Kase’s Krew - ATRT Cancer Journey

Kase’s Krew - ATRT Cancer Journey Welcome to Kase’s Krew! Here we will share updates as we navigate this ATRT cancer journey together.

This is the face of a boy who is beating cancer🙌🏼 👏🏼We got his MRI results and it was nothing but positive news! The sca...
04/17/2026

This is the face of a boy who is beating cancer🙌🏼 👏🏼

We got his MRI results and it was nothing but positive news! The scans show that chemo is still working and his tumor is smaller than the last MRI! The metastatic spots are also gone!!! Praise the Lord🙏🏼
Kase will have 4 more rounds of chemo and then possibly have surgery for his eye. We will meet with ophthalmology soon to discuss a plan of action. For now… We’ll check into the hospital tonight to start round 5!
Thank you for all the prayers for our sweet boy! God is so good and continues to answer our prayers! 💛🎗️

We got to spend FOUR days back home in MS!! This is the longest break Kase has gotten since starting treatment. And let ...
04/16/2026

We got to spend FOUR days back home in MS!! This is the longest break Kase has gotten since starting treatment. And let me tell you…. He had the best time!
He got to swim in the pool, hangout with Subs and Sug, play with the pups, and try some new food! Oh and watch Liberty win the weekend series❤️💙
This little break at home is exactly what Kase and I needed. Now we’re back at St. Jude and getting back into our routine!
Tomorrow is scan day and we are continuing to pray for good results!! Please keep Kase is your prayers. Tomorrow is a big day🙏🏼🎗️💛

Hi There!! 👋🏼 Please don’t hate me for being MIA… I’ve been terrible with Facebook but I promise I will be better! I can...
04/08/2026

Hi There!! 👋🏼 Please don’t hate me for being MIA… I’ve been terrible with Facebook but I promise I will be better! I can’t believe I have failed to update you guys since the end of JANUARY! But…. We’ve had some big updates with Kase man’s journey! The biggest and best news is that HIS CHEMO IS WORKING!! He finished 2 rounds of chemo and then on February 6th he had his first set of scans. Those scans revealed that his tumor is shrinking, along with the other metastatic spots throughout his brain! Praise the Lord🙏🏼🙌🏼
Since those scans… Kase has gone through 2 more rounds of chemo. This last round though has been rough. Kase has been getting extremely nauseous and throwing up more and more. Thankfully, he still has an appetite and is maintaining his weight. With being so sick, they’re monitoring his weight to make sure other measures aren’t needed!
Since he’s finished 2 more rounds, Kase will have his next set of scans on April 16. So please pray that those scans show even more shrinkage or no evidence of disease at all!
I say it all the time… but I have the strongest little boy ever! And the support we’ve continued to receive is such a blessing. Thank you.

Here are some pictures from the last few months!!🎗️

ST. JUDE AMAZON WISH LIST🎗️✨When we first arrived at St. Jude we were encouraged to make a wish list. To be honest, it s...
01/24/2026

ST. JUDE AMAZON WISH LIST🎗️✨

When we first arrived at St. Jude we were encouraged to make a wish list. To be honest, it slipped my mind and then we had Kase’s Krew come up with different fundraisers to help us. However, I was encouraged again to make one and just add things as they come up.
We are so so thankful for everything that has been done for us already. You all have made this journey easier with all the contributions. Honestly, saying thank you isn’t enough. But this list will be pinned at the top of the Kase’s Krew page if anyone wants to check it out. We love you guys!

Thank you! Thank you! Thank you!

💙 Mackie, Keller, and Kase Man

Chemo ROUND 2! 💉We checked in Tuesday night to start Kase’s second round of chemo. The methotrexate ran for 24 hours and...
01/23/2026

Chemo ROUND 2! 💉

We checked in Tuesday night to start Kase’s second round of chemo. The methotrexate ran for 24 hours and big man just finished! Now we are hydrating, hydrating, and hydrating to get it all out of his system! He also had occupational therapy and speech therapy while we’ve been inpatient. We are slowly seeing improvement with his left hand! 🙌🏼
For now, we’re just hanging out and napping. We’re hoping to get discharged tomorrow before the weather hits!

We officially have a ONE YEAR OLD!!!🥳💛🎊🎂🎉 Kase turned one yesterday while we are in the hospital! But we did get to cele...
01/22/2026

We officially have a ONE YEAR OLD!!!🥳💛🎊🎂🎉

Kase turned one yesterday while we are in the hospital! But we did get to celebrate a few days early with some family! Kase tried cake, opened some presents, and danced to some music! It was the best weekend celebrating our sweet little man! 🥳
Our sweet nurses even made him a birthday sign and brought him a cake! 🎂
He is so loved! Thank you to everyone who reached out to wish him a happy birthday!

WE’RE BACK HOME!! 🥳🎊Kase was officially discharged this afternoon and we are back at the apartment! This past week has b...
01/14/2026

WE’RE BACK HOME!! 🥳🎊

Kase was officially discharged this afternoon and we are back at the apartment! This past week has been the toughest week we’ve had this first round. It felt like all the side effects hit Kase at once… fever, nausea, loss of appetite, fatigue, etc.. but we got his lab results back this morning and all his numbers were up. He woke up this morning back to his happy self. Also, we found out he’s no longer neutropenic🙌🏼

Another milestone in Kase’s cancer journey… he lost his hair! It basically all fell out in a day and we ended up shaving the rest of it. I knew that he would eventually lose it but I wasn’t prepared for it to happen so quickly. I must say though… he’s the cutest bald baby I’ve ever seen!

Thank you guys for all the prayers! We’re hoping his numbers will continue to rise and that there will be no more fevers until his birthday!!🎂

01/10/2026

We almost made it… 6:30 this morning Kase had a slight fever of 100.8. Because of this fever, they redrew labs and ran cultures to make sure there’s no bacterial infection. His platelets were also low and they decided to give him a platelet transfusion to help those counts come up. He’s still feeling lousy but is finally taking a nap!

If the up and down with his fever continues, they’ll run further testing to make sure nothing else is going on! Please pray that he can recover and that his counts will start to improve💛

Well… we may have jinxed Kase by talking about how good he’s been! Wednesday morning he spiked a fever of 101. 🌡️ After ...
01/10/2026

Well… we may have jinxed Kase by talking about how good he’s been! Wednesday morning he spiked a fever of 101. 🌡️
After his last dose of chemo, his absolute neutrophil count (ANC) was 10. Anything below 500 is considered neutropenic, which means he has low white blood cells/his body can’t fight off infections. So… with Kase being neutropenic with a fever, that meant an automatic hospital stay. In order for us to go home, he has to go 24 hours without a fever and his ANC counts need go up.
We’re still in the hospital trying to make it fever free for 24 hours. Big guy made it 12 hours and then spiked another fever of 102, and it happened again one more time. He’s been fever free since 9am this morning 🙌🏼 He has not felt good at all which is tough for this mama to watch. He’s never really been sick like this before. We’ve cuddled, watched bluey, taken walks around the floor, and played when he had some energy. He’s my tough little man! He really perked up though when he got to meet Snuggles the therapy dog! They really bonded and Snuggles didn’t want to leave Kase man. It was the cutest thing to see. 🐶
He had labs checked again today and his ANC was 30! So at least we’re seeing progress with that! Please continue to pray for no fever and his ANC counts to rise!🙏🏼🎗️

We are so thankful for all of the fundraisers for Clinton Kase! 🙏🏼💛 We can’t say thank you enough!! We are truly blessed...
01/07/2026

We are so thankful for all of the fundraisers for Clinton Kase! 🙏🏼💛 We can’t say thank you enough!! We are truly blessed with such a great support system and community! Kase really does have the best Krew!✨

Chemo Round 1 = COMPLETE👏🏼🎉 Today Kase man had his last doses of chemo to finish out round 1! It was a long day though. ...
01/07/2026

Chemo Round 1 = COMPLETE👏🏼🎉

Today Kase man had his last doses of chemo to finish out round 1! It was a long day though. We got checked in to get his port accessed and he handled it beautifully! No tears this time! Then we headed to the brain tumor clinic to start the numbing process for his ommaya. While that processed, Kase had an occupational therapy appointment. He started to show fine motor weakness in his left hand a few weeks ago. So today we put a splint on his right hand during therapy to make him work the left. He did amazing today and is slowly showing improvement! After therapy we went back to clinic to get his topotecan chemo through his ommaya. The whole process only took about 3 minutes but big man did not enjoy it. The chemo itself didn’t upset him but being restrained did. So he definitely earned his wagon nap! After a short break we headed to the infusion center for his vincristine chemo. This chemo was through his chest port and also only lasted about 5 minutes. He watched some Bluey and then we were done! YAY!🎉
He got to play around when we got to the apartment but started to get nauseous. Big man just needed some cuddles and a 3 hour nap!

We’re so proud of Kase and how he’s handled this first round of chemo! He amazes me every day. We know the next few rounds are going to be a bit tougher… so we are soaking up all the good days while we can! He gets a few weeks to recover and then we’ll start round 2 close to his birthday!
Please continue to pray for our Kase man! Pray his counts come back up, that he continues to feel good and recovers well, and that the chemo is doing its job! 🎗️💛✨🙏🏼

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St. Jude
Memphis, TN

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