American Cochlear Implant Alliance

American Cochlear Implant Alliance Clinicians, scientists, educators and consumer/parent advocates promoting access to cochlear implants An annual meeting for professional members is convened.

The American Cochlear Implant Alliance is a not-for-profit membership organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the US. ACI Alliance members are clinicians, scientists, educators, and others on cochlear implant teams as well as parent and consumer advocates.

We are happy to announce that the popular Listening > Language > Literacy infographic is now available in three more lan...
07/31/2025

We are happy to announce that the popular Listening > Language > Literacy infographic is now available in three more languages - French, Korean, and Mandarin Chinese--in addition to English, Spanish and Japanese.

Please share this important resource with your networks!

https://www.acialliance.org/page/listeninglanguageliteracy

4 weeks left to submit an abstract for  !Meeting themes include:-Optimizing clinic efficiency and program growth-Emergin...
07/29/2025

4 weeks left to submit an abstract for !

Meeting themes include:

-Optimizing clinic efficiency and program growth
-Emerging technologies in cochlear implantation
-Unique challenges in SSD/AHL patients
-Management and rehabilitation of challenging hearing loss etiologies
-Mental health comorbidities in CI care
-Speech perception testing for non-English speakers
-Cognition and CI in aging patients
-Socioeconomic factors and health disparities in CI care

https://ci2026chicago.org/

What the ADA has meant to meDonna SorkinJuly 26th marks the 35th anniversary of passage of the Americans with Disabiliti...
07/23/2025

What the ADA has meant to me
Donna Sorkin

July 26th marks the 35th anniversary of passage of the Americans with Disabilities Act (ADA). This landmark civil rights legislation broadly affirmed the premise that people with disabilities should be judged on the basis of their abilities, not their disabilities. The law transformed our society by articulating our belief that reasonable accommodations should be provided to individuals with disabilities, allowing them to fully participate in key aspects of life—employment; government services; public offerings such as theater, sporting events, and healthcare; and telecommunications. Since its passage in 1990, the ADA has led to enactment of similar legislation in over 180 countries around the world.

My Father’s Life Pre-ADA
As someone with hearing loss, I am grateful for what the law has meant for me and for millions of others. I am also cognizant of the opportunities that I have had that were not available to my father, who was deaf (though he called himself “hard of hearing”). My father retired with a medical disability from a job he loved at age 52. He could no longer hear well enough to answer questions at the Congressional hearings he was responsible for staffing. Nor could he complete telephone calls at work. Were he alive today, my father could have remained in the workforce with needed accommodations as provided for by the ADA. He would also have been a candidate for a cochlear implant.

My Life—Pre and Post ADA
My hearing declined before the Internet was widely available--before email (and texting) became the preferred ways for most of us to quickly communicate. Telecommunications relay services for people with hearing loss (what we now call captioned telephone) were staffed by volunteers. There were no standards. It was a terrible way to connect with others—especially for someone who was trying to run a small business. The inability to use the telephone impacted every aspect of my life—talking to family members and friends, completing work related calls, making medical appointments, arranging for travel, and in the countless other ways we arrange for our life activities.

I recall one horrific airline trip when my connecting flight was cancelled. I was stranded in an airport in another city unable to call my husband to alert him that I would not be arriving that evening. I asked airline personnel to make a call for me, which they did. Afterwards the airline representative noted: “You should never travel alone.” How extraordinary that she would judge my ability to travel based upon my hearing loss and my inability to make a phone call because of the lack of the technology I needed in the airport.

Without assistive listening devices or captioning, movies and theater were frustrating and certainly not entertaining. My husband and I stopped attending such events.

Passage of the ADA was life-changing for me in myriad ways. The law transformed the way our country viewed inclusiveness for people with disabilities. The ADA’s passage also began a process of expanding accommodations beyond those covered in the ADA to other legislation such as the Telecommunications Act of 1996. The Telecom Act addressed wireless phone access for people who use hearing technology such as cochlear implants and hearing aids and required captioning of TV programming—a feature now used by many people—those with and without hearing loss.

One specific example of how the ADA benefitted me that had contributed to my father’s early retirement related to my provision of testimony as part of a 1995 Senate hearing on hearing aid dispensing practices convened by Senator William Cohen (R-ME). I knew that I might have difficulty understanding questions in the reverberant Congressional spaces and asked for an assistive listening device—an ADA accommodation. I told my mother that I would be testifying, and she asked if she might attend so that she could watch me carry out a function that my father had been unable to do given his hearing loss.

ADA Changed Lives for People with Disabilities and Benefitted Society
The ADA eliminated barriers that kept Americans with disabilities from fully participating and in so doing, it improved their lives and set a precedent for inclusiveness. The outcome has been shown to not only improve the quality of life for people with disabilities but also to be cost effective and beneficial for society given its impact on greater employment, increased income, and economic contributions by including people who previously would have been left outside the mainstream of our country.

https://www.acialliance.org/news/706578/Donna-Sorkin-shares-What-the-ADA-has-meant-to-me.htm

If you or someone you know is wondering if a cochlear implant can help them, check out our "What is a Cochlear Implant" ...
07/18/2025

If you or someone you know is wondering if a cochlear implant can help them, check out our "What is a Cochlear Implant" resource page! It's a great first step for anyone just beginning their cochlear implant journey.

www.acialliance.org/page/CochlearImplant

"Early Cochlear Implantation Linked to Improved Outcomes and Cost Savings"Thank you to The American Speech-Language-Hear...
07/15/2025

"Early Cochlear Implantation Linked to Improved Outcomes and Cost Savings"

Thank you to The American Speech-Language-Hearing Association for featuring this article on two important studies revealing how early implantation may benefit speech and language development, and lower overall lifetime costs.

Two studies reveal early implantation may benefit speech and language development, and lower overall lifetime costs.

07/10/2025
We are proud to work with the Chaikof family and their advocacy for important research initiatives around genetic hearin...
07/03/2025

We are proud to work with the Chaikof family and their advocacy for important research initiatives around genetic hearing loss.

Jessica Chaikof says research into gene therapies could someday save her eyesight. But she worries cuts to federal research funding could mean that therapy won't be ready in time.

Abstracts are open for  !Plan to submit your research and join us in Chicago in May. Abstracts open through August 26, 2...
07/01/2025

Abstracts are open for !

Plan to submit your research and join us in Chicago in May. Abstracts open through August 26, 2025.

https://ci2026chicago.org/

Many cochlear implant candidates have questions about what music could sound like after activation.Visit our music resou...
06/20/2025

Many cochlear implant candidates have questions about what music could sound like after activation.

Visit our music resources page for tips, stories, webinars, and more about what's possible for music after a cochlear implant.

(bilateral CI recipient Kelly Flodin pictured below!)

www.acialliance.org/page/CIMusic

Join us for a webinar tomorrow, June 17th @ 3PM EDT!"Barriers to Enrolling Children with Hearing Loss in Early Intervent...
06/16/2025

Join us for a webinar tomorrow, June 17th @ 3PM EDT!

"Barriers to Enrolling Children with Hearing Loss in Early Intervention"

EHDI has led to dramatic increases in newborn hearing screening, but early intervention of identified children still falls short, with up to 30% of identified children not receiving definitive hearing testing or intervention after initial screening. This webinar reviews the specific barriers associated with the failure of children to receive timely services, including inequities posed by Medicaid, complex enrollment processes, and lack of understanding by many parents and PCPs of the importance of timely follow-up.

This presentation reviews the specific barriers associated with the failure of children to receive timely services, including inequities posed by Medicaid, complex enrollment processes, and lack of understanding by many parents and PCPs of the importance.

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P. O. Box 103
McLean, VA
22101

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