
08/06/2025
🚨 BREAKING: The U.S. Senate is stepping up to support Alpha-Gal Syndrome research and awareness!
This week, the Senate Appropriations Committee advanced legislation that includes critical language directing the CDC to accelerate efforts to improve surveillance, patient care, and public awareness of Alpha-Gal Syndrome (AGS), with a strong emphasis on educating healthcare providers.
This is a major win for patients, families, and advocates across the country who’ve been pushing for federal recognition of the urgent public health challenge AGS poses. It also aligns directly with the CDC’s 2023 report outlining national priorities for tackling this growing issue. Let’s keep the pressure on and make sure this funding stays in the final bill. The fight isn’t over, but this is a huge step forward.
In the Missouri House earlier this year, I filed HB 986, legislation requiring clinicians to report confirmed cases of Alpha-Gal Syndrome (AGS) to the Missouri Department of Health and Senior Services (DHSS) and for the state to submit an annual aggregate report to the CDC. This level of surveillance is critical to help state and federal lawmakers make data-driven decisions on how best to address this serious and emerging public health threat. Unfortunately, the bill was killed before it could reach the finish line.
My office also successfully passed language designating the Month of May as Alpha-Gal Syndrome Awareness Month in Missouri — becoming the second state in the nation to do so.
Now, with momentum building in Congress, it’s time for Missouri to lead boldly at the state level. I urge my fellow legislators to join me in calling on DHSS, the Missouri State Medical Association (MSMA), and other key stakeholders to formally recognize Alpha-Gal Syndrome (AGS) as a public health priority by actively partnering with my office to:
✔️ Increase statewide surveillance
✔️ Expand provider education
✔️ Achieve earlier diagnosis
✔️ Support those already impacted
This is not a fringe issue — it’s a serious, life-altering condition impacting Missourians every single day. The stories are real. The consequences are profound. And the time for coordinated action is now.