Layla’s fight with Biliary Atresia

Layla’s fight with Biliary Atresia Documenting my daughter’s journey with Biliary Atresia and her road to liver transplant surgery 💚

12/13/2025

There’s no place like home. I feel so relieved and grateful that we were able to go home. Organ transplantation is not a cure. It is a lifelong condition that requires ongoing management and close monitoring. The fear and trauma of losing your child never goes away. Every day, we hope for good numbers and that the new organ lasts a lifetime. 💚💚💚

12/12/2025

💚💚💚💚

12/12/2025
12/12/2025

We’re in recovery, resting comfortably. Hoping the pathology results helps our team understand what’s happening and how we can fix it. 💚

We’re here bright and early for a liver biopsy. The team is about 80% certain that we’re in rejection so we have been ad...
12/12/2025

We’re here bright and early for a liver biopsy. The team is about 80% certain that we’re in rejection so we have been admitted for steroid treatments to get her back on track.

Please send us all your positive thoughts. We could sure use it 💚💜💜💜

12/10/2025

Layla’s labs are elevated. We are going in on Friday for a liver biopsy. Please send us good vibes and healing thoughts 💚🥹

We had labs 🥼 🧪 today 🥰
12/01/2025

We had labs 🥼 🧪 today 🥰

09/29/2025

Because of an organ donor 💚

08/14/2025

Layla’s LFT’s are elevated. Concerns about rejection. We will be going in for a biopsy next week.

What’s insane is that she looks so good!

Hopefully we can figure out what the issue is and get us back on track 💚

We have zero cavities today 🥳
08/09/2025

We have zero cavities today 🥳

Awww they used my baby’s photo for this year’s Pediatric Transplant Center Family Celebration Day 2025 invitation cards ...
08/01/2025

Awww they used my baby’s photo for this year’s Pediatric Transplant Center Family Celebration Day 2025 invitation cards 🥰

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Methuen, MA
01844

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