recently, the United Coalition for Down Syndrome sent a letter to the Centers for Medicare and Medicaid Services (CMS) advocating for access to promising new Alzheimer’s disease treatments and the acceleration of clinical trials involving the Down syndrome population. Check out the letter here: www.ndsccenter.org/wp-content/uploads/Coalition-letter-to-CMS-_2023-07-24.pdf

We believe people with Down Syndrome deserve equal access to, and insurance coverage for, life-changing drugs.

You can help this fight for justice by signing on to the national petition urging people with Down syndrome be included in clinical trials for new Alzheimer’s therapies and that policies are changed to give people with Down syndrome future access to these new drugs.

Find more information and sign the petition at: www.MedEquity4DS.org

07/30/2023

Join us for our next myDSC webinar, “Addressing Inequalities for Black Families In the Down Syndrome Community” on Wednesday, August 30 at 12pm EST! Kelli Caughman and Crystal Lotterberry, co-founders of the Black Down Syndrome Association will be addressing the many inequalities present for Black families in the Down syndrome community. BDSA works to connect, collaborate, educate, and engage families with the goal to increase access, support, and education. Hear about the latest initiatives and how you can get involved. Registration is required to attend. Register online at: https://bit.ly/43Juev5. Must be a myDSC member to register. Not a member? Join today - it’s free!

07/27/2023

As the parent or family member of a young adult with intellectual disability, you may have heard a bit about Think College or seen videos or articles describing how students with Down syndrome and other intellectual disabilities are attending colleges and universities all over the United States.