ALS Worldwide

ALS Worldwide Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United Stat

es and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

💙 Every gift to ALS Worldwide helps provide free care, counseling, and support for those living with ALS and their famil...
07/28/2025

💙 Every gift to ALS Worldwide helps provide free care, counseling, and support for those living with ALS and their families.

You can make a difference. 💫

🙏 Donate today and bring hope to those who need it most.

👉 https://alsworldwide.org/donate/

📖❤️ "Love and work, Freud's message for a meaningful life, came through as Ben understood that being with his son and wo...
07/22/2025

📖❤️ "Love and work, Freud's message for a meaningful life, came through as Ben understood that being with his son and working on the film filled his life with purpose." — Barbara Byer, ALS Worldwide Founder.

To read a mother’s story of life before, during, and after her adult child’s ALS diagnosis, order your copy of Shatterproof: A Mother’s Memoir of Love and Loss.

Get your copy in paperback 📖 or ebook 📱: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00
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🗣️ Your voice matters.By sharing your ALS journey, you can inspire others, foster connection, and help someone feel less...
07/17/2025

🗣️ Your voice matters.

By sharing your ALS journey, you can inspire others, foster connection, and help someone feel less alone. 💬💙

Tell your story with ALS Worldwide and be part of a global community of strength and support. 🌍

👉 https://alsworldwide.org/share-your-story/

📘 The ALS Protocol e-book is a free, easy-to-understand guide for individuals and families navigating ALS.Download your ...
07/14/2025

📘 The ALS Protocol e-book is a free, easy-to-understand guide for individuals and families navigating ALS.

Download your copy today and take the first step toward better understanding and support. 🧭💙

👉 https://alsworldwide.org/resource/als-protocol-e-book/

"None of these — ALS patient, disabled, dying — are very far up on the list of words I use to describe myself. There’s m...
07/12/2025

"None of these — ALS patient, disabled, dying — are very far up on the list of words I use to describe myself. There’s more to me than my disease." — Sarah Coglianese

📘 Get inspiration from patients' stories — and reliable information on ALS treatments and therapies — in Pathways Through the ALS Storm: An ALS Worldwide Publication.

📚 Get your copy in paperback or ebook: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

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💬 Living with ALS is hard. You don’t have to do it alone. ALS Worldwide offers free, compassionate counseling for indivi...
07/09/2025

💬 Living with ALS is hard. You don’t have to do it alone. ALS Worldwide offers free, compassionate counseling for individuals living with ALS and those who love them. 💙

Reach out today. We’re here for you. 🤝

👉 https://alsworldwide.org/counseling/

📣 Our FY2025 Impact Report is now available! 🙌In the past year, we've provided counseling to 180 people living with ALS ...
07/03/2025

📣 Our FY2025 Impact Report is now available! 🙌

In the past year, we've provided counseling to 180 people living with ALS as a patient, family member, or caregiver. 💙

We’re so grateful for our supporters and the incredible ALS community for making this work possible! 🙏

📥 DOWNLOAD the Impact Report from the About Us page: https://alsworldwide.org/about-us/

💙 Make a Difference for Those Living with ALS 🙌Your gift brings hope, support, and critical resources to individuals and...
06/30/2025

💙 Make a Difference for Those Living with ALS 🙌
Your gift brings hope, support, and critical resources to individuals and families affected by ALS around the world. 🌍 Every donation matters. Every act of kindness counts. 💫

🙏 Give today: https://alsworldwide.org/donate/

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"I have experienced cabin fever first hand, but I’ve also learned that you really don’t need to leave the house every da...
06/27/2025

"I have experienced cabin fever first hand, but I’ve also learned that you really don’t need to leave the house every day, every week, or even every month to be content." ☀️ Read Amie Thornburg's story of patience and contentment and find strength in shared experiences. https://alsworldwide.org/family-story/half-a-stick-of-gum-is-all-you-need/ 💪 ✨

📖❤️ “Lifting his arms, holding a glass, buttoning his shirt challenged his hands. Perhaps he had suffered a mild stroke,...
06/25/2025

📖❤️ “Lifting his arms, holding a glass, buttoning his shirt challenged his hands. Perhaps he had suffered a mild stroke, I thought.” — Barbara Byer, ALS Worldwide Founder.

To read a mother’s story of life before, during, and after her adult child’s ALS diagnosis, order your copy of Shatterproof: A Mother’s Memoir of Love and Loss.

Get your copy in paperback 📖 or ebook 📱: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00
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🗣️ Your Story Matters. Your Voice Inspires. 💙Are you living with ALS or caring for someone who is? 💪✍️ Share your journe...
06/20/2025

🗣️ Your Story Matters. Your Voice Inspires. 💙
Are you living with ALS or caring for someone who is? 💪✍️ Share your journey, your strength, and your hope with others. Your experience can make a powerful difference. 🌟

📢 Tell your story: https://alsworldwide.org/share-your-story/

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