CHES Foundation, Inc.

11/22/2025

The next Digital Digest is live! Heather has assembled great articles that explore the current ACA crisis, inhibitors with their variants and some updates about Marstacimab which shows promise for A and B!
We're highlighting the rescheduling of One Drop to February 27-March 1 of 2026 as well as Giving Tuesday. For a small non-profit, every resource counts as we continue into 2026 with the un-ending goal of supporting the 3 pillars of Women, Inhibitors and the Ultra-Rare. Consider donating to CHES the Tuesday after Thanksgiving. Even a small or reoccurring amount of $5 makes a massive difference in providing education, programming and support to those so that there are no financial barriers to attend our events.

Dive into the latest Digital Digest ➡️ https://ches.education/newsblog/2025/bdnews11-21-odpivot-2026-givtues

11/21/2025

This , we’re expressing our heartfelt gratitude to the incredible partners and funders who make CHES' vital programs and campaigns possible. With their support, we’re able to offer a wide range of resources, including in-person patient programming, education, and the latest insights on research and treatments.

CHES programs and campaigns made possible by our partners include:

𝗔𝗳𝘁𝗲𝗿 𝘁𝗵𝗲 𝗦𝗵𝗼𝗰𝗸: Family camp offering essential support to parents and caregivers of children with hemophilia and inhibitors.

𝗟𝗮𝗱𝘆𝗕𝘂𝗴𝘀: Empowering women aged 16+ with SHEmophilia who are diagnosed with a clotting factor/platelet deficiency, care for someone, or carry any other bleeding disorder.

𝗢𝗻𝗲 𝗗𝗿𝗼𝗽: Rare bleeding disorders consortium for individuals and immediate family members.

𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗖𝗼𝗻: Supporting children, teens, and adults living with an inhibitor, as well as caregivers and family members.

𝗦𝗛𝗘𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮: Awareness campaign highlighting the unique experiences of women with bleeding disorders.

𝗛𝗲𝗿𝗺𝗮𝗻𝗮𝘀 𝗱𝗲 𝗦𝗮𝗻𝗴𝗿𝗲: Awareness campaign providing culturally-relevant support for Hispanic women, girls, and menstruators with bleeding disorders.

We'd love to hear from you—share which of our campaigns and programs you’ve benefited from and your experience in the comments below! Let's continue to spread gratitude and positivity within the CHES community 🫶✨

Stay tuned as we prepare our 2026 calendar of events! 📅

11/19/2025

As we approach the holidays and often test and exam season for most students, stress and pressure creep in on families at the most hectic time of year. Patience is often a virtue 🤪, it's a cliche but finding that family balance of teaching and independence is ever so important. Dr. Gary McClain wrote a fantastic article for our 2024 LifeLines for Health edition that we are showcasing this week on exactly this scenario.

🚨Explore this article and more on our LFH Blog ➡️ https://ches.education/lfh-blog/2025/11/18/teach-indep-gary

11/15/2025

¡La próxima sesión de Hermanas de Sangre será el 15 de diciembre de 2025 a las 20:00 horas! “Managing Our Emotional Well-Being amid the Current Political and Migratory Climate”/ Manejo de nuestro bienestar emocional en media del actual climate politico y migratory.

Si ya te has registrado anteriormente, no necesitas volver a hacerlo.
¿Eres nueva en Hermanas de Sangre? Obtén más información aquí e inscríbete para la próxima reunión: https://ches.education/hermanas-de-sangre

Carolina Castillo, LPC, LMHC, BC- CMHC
La profesión de la consejería fue el camino que eligió con el propósito de brindar apoyo a personas en crisis emocional; hacerlo es una pasión que descubrió desde muy joven. Carolina tiene más de 15 años de experiencia trabajando con niños, adolescentes y adultos que enfrentan una amplia variedad de trastornos de salud mental o que atraviesan crisis en sus relaciones interpersonales, en el trabajo, en la paternidad u otras propias de las diferentes etapas de la vida.

11/14/2025

This , we’re expressing our gratitude for the groundbreaking research and medical advancements driving the future of bleeding disorder treatments 🔬🩸

In fact, in the past few weeks alone, we’ve highlighted some exciting updates in the Lifelines for Health Digital Digest! From progress in gene therapy to new perioperative studies on patients with bleeding disorders, these innovations not only offer hope but also pave the way for a brighter, healthier future for our community.

With so much happening in the dynamic world of bleeding disorders, it can feel overwhelming to keep up! Stay informed by subscribing to our online mailing list and receive the latest updates directly to your inbox: https://ches.education/communications-profile-form

What are your thoughts on the latest innovations in the world of bleeding disorders ? Share your insights and join the conversation below! 👇

11/12/2025

In honor of National Family Caregivers Month, we at CHES want to spotlight the incredible strength and resilience of caregivers like Ashley Hall, who navigates the challenges of raising a child with a rare bleeding disorder. Ashley’s journey with her son Maverick, who developed inhibitors shortly after birth, has been one of strength and perseverance.

𝗔𝘀𝗵𝗹𝗲𝘆’𝘀 𝗦𝘁𝗼𝗿𝘆:
When Maverick was diagnosed with inhibitors, Ashley felt lost and overwhelmed. Despite her familiarity with hemophilia, the new diagnosis plunged their family into unknown territory. Fortunately, they found solace and support through CHES programs. Ashley shares how attending CHES’ After the Shock inhibitor family camp offered a lifeline, providing a safe space to connect with other families, gain clarity, and receive much-needed guidance.

Ashley’s experience underscores the importance of community and support. Through shared experiences, families like hers find strength and hope, knowing they are not alone in their journey. As Ashley beautifully puts it, “Nobody should fight inhibitors alone.”

Join us this month in celebrating caregivers by acknowledging their impact and dedication. Share your own stories or tag a caregiver who inspires you! 💪❤️

11/12/2025

ROSS SAYS PIVOT! So, we're pivoting! The air travel disruption has given us a great challenge to overcome and we have made the very difficult decision to move One Drop 2025 in Tampa this weekend to February 27-March 1st of 2026. Be sure to check your email if you were attending and respond to the new dates questionnaire as we need your commitment to process flights accordingly. Luckily, the airlines are still being flexible but unknown for how long. We will open applications again in early January to accept a small number of slots that open up. If you applied and were accepted/waitlisted, you will NOT need to apply again!

Thank you all to those who responded to the flash poll and reached out to us individually to express your caution, sentiments and situations. We couldn't have arrived at this point without the honesty and transparency of the Ultra-Rare community. SAFETY was the main driver behind our decision and the thought of families stranded in different parts of the country when dealing with chronic conditions was really just a no-brainer.

https://ches.education/one-drop ⬅️ More about the conference and the new dates!

11/07/2025

Get ready for an insightful edition! Heather dives into the emotional challenges of living with chronic conditions and the importance of sharing the mental load this holiday season. Plus, get excited for our One Drop conference in Tampa, happening NEXT WEEK, November 14-16! Stay tuned for updates on our 2026 events and learn about our successful removal of an unauthorized GoFundMe page.

Get caught up in the latest Digital Digest! 👉 https://ches.education/newsblog/2025/bdnews11-7-gfmupdate-emotional-holidayload

11/07/2025

This November, join us every Thursday as we launch our series! 💜

As we enter the season of giving and reflect on 2025, we’ll shine a light on the incredible advancements, unwavering support, and inspiring individuals that make our community remarkable. From breakthroughs in treatment to the selfless dedication of healthcare professionals and caregivers, there's so much to be grateful for.

We invite you to share your gratitude by tagging those who inspire you or by mentioning the moments that have made a difference in your life. Let’s spread positivity and appreciation throughout the CHES community! 🙏✨

11/04/2025

This November, we honor the unsung heroes—the caregivers. At CHES, we recognize the vital role caregivers play in the lives of those with rare, chronic disorders. They are the backbone of support, offering love, patience, and resilience every day.

Throughout November, we’ll be sharing spotlight stories, tips, and resources to support and uplift our caregiving community. Join us in celebrating the dedication and strength of caregivers who make this possible ❤️

Is there a caregiver in your life you’d like to recognize? Tag them below and let everyone know what makes them special! 👇

10/29/2025

We're only two weeks away! The agenda 📋 is here for One Drop 2025 in Tampa 🌴 There will be so many professionals joining us for the weekend to share their subject matter knowledge on Ultra Rare Factor and Platelet conditions. Use the link below to see what the weekend has in store!

https://ches.education/s/Agenda-One-Drop-2025.pdf

A BIG thank you and appreciation to Novo Nordisk for being our legacy Platinum Sponsor for One Drop as well as the F7 Retreat and GT Symposia through out the years.

Silver Sponsor 🥈 -

Friends - CVS Health , Hemophilia Drugco Health, , Optum and Soleo Health

10/28/2025

We're featuring the most impactful articles from our 2024 LifeLines for Health publication as we ramp up to release the LFH 2025 edition! Written by Dr. Joanna Davis, this article highlights the lack of awareness for women affected by a bleeding disorder and what can be done to further affect change for females in this community.

Read more articles from all LifeLines editions here: https://ches.education/lfh-blog

Christopher Brewer October 28, 2025 The Future of Care for Women with Bleeding Disorders - LFH 2024 Issue Christopher Brewer October 28, 2025