Incontinentia Pigmenti Families

Incontinentia Pigmenti Families IPF is maintained by a group of loving and understanding IP Families We offer emotional support and the share reliable resources.

Mission IPF - Incontinentia Pigmenti Families

Our ongoing mission is to encourage and support research on IP, encourage and supply worldwide awareness, and to provide family support and worldwide education. Currently -

We support and participate in research and encourage new research projects

We Secure Online Communities for Families where they can share amongst each other and include participation from experts in their fields of interest with IP who offer their assistance and opinion. We help families connect via IPF resources. We keep IP Families updated with current news

We offer IP education

We create awareness of IP on a worldwide basis. IPF are supporters of the following organizations:
Rare Disease Day USA
Rare Disease United Foundation
Global Genes Project and RARE

Address

Manhattan, NY

Website

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