Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

09/30/2025

Amberly Lago will speak at RSDSA's Treating the Whole Person: Optimizing Wellness Conference on October 25th!

Her session is titled From Hurt to Hope: The Path to Joy. Amberly is no stranger to RSDSA and we know her mindfulness session will be provide encouragement to fellow CRPS Warriors.

Register for the conference, book your room at the Sheraton DFW Airport Hotel, read our FAQs, and view the full agenda here: https://rsds.org/2025-conference

The deadline to book your room in order to receive the $154/night rate and breakfast on Saturday is Thursday, October 2nd.

09/30/2025

Today is the final day to vote for Zanny in this year's Rare Artist Competition: https://www.research.net/r/2025RareArtist

Remember, Zanny is the only Warrior in this year’s competition!

Congratulations to Warrior Zanny Nicholas for becoming a finalist in the 2025 Rare Artist Program by the EveryLife Foundation for Rare Diseases. Zanny entered an original song she wrote about the struggles of living with CRPS titled “Alive Again.”

She is the only Warrior to be a finalist in this year’s competition!

Public voting is open between September 22nd-30th. We will be sure to remind the community so we can all support Zanny: https://www.research.net/r/2025RareArtist

Listen to the song here: https://everylifefoundation.org/portfolio-item/alive-again/

09/29/2025

Stephen Bruehl, PhD and Norman Harden, MD will speak at RSDSA's Treating the Whole Person: Optimizing Wellness Conference next month! Their session will go over the latest advancements in CRPS research.

According to our 2025 community survey, research is the number one topic the community wants us to focus on in the future (no surprises there!).

Register for the conference, book your room at the Sheraton DFW Airport Hotel, read our FAQs, and view the full agenda here: https://rsds.org/2025-conference

The deadline to book your room in order to receive the $154/night rate and breakfast on Saturday is Thursday, October 2nd.

09/26/2025

Don't forget to vote for Zanny by Tuesday, September 30th: https://www.research.net/r/2025RareArtist

Remember, Zanny is the only Warrior in this year’s competition!

Congratulations to Warrior Zanny Nicholas for becoming a finalist in the 2025 Rare Artist Program by the EveryLife Foundation for Rare Diseases. Zanny entered an original song she wrote about the struggles of living with CRPS titled “Alive Again.”

She is the only Warrior to be a finalist in this year’s competition!

Public voting is open between September 22nd-30th. We will be sure to remind the community so we can all support Zanny: https://www.research.net/r/2025RareArtist

Listen to the song here: https://everylifefoundation.org/portfolio-item/alive-again/

09/25/2025

Peter Moskovitz, MD will speak at RSDSA's Treating the Whole Person: Optimizing Wellness Conference one month from today!

His session, Treating the Whole Person Begins with Trust, will be a conversation about doctor and patient relations.

Register for the conference, book your room at the Sheraton DFW Airport Hotel, read our FAQs, and view the full agenda here: https://rsds.org/2025-conference

The deadline to book your room in order to receive the $154/night rate and breakfast on Saturday is Thursday, October 2nd.

09/23/2025

Treating the Whole Person: Optimizing Wellness Conference is one month away!

Don't forget that the deadline book your room in order to receive the $154/night rate is Thursday, October 2nd: https://rsds.org/2025-conference/.

You can also register for the conference, book your room at the Sheraton DFW Airport Hotel, and read the full agenda via the link above ↑

Our speakers include:

→ Pradeep Chopra, MD - Managing CRPS in Adults and Children
→ Peter A. Moskovitz, MD - Treating the Whole Person Begins with Trust - Conversation about doctor and patient relations
→ Lisa Van Allen, PhD - Self-Advocacy
→ Miller Kerr - Advocacy & Events: Finding Hope Through the Pain
→ Sue Pinkham of The Coalition Against Pediatric Pain - Caregiver Connect
→ Amberly Lago - From Hurt to Hope: The Path to Joy
→ Stephen Bruehl, PhD and Norman Harden, MD - CRPS Research Discussion
→ Understanding the Impact on Upcoming Medicaid Changes
→ Dr. Joshua Prager of California Pain Medicine Center- CRPS: Things You Wish Someone Had Told You
→ Bryan Pope, Esq. of The Cochran Firm Dallas/Ft. Worth/Houston - Can the Legal System Help Me?

📧 Send all questions and sponsorship/expo inquiries to info@rsds.org.

09/23/2025

Thank to everyone who attended D-Shee by the Sea - Walk & Stroll to Support CRPS Awareness as the inaugural event in Ocean City, NJ was a success! Our executive director and board members loved connecting with Daniel (D-Shee), his family, and friends. 🧡

09/22/2025

It’s time to vote for Zanny! Be sure to cast your vote through September 30th at https://www.research.net/r/2025RareArtist

Remember, Zanny is the only Warrior to be a finalist in this year’s competition!

Congratulations to Warrior Zanny Nicholas for becoming a finalist in the 2025 Rare Artist Program by the EveryLife Foundation for Rare Diseases. Zanny entered an original song she wrote about the struggles of living with CRPS titled “Alive Again.”

She is the only Warrior to be a finalist in this year’s competition!

Public voting is open between September 22nd-30th. We will be sure to remind the community so we can all support Zanny: https://www.research.net/r/2025RareArtist

Listen to the song here: https://everylifefoundation.org/portfolio-item/alive-again/

09/17/2025

"Being out of severe pain is a blessing, but I work hard every day toward ensuring my brain doesn’t recall the pain of what I hope is in the past."

You must grab onto and not let go of even the smallest thing that takes your mind away from CRPS or any other problem you may have.

09/16/2025

Watch our livestream with Dr. Anita Davis. Be sure to check out the USA TODAY article she is quoted in: https://bit.ly/48eBZyO