Scheuermann's Disease

05/25/2026

This Memorial Day, and every day, take time to honor and thank those who paid the ultimate sacrifice for our freedom. 🙏🇺🇸🇺🇸
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“Let us pledge that their lives, their sacrifice, their valor shall be justified and remembered for as long as God gives life to this nation.” —Ronald Reagan

05/03/2026

We’ve been working with Scheuermann’s patients for over a decade and are continually asked about complications with spinal fusion surgery in adolescence vs adulthood.
This groundbreaking study shows that surgical complications for scoliosis patients are significantly less before 30 years old but the number JUMPS after 50.
If you need surgery, the earlier the better

Congratulations to the 2026 Thomas E. Whitecloud Award winner for Best Clinical Research Paper, “From Adolescence to Late Adulthood: Quality of Life and Surgical Outcomes in Idiopathic Scoliosis Across the Lifespan,” which was presented by Ferran Pellise, MD/PhD at the 2026 IMAST meeting!

In a cross-sectional study of a prospectively collected database of 761 patients with idiopathic scoliosis across age groups ranging from 10-14 to >70, they found worsening pain, function, self-image, and mental health scores with increasing age. Additionally, the lumbar curve severity increased in age >30. However, older patients did exhibit the greatest improvements in pain and mental health postoperatively, and self-image was the most affected domain with the greatest improvement across all age groups.

03/31/2026

We have been working hard to update the "Articles & Research" section of the website for The Scheuermann's Disease Fund. It is FINALLY completed!!🙌📣🤩
https://www.sdfund1.org/articles-research
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This section of the website focuses primarily on Scheuermann's research🧐🔬. Links have been provided, including a PDF of the recent important research manuscript by Dr. Alan Daniels and the Brown Orthopedic Spine Lab, "Beyond the Curve: the mental health burden of Scheuermann's kyphosis."🎊
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We hope this research helps in better understanding SD and its impact on our health and quality of life. 🫶
Please let us know if you find research not included in this section (we are happy to add it!).💜💜🙏

Browse Scheuermann’s Disease Fund Articles & Research with medical studies, treatment options, and updated resources to support patients and families.

03/24/2026

As we've mentioned, The Scheuermann's Disease Fund (www.sdfund1.org) depends on donations to help those affected by this terrible spinal disease/deformity.
We are blessed and would like to help those people and companies that help us!! 👏💜
Layton John is the Founder and CEO of LJI Wealth Management
📈🏆🥇(https://ljiwm.com/) and have been a GOLD Sponsor for the last 10+ years! 💜📣
LJI Wealth Management Wealth Advisors have over 425 years of combined experience and work with clients in more than 30 states. If you🫵 are in need of financial guidance (so many of us need it!) contact 📞 Layton and his team at (317) 466-9702.
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**Layton and I have been friends for over 25 years and worked together in Indianapolis!!

03/11/2026

Did you know The Scheuermann's Disease Fund runs on 100% donations? Well, we would like to help those companies that help us!! 👏💜🙏
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Dr. John Kuehn and Family Dentistry 🦷🏆🥇(https://www.kuehnfamilydentist.com/).
Dr. John has been a GOLD Sponsor for the last 10+ years! 💜📣
If you🫵 are in need of a dentist (most of us are) go see Dr. Kuehn and his fantastic team!! Call (412) 886-9999 for appointment. ⏰🗓️
They are located in South Park at 1201 Broughton Rd, 2nd Floor, Pittsburgh, PA 15236
🕰️📆Monday to Thursday, 8:30am to 5:00pm
Most Fridays, 8:30am to 2:30pm
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**John (TJ) and I graduated from Baldwin High School together in the Class of '83! Go Highlanders!!

03/08/2026

What a blast!! Thank you to The Alchemist's Tavern and Home Warranty!!

03/06/2026

PLEASE READ AND SHARE: Attached is the very important study in its entirety that focuses on the impact of Scheuermann's disease in adult patients: "Beyond the curve: the mental health burden of Scheuermann's kyphosis".
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The study is authored by Dr. Alan Daniels of Brown University and Orthopedic Spine Lab of Brown University.
The Scheuermann's Disease Fund )www.sdfund1.org) is proud to be part of this collaborative effort. We have been collecting this research data from adult Scheuermann's patients since 2022 with the help of Sanford Research and their CoRDS program.

03/02/2026

WEDNESDAY MARCH 4TH!! 5PM-7PM
THE ALCHEMIST'S TAVERN - Come see us at the coolest new tavern in the area! (next to Primanti's at the Meadows)
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Steampunk theme is amazing!!
Ask for the charity's signature drink - "The Scheuermann-ator"!
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Thank you Peters Township Chamber of Commerce, Home Warranty, and Alchemist's Tavern!
See you there!

02/27/2026

GROUNDBREAKING PATIENT STUDY:
Our FIRST announcement as a participant in a research study!! 🙏🏻💜🏆

Dr. Alan Daniels of Brown University and Orthopedic Spine Lab of Brown University have authored a study: Beyond the curve: the mental health burden of Scheuermann’s kyphosis
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This very important research helps explain how Scheuermann's disease affects the mental health and quality of life in adult patients.
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Thank you to Alan H. Daniels, MD for all the help he provides to the Scheuermann's patient community.
Special thanks to Michael J. Farias and the Spine Lab team for their hard work and dedication.
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The Scheuermann's Disease Fund is proud to be part of this collaborative effort. We have been collecting this research data from adult Scheuermann's patients since 2022 with the help of Sanford Research and their CoRDS program.

How does Scheuermann’s kyphosis affect mental health? This collaborative project utilizing data from the Scheuermanns Disease Fund sought to answer this question: https://lnkd.in/erAWkiVC Here are the findings- Results: Patients diagnosed with SD in these specific cohort were between the ages of 1...

02/24/2026

Huge thank you to IN Community Magazines - Brentwood/Baldwin-Whitehall Winter 2025 Edition for this great “Business Spotlight” article on The Scheuermann’s Disease Fund (www.sdfund1.org). 💜🙏

02/19/2026

The Scheuermann's Disease Fund website update has finally been completed!! The website includes an INTERNATIONAL DOCTOR DATABASE (www.sdfund1.org/doctor-database)
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This is a patient driven database where each spine specialist has either been referred by a person who has been treated for Scheuermann's OR is a member of our Medical Advisory Board.
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We are ALWAYS looking to add experienced doctors to the database so if you have been treated by a spine specialist who is not listed, please let me know!!! 💜💜🙏🙏