03/31/2026
🎗️Endometriosis Awareness Month 2026🎗️
March 29 marks 3 years since my endometriosis excision surgery at Mayo Clinic Arizona with Dr. Megan Wasson, where stage IV deep infiltrating endometriosis was diagnosed and 33 lesions and areas were removed from my peritoneum. I’ve lost, thus far, 13 different organs and structures to this wildly under and misdiagnosed metastatic disease. From every pelvic ligament, vaginal reconstruction, the loss of my womb, an o***y, deep into my bladder and relying on catheters for months, to my kidneys, ureters, bowels and deep into the re**um, I still wouldn’t say that endometriosis has ravaged me - but I will shamelessly say that the over 90 OBGYN and ER visits, and every scan and test done being reported as “normal”, nearly cost me my life.
Endometriosis affects 1 in every 10 women and takes an average of 9 years to diagnose. This is not the patient’s fault. In fact, endometriosis is one of the easiest, quickest, and most accurate diagnoses a provider could make….if the patient is listened to. Yet to this day, there is not a single medication in existence that slows or stops the spread of the disease, nor does pregnancy or breastfeeding. And hysterectomy is the leading treatment offered, yet endometriosis is an extrauterine disease! With the advent of laparoscopy, physicians began burning the top of lesions as treatment, rather than excising lesions deep at the root, like cancer, to negative margins, leaving people torched from the inside with lesions growing deeper and deeper and the endo remaining ever present.
HEARD me. She and her team at .az.surgery meticulously excised deep lesions in my body for hours. I woke from surgery in less pain than I’d had for a decade prior. As a surgeon she has committed her life to evidence-based practice and she restored my life as a mother and as a midwife. I honor her.
I shared the weekend with close friends, including celebrating an Endo warrior’s 90th birthday! Since excision surgery restored my ability to sit on a saddle, I shared an hours long trail ride with another Endo warrior.
Painful periods are NOT normal!🎗️