IgG4ward

07/24/2025

📣The PeachJAM 2025 Agenda is Here!🍊

We’re bringing the IgG4-RD community together for two days of learning, connection and empowerment — September 12–13, 2025, at the Emory Conference Center Hotel in Atlanta.

With expert-led lectures, patient and caregiver sessions and opportunities for Q&A, this is a weekend you won’t want to miss!

Please click below to access the full PeachJAM agenda and to save your spot today: https://tinyurl.com/2asj5vjz

💙🧡

Explore the PeachJAM 2025 agenda! Join us Sept 12–13 in Atlanta for expert talks, breakout sessions, and community connection.

07/22/2025

IgG4ward! will be in attendance for this important webinar. We hope you can join too!

🧬 You’re Not Alone. Let’s Connect.
Caring for someone with a rare disease can feel overwhelming—and isolating. That’s why Give an Hour is offering no-cost, trauma-informed peer support training made just for you.

💬 Rare Caregiver Peer Support Training: Connect. Reflect. Grow.
Upcoming 2025 Dates:
• July 23 | 12–1:30 PM EST | *TOMORROW*
• September 17 | 3–4:30 PM EST
• November 19 | 6–7:30 PM EST

✅ Learn to:
– Build authentic connection
– Support others with empathy and trust
– Navigate boundaries & burnout
– Create space for resilience and healing

🧠 Led by expert facilitators who are caregivers, too.
🎓 No cost. No pressure. Just powerful support.
🔗 Register now: https://loom.ly/oGOAQJI
📧 Questions? Email: jwells@giveanhour.org

✨ Supported by the Alexion Charitable Foundation and AMGEN.
Because mental health is part of rare care.

Alexion Pharmaceuticals Amgen

07/18/2025

The PeachJAM is Coming — and You're Invited. 🍑

Meet us in Atlanta on September 12-13 for the IgG4ward! PeachJAM, where connection, education, and empowerment come together in a powerful way.

In this image, you’ll see the IgG4Warrior pose—arms raised in strength and solidarity—and the shadow of a crow behind. Why a crow? 🐦‍⬛

In Japan, IgG4-RD was once described as “a crow flying through the dark night.” Mysterious. Overlooked. Hard to spot.

Like the crow, IgG4-RD has been around for centuries, often hidden in plain sight. But now, we’re starting to see it. To name it. To understand it. And, most importantly, to confront it face-to-face and tackle it head-on..

🧡 Registration is OPEN: http://bit.ly/40Wis1M
🛏️ Hotel booking is OPEN: http://bit.ly/4nUpT3q
🎓 Scholarship applications are OPEN: http://bit.ly/44WyolY

Tag a friend who needs to know about PeachJAM!

IgG4ward | PeachJAM: The 2025 IgG4-RD Patient Jamboree in Atlanta

07/15/2025

Our latest Fireside Chat focused on Retroperitoneal Fibrosis (RPF) in IgG4-RD—a rare complication that can affect the kidneys and urinary system.

Hear from Dr. John Stone, Dr. James Tomlinson, and courageous community voices as they break down symptoms, diagnosis, treatment options, and the emotional impact of RPF.

🔹Watch the video
🔹Download the free reading guide
🔹Explore answers to your questions

👉 https://igg4ward.org/igg4ward-educational-resources/watch-the-fireside-chat-igg4-rd-and-retroperitoneal-fibrosis/

Watch our Fireside Chat on RPF in IgG4-RD and download a free reading guide to learn about symptoms, treatment, and diagnosis.

07/10/2025

📢 PeachJAM 2025 is coming up fast—and we’ve got key details to help you plan your trip! ✈️

Read the latest IgG4ward! Blog Post here: http://bit.ly/40HVzPu to learn about:

✔️ Schedule highlights
✔️ Hotel booking info
✔️ Travel scholarship details for up to 50 attendees

Whether you're living with IgG4-RD, caring for someone who is, or part of the medical community—we want you there. 💛💙

07/10/2025

Very useful article from Steroids and Me,

07/08/2025

🗓 Try Not To Miss This Week’s Fireside Chat: A Conversation on RPF & IgG4-RD
Friday, July 11 | 12 PM ET | Live on Zoom

🎥 “It was highly suspicious for malignancy.”

That’s what the radiologist said when they found the blockage in her ureter.

What looked like kidney stones turned out to be something much more complicated—Retroperitoneal Fibrosis (RPF), a known manifestation of IgG4-RD.

Hosted by Dr. John Stone with guest expert Dr. James Tomlinson (Hammersmith Hospital, London, UK), this conversation will explore RPF, its connection to IgG4-RD and the patient experience.

💬 A live Q&A will follow the discussion—bring your questions and join the conversation.

👉 Watch the short clip below of the conversation with a person living with IgG4-RD and RPF, one of few that will be highlighted on Friday.

You may also register here, if you have not already: https://us06web.zoom.us/webinar/register/WN_Th2KLxGbQWGXYFUBoCTV3Q

What she suspected was a kidney stone led to a much more complex discovery: a blocked ureter, hydronephrosis and eventually a diagnosis involving Retroperito...

07/01/2025

She didn’t just accompany her father—she became his voice.

Lisa shares the emotional story of her father, Mr. Kaya and their journey through frightening tests, unclear answers and a long road to diagnosis with IgG4-RD & Retroperitoneal Fibrosis. As her father doesn’t speak English, Lisa stepped in to navigate the process and advocate for his care.

This powerful story is one of several featured in our upcoming IgG4ward! Fireside Chat on Retroperitoneal Fibrosis and IgG4-RD.

Join us live: Friday, July 11 at 12 PM ET


Register to attend: https://us06web.zoom.us/webinar/register/WN_Th2KLxGbQWGXYFUBoCTV3Q #/registration

🕓 This is the last week to submit your questions in advance: https://us17.list-manage.com/survey?u=4a4ae04b5ff3aae649a60162b&id=bc5c9622c2&attribution=false

You can also ask them live during the event.

She didn’t just accompany her father—she became his voice.Lisa shares the emotional story of her father, Mr. Kaya, and their journey through frightening test...

06/26/2025

From the JAM to the PeachJAM! 🍑

In 2024, we gathered for connection, education and hope.

Now—we’re doing it again!

🚨 Registration is now LIVE!
📍Join us for the IgG4ward! PeachJAM
🗓️ September 12–13, 2025 | Atlanta, GA
🎬 Watch the 2024 lookback video

👉 Learn more & register: https://tinyurl.com/2a84vta6

06/24/2025

📢 Registration is LIVE!

Join us on Friday, July 11 at 12:00 PM ET for a powerful IgG4ward! Fireside Chat on Retroperitoneal Fibrosis (RPF) and IgG4-RD.

This focus on Retroperitoneal Fibrosis (RPF), an area of major unmet medical need within IgG4-RD, will feature expert insights from Dr. James Tomlinson (Hammersmith Hospital, London) and Dr. John Stone. The session will also include interviews from people living with IgG4-RD.

Patients, caregivers, physicians, nurses, researchers and industry partners will all benefit from participating in this Fireside Chat.

Attendees will have the opportunity to ask their questions live, in real time—or submit them in advance.

🎥 Register now to save your spot: https://bit.ly/3G4JP2A

📄 Read more about this Fireside Chat and access the link to submit your questions in advance here: https://bit.ly/igg4wardfscrpf

06/19/2025

What is Retroperitoneal Fibrosis (RPF)?

RPF is a condition where fibrous tissue builds up in the back of the abdomen—an area called the retroperitoneum. This tissue can squeeze or block organs like the kidneys and ureters, leading to pain and organ-threatening complications.

It’s a common manifestation of IgG4-RD and one that often requires a customized treatment approach combining medications and procedures.

💬 Join us on July 11 for a Fireside Chat hosted by IgG4ward! and Dr. John Stone, featuring Dr. James Tomlinson, a nephrologist at Hammersmith Hospital in London—plus real stories from people impacted by RPF.

🗓 Thursday, July 11
🕛 12:00 PM ET | Zoom

📲 Registration opens June 23

🔗https://bit.ly/igg4wardfscrpf