Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

05/29/2026

We’re excited to have our first posts on the brand new RSDSA Message Board! 💬

→ onekountrygirl and sarahgonzales both write about spinal cord stimulators 🩻

→ sunshinesideoflife discusses the 25th anniversary of her diagnosis as she prepares for her birthday 🎂

→ cindyb asks about ketamine troches 🟥

Join the conversations, and ask your own question, by visiting messageboard.rsds.org.

05/29/2026

As of Friday, May 29th, Ambros Therapeutics' neridronate trial (details here: https://bit.ly/4uOQEZJ) now has ten sites.

Please keep an eye on their study page (https://bit.ly/4u7YSfa) as new trial sites are rolling out regularly!

→ Phoenix, AZ
→ Tucson, AZ
→ Napa, CA (new)
→ Tustin, CA
→ Brandon, FL
→ Pembroke Pines, FL
→ Newnan, GA
→ Orland Park, IL
→ Wilmington, NC
→ Winston-Salem, NC

05/28/2026

Thank you to Ambros Therapeutics for serving as a Gold Sponsor of RSDSA's 7th Annual Walk for CRPS!

We can't wait to see everyone out and about on June 6th. It is not too late to register: https://secure.qgiv.com/event/walkforcrps

05/26/2026

RSDSA is proud to announce a new message board community at https://messageboard.rsds.org

The message board community is intended to provide a moderated and supportive environment for individuals affected by CRPS, including patients, caregivers, friends, family members, and advocates.

We know many members of the community are not active on social media, but are still looking for online connection and peer-to-peer support. Our new message board aims to achieve those goals while also providing even more assistance and faster response times to your important questions.

Join for free today at https://messageboard.rsds.org

05/22/2026

As of Friday, May 22nd, Ambros Therapeutics' neridronate trial (details here: https://bit.ly/4uOQEZJ) now has nine sites.

Please keep an eye on their study page (https://bit.ly/4u7YSfa) as new trial sites are rolling out regularly!

→ Phoenix, AZ
→ Tucson, AZ
→ Tustin, CA
→ Brandon, FL
→ Pembroke Pines, FL
→ Newnan, GA
→ Orland Park, IL (new)
→ Wilmington, NC (new)
→ Winston-Salem, NC

05/21/2026

Applications are due today! ↓

Living With RSDS, Inc. is covering the $250 room fee for two YAWR attendees.

05/20/2026

Today on the RSDSA blog we hear from Mia Lane whose daughter developed at 13 years old.

Read on as she discusses receiving an early diagnosis, her daughter's treatment protocol, and her journey to remission. ↓

There is hope. Remission is possible. With the right medical support, early intervention, and determination, recovery can happen.

05/18/2026

Learn more about TCAPP's Karen “Lexi” Alexandra Richards Uslu Scholarship.

This $2000 scholarship is for:

→ A person with a chronic complicated illness that has impacted their daily life.
→ Someone who shows an interest in writing, journalism, advocacy, photography, health related policy or health related field.
→ Can be for undergraduate or graduate education.

Apply by June 30, 2026. ↓

Karen “Lexi” was 9 years old when her mom helped to start TCAPP. She was diagnosed with many disorders such as: CRPS (Complex Regional Pain Syndrome), EDS (Ehlers Danlos Syndrome), IIH (Idiopathic Intracranial Hypertension), Dysautonomia (POTS, Gastroparesis), ACTH Deficiency, Bipolar and many o...

05/15/2026

As of Friday, May 15th, Ambros Therapeutics' neridronate trial (details here: https://bit.ly/4uOQEZJ) now has seven sites.

Please keep an eye on their study page (https://bit.ly/4u7YSfa) as new trial sites are rolling out regularly!

→ Phoenix, AZ
→ Tucson, AZ
→ Tustin, CA
→ Brandon, FL (new)
→ Pembroke Pines, FL
→ Newnan, GA
→ Winston-Salem, NC

05/14/2026

Watch as Gabi Baylor, APCC, CRC answers questions related to CRPS and mental health and also discusses her 20-year CRPS journey. This insightful conversation involves topics such as grief, jealousy, guilt, relationships, and much more.

The worksheet she referenced during the livestream can be found here: https://bit.ly/4dft6rf

05/14/2026

Join us tonight at 7PM Eastern! ↓