Joseph’s Journey Against Glioblastoma

09/12/2025

Read it again.

If you weren’t struggling financially before diagnosis, you will be after. 🥺






💛💚💛💚💛💚💛💚💛💚💛💚

09/12/2025

09/12/2025

Children’s bodies and brains are still developing. They metabolize drugs differently than adults. Yet most of the chemotherapy they receive was created for adults, and just micro-dosed for their tiny bodies. Research for improved treatments for pediatric cancers is desperately needed. Our kids deserve better.
They are worth MORE THAN 4%

09/12/2025

September is Pain Awareness Month. The doctors and nurses at the Preston Robert Tisch Brain Tumor Center at Duke understand that pain is a often a significant symptom of many brain tumors. While the ultimate goal of the Tisch Brain Tumor Center is to find a cure, we are grateful for the medical teams continuing to provide pain management to brain tumor patients.

09/12/2025

09/12/2025

Joseph’s family is in a dire situation, struggling to make ends meet due to a series of ongoing challenges. The income his mom receives amounts to just $775 in SSI benefits, which is $105 less than what she pays for their rent every month, which is $880. This creates a difficult decision every month: whether to pay for essential utilities like PG&E or to secure a roof over their head. Recently, his family sought help by applying for emergency food stamps, hoping to get some relief. Unfortunately, their application was denied, despite their clear need. The denial was based on their SSI benefits, which the government considers ineligibility criteria, even though those benefits barely cover their rent.

Although they were able to find some relief for their food insecurity thanks to the amazing donors who have been sharing Joseph’s story, it’s an ongoing battle.
Recently, the family received a letter from the IRS threatening to repossess their property, the only asset they have left, their truck.

Social Security told her that she needed to modify her taxes, but the problem is, she never actually filed taxes. Someone else filed taxes in her children's names instead. Social Security’s issue is that their records show she had work history in 2023 and 2024, but she didn’t. They told her she had to modify her taxes because of that. The real kicker is that she owes less than $5,000 to the tax board for something that wasn’t even her fault, but somehow Social Security is saying she owes them over $13,000. How does that even make sense?
She’s got all these letters to show for it. The first letters came in saying she owed a smaller amount, then later there’s a letter stating that her tax stuff has been reduced to zero, but there’s still an overpayment of more than $7,000.
With mounting bills, the looming threat of property seizure, and the lack of adequate support from government assistance programs, they are in urgent need of help to ensure that they don’t lose their truck!

🟢https://www.gofundme.com/f/vcw5g-josephs-journey?utm_campaign=p_lico+share-sheet&utm_medium=social&utm_source=facebook&fbclid=IwAR1mlO4ECq2kjOPpTqWjpd6hVi924TloEJm6_KSvDyzli3Zt2mgOmVpNsWE
🟢CashApp: $17buttons

09/11/2025

Day 7- this is an important one to share .

While leukemia is the most common childhood cancer, brain and central nervous system tumors are the deadliest.
Brain tumors account for about 1 out of 4 childhood cancer diagnoses, but they are responsible for the highest number of cancer-related deaths in children! How sad is that?

Some brain tumors, like Diffuse Intrinsic Pontine Glioma (DIPG), are especially aggressive and currently have no cure. Same as glioblastoma.

Here are some symptoms to look for when it comes to cancer in the brain.

🎗️Headaches (often worse in the morning or when lying down)

🎗️Nausea and vomiting not explained by illness

🎗️Vision changes (blurred or double vision, abnormal eye movements)

🎗️Balance and coordination problems (clumsiness, trouble walking)

🎗️Behavior or personality changes (irritability, mood swings, loss of interest)

🎗️Memory or learning difficulties

🎗️Unusual sleepiness or fatigue

It's important to know this isn't Always cancer but awareness and knowledge saves lives. Early diagnosis is everything.

09/05/2025

09/05/2025

✨ Did you know? ✨

About 1 in 285 children in the U.S. will be diagnosed with cancer before their 20th birthday. 💛

Childhood cancer is rare, but it impacts far too many families every single day. By spreading awareness, we can shine a light on the need for more research, better treatments, and stronger support for kids and their families.

📅 September is Childhood Cancer Awareness Month — let’s honor the fighters, support the families, and remember the angels. 💛🎗️

09/05/2025

In the United States, glioblastoma has an average annual age-adjusted incidence rate of 3.27 per 100,000 people, making it one of the most aggressive and prevalent malignant brain tumors. This rate reflects the urgent need for continued research and awareness to combat the impact of GBM.⁠

At the Glioblastoma Research Organization, we’re dedicated to funding research and providing resources for patients and families facing this diagnosis. Learn more about our mission at gbmresearch.org.

Source: Central Brain Tumor Registry of the United States (CBTRUS) Fact Sheet⁠ 2024

09/05/2025

We are only 121 letters away from our goal! Please take a minute and fill out this form to send letters to your representatives. Every voice matters!

https://actionnetwork.org/letters/voices-for-hunter-syndrome-take-action-now