05/23/2024
Please read and share.
As some of you know, Makena has struggled with her health since she was 16. She has been diagnosed with many rare and challenging neurological and pain conditions, including AMPS, hEDS, MCAS, POTS, and Periodic Paralysis. Makena has been accepted into a specialized treatment program at Re+Active, in Los Angeles. This program specializes in neurological and chronic pain conditions. The out of pocket cost is over $15,000.
In an effort to help raise money for Makena, Lauren and I have made a special piece of art. We call it “One in a Million”. This piece was inspired by Makena’s t-shirt design of a zebra butterfly. The zebra is the symbol of EDS and other rare diseases. In medical school, doctors are taught to look for horses, not zebras. This makes things very challenging for those who truly are zebras, living with rare conditions. Frequently the zebras are misdiagnosed, or told the pain and symptoms are in their head. Awareness is slowly growing, but treatment and acceptance in the medical community is still light years behind. Makena has always had an ability to make the most of her situation. She is a zebra among zebras, with a positive attitude and determination to not only persevere, but also to grow, improve, and to help others along the way. Much of Makena’s art is inspired by her painful and difficult journey through life. Our piece “One in a Million” reminds that beauty can be found in all things if we take the time to look.
DM me for orders.
“One in a Million” Original- $250
6”x8”x2” Pyrography and acrylic on handmade maple cradled board
8”x10” print- $20
Our goal is to sell at least 50 prints and the original. Please share with your friends and family.
You can also donate at https://www.gofundme.com/f/support-makenas-journey-to-recovery
