CHES Foundation, Inc.

09/04/2025

This virtual session is intended for individuals and caregivers of Hemophilia A/B with or without an Inhibitor, but we welcome anyone who lives with, manages, or treats a bleeding disorder.

https://ches.education/sanofi-qfitlia-webinar-9-9-25 ⬅️ Sign Up Here: September 9, 2025 @ 7:30pm EST

*Due to privacy protections, this session is closed to industry members who do not live with or manage a bleeding disorder, but a scrubbed recording may be requested by signing up.

08/29/2025

Woah what a big update! We saw sooooo many amazing people at BDC! Those who we've known and loved for years and lots of new folk who will be joining us at our future events! The team met an INCREDIBLE amount of Ultra-Rares! It was an honor to be able to co-facilitate two sessions this past weekend on Inhibitors. If you saw a velociraptor walking around, don't worry they're still extinct. It was just Eric!

The full release of the PAV Project (Patient Advocacy Project) with Jane Smith, Eric Racine and Sanofi is up and live! https://www.buzzsprout.com/2303007/episodes/17705710

CHES was also featured on BloodStream podcast!
Listen to board members Dr. Joanna Davis and Barb Forss, and community member Jeffrey Moualim, talk about CHES and the importance of keeping a continued focus on women and bleeding.
https://www.bloodstreammedia.com/bloodstream-episodes/actress-sami-rappoports-short-film-viii-plus-jeff-amp-barb-with-dr-joanna-davis

Hi friends, Thank you to Christopher for stepping in while I was traveling for work (LadyBugs and NBDF's BDC) and fun (college tours, gulp.) As Christopher mentioned, we had a tremendous LadyBugs event! Thank you to the industry partners who stepped up to build a bridge betwe

08/21/2025

If you miss InhibitCon West in Oregon you're sure to be left behind on the trail with a broken axle, no oxen, and dysentery. Apologies, that's a bit extreme but this not a time to skip out on attending the ONLY National Inhibitor Conference! Applications are open but not for much longer with spots filling up FAST!
Leverage component with GutMonkey and a one day Camp Collins excursion with a night in Portland!

Sign up at: https://ches.education/inhibitcon ⬅️ If you attended East, you CAN attend West!

08/19/2025

T-Minus 24 hours until the CHES team is in Aurora for NBDC 2025! Make sure to stop by our booth and say "hello" and ask us about the events we do for the inhibitor community, women with bleeding disorders and Ultra-Rare bleeding disorders! If you know someone who would benefit from our educational programs, direct them our way!

We are also co-facilitating two sessions!
8/22 - Inhibitors and Velociraptors Session: 4-5pm
8/23 - Understanding & Managing Inhibitors: Resources, Education, and Support: 9-10:30am

08/18/2025

Thank you Jennifer DeGlopper for such an amazing article! Beautifully written to reflect all aspects of WWBD's and how important LadyBugs 🐞 is each year!

This year's LadyBugs conference underscored the need for connection among women with bleeding disorders, says columnist Jennifer Lynne.

08/15/2025

We're back with another Digital Digest! This bi-weekly newsletter features a glimpse in to the PAV Project, a collaboration between CHES Foundation and Sanofi bringing Patient Voices to the forefront. The entire CHES team will also be at NBDC this upcoming week where we will be co-facilitating not one but TWO sessions during the weekend that focus solely on Inhibitors!

This edition is chock of the happenings with CHES and news in the bleeding disorder community. Be sure to check them out and head on over to our News blog to read more of the Digital Digest editions we post! https://ches.education/news

Hi All! Stepping in for Heather this week! CHES's annual women's event, LadyBugs, was a HUGE success! With over 50 women in attendance, in addition to 20+ speakers and exhibitors the weekend just flew by but so many memories were made! The need for a fully-funded, national meeting clearly shines th

08/13/2025

🎙️ Meeting the Unmet: CHES Foundation’s Bold Approach to Patient-Centered Solutions
What happens when an advocacy group reimagines education and support from the ground up—with patients, not just for them? In this inspiring episode of Patient Advocacy Voices, host Eric Racine and co-host Jane Smith speak with Janet Brewer, Co-Founder & Executive Director of the CHES Foundation, about how a single question—“What do our patients need that no one else is delivering?”—sparked a wave of innovation in the inhibitor, ultra-rare and women with bleeding disorders community.

Janet shares how CHES (Connecting, Helping, Empowering, Serving) identified deep gaps in care, education, and belonging—and filled them with creative, data-driven programs tailored to underserved patients and caregivers. From a one-of-a-kind camp for children with inhibitors to turning conferences into educational celebrations with disco bingo trivia, CHES is breaking molds and setting new standards for impact.

Stay tuned for the official release later in August of the full podcast episode!

08/08/2025

We would like to thank all of our sponsors who made the LadyBugs Program possible in 2025. We're kicking it off in Salt Lake City this weekend!

And a special "thank you" to Jan Western and the entire Utah Hemophilia Foundation for their partnership and hospitality in their own backyard - demonstrating that we're all stronger together.

Silver: Novo Nordisk, Sanofi, & Takeda
Bronze: HEMA Biologics

About LadyBugs
LadyBugs empowers women managing a bleeding disorder, personally (and as a caregiver) by providing various tools/resources so they can get the support equitable to men with bleeding disorders.

08/04/2025

Inhibitors? We gotchu. CHES is headed west to Portland, OR for InhibitCon with GutMonkey for our second Inhibitor Conference of the year! Leverage returns with a one day pre-event meeting packed with as much as we could from the original program. Space will be limited for the Leverage portion but the full conference will have MANY spots!

Want to apply? We have various different attendance scenarios and who qualifies on the InhibitCon homepage and in the application form itself. Use the link below to head on over to our website to find the application link and more FAQs!

Hema Biologics - Platinum Legacy Sponsor
Novo Nordisk - Platinum Sponsor
Sanofi US - Diamond Sponsor

https://ches.education/inhibitcon

CHES Foundation, Inc understands at a personal level the obstacles and challenges that coincide with living with an inhibitor as caregivers and adults. We live with inhibitors too. Our goal is to equip you with the tools necessary to thrive with an inhibitor diagnosis despite the many bumps in the r...

08/01/2025

Friday means Digital Digest News! This edition we're featuring Sanofi's support of a new documentary to be released and produced by Believe Ltd that hopes to shed more spotlight on Women with Hemophilia and how they are overlooked and ignored by healthcare providers.

We also take a look at a promising treatment that is being tested for Hemophilia A and B with inhibitors as well as an update from WFH on the uptake of gene therapy.

Read more of our news blog posts here: https://ches.education/news

Greetings, CHES's annual women's event, LadyBugs, is happening next week in Salt Lake City! As you know from my Call to Action in our last edition, we had a truly impressive number of women who applied. And we had to waitlist over 2/3 of them due to funding restraints. The tremendo

07/26/2025

InhibitCon West registration goes live August 4th at 12pm EST! We've been so excited and grateful that we can provide not one but TWO Inhibitor Conferences on each coast this year. AND we get to partner with GutMonkey in their home arena of Portland, OR.

What is even more thrilling is that Leverage returns with a pre-event a day early before the full conference. Use the link below to learn more about the weekend!

https://ches.education/inhibitcon