International Society for Quality of Life Research (ISOQOL)
Together, we are creating a future in which patient perspective is integral to health research, care and policy
ISOQOL is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, & patient research partners advancing health related quality of life research (HRQL).
07/29/2025
Time's running out! Don't miss out on the chance to get the best deal & join us for 2025. Early Bird Registration closes TOMORROW, 30 July at 6:59 pm CDT!
ISOQOL members have elected three new Directors-at-Large to serve on the Board of Directors. They will begin their term immediately following the 2025 Annual Conference. Please give a warm welcome to Dr. Kaur, Prof. Rutherford, and Prof. Terwee!
07/22/2025
Only one week remains to take advantage of the Early Bird registration rate! Don't miss out on this chance to save and secure your spot at 2025. Learn more: https://buff.ly/L50QZvy
07/18/2025
Registrants for 2025 can book hotel accommodations at a discounted rate within the room block at the Hyatt Regency Milwaukee. The room block closes in late September, so be sure to register and book today! https://buff.ly/3Alfjm9
07/15/2025
Concept definitions guide stakeholders and ensure all parties align on the intended meaning of items being translated. This research provides recommendations for the process of developing concept definitions in general, as well as specific recommendations on who should be involved in the process and what a concept definition document should contain. The intention of these recommendations is to standardize the development of concept definitions with the goal of enhancing conceptual equivalence across translations to support data pooling and provide confidence that clinical trial data are comparable, interpretable, and can be relied upon in evaluating clinical benefit of treatments.
Read the full JPRO article here:
Background Translation teams conducting translation and cultural adaptation find it paramount to properly describe concepts of items within clinical outcome assessments (COAs). To minimize potential threats to linguistic/conceptual equivalence, these teams must understand the concepts a COA intends....
07/14/2025
Network and dance with colleagues and friends at 2025! This year’s social event will take place at the conference hotel. Space is limited, so secure your spot today. Details at https://buff.ly/gr0aJHs.
07/10/2025
Don't forget: the QLR journal editors are now accepting submissions for the article collection "Quality of life in people with mental disorders – beyond global scores." Learn more at https://ow.ly/c4Q650WmZ3H.
There's still time to send in your application for an Associate Editor position with Quality of Life Research journal. We look forward to receiving yours!
Heads up: the ISOQOL office will be CLOSED this week on Friday, 4 July, in observance of the U.S. holiday, Independence Day.
06/26/2025
Last call! Submit your paper by Monday, 30 June, to be considered for the JPRO special issue on Patient and Public Involvement and Engagement. Details here: https://www.springeropen.com/collections/PPIE
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ISOQOL’s roots are found in the publication of the journal, Quality of Life Research (QLR), first published in February 1992. Two years later, ISOQOL was officially established as a nonprofit society whose purpose was to “promote the exchange of information about QOL and its investigation throughout the world.” To this day, ISOQOL endorses QLR as “an official journal of ISOQOL.”
The ISOQOL Annual Conference
The Inaugural ISOQOL Annual Conference convened on 3 February 1994 in Brussels, Belgium. The two-day meeting was attended by over 200 participants. The conference showcased 65 oral presentations and 72 poster presentations whose abstracts were published in Volume 3, Issue 1 of QLR.
During the conference, ISOQOL was formed in an inaugural business meeting open to the public. During this meeting, Drs. Donald Patrick (President) and Robert Kaplan (Vice President) led discussions regarding the society’s mission, name, bylaws, journal, functions, membership and future conferences. An official call for members was released the following August.
Growth and Expansion
Membership grew to include roughly 400 members by the year 2000. During this time, ISOQOL expanded its mission statement to say:
“The mission of ISOQOL is to advance the scientific study of HRQL and other PCOs to identify effective interventions, enhance the quality of health care and promote the health of populations.”
Membership and the field of HRQL research continued to grow. Today, membership has more than doubled since 2000. ISOQOL boasts multiple yearly events and numerous educational initiatives. In 2017, ISOQOL launched the Journal of Patient-Reported Outcomes (JPRO). JPRO is an open access journal owned and endorsed by ISOQOL.
Looking to the Future
In 2015, membership growth prompted ISOQOL Leadership to reevaluate ISOQOL’s stance as a society. In the following years, the Board added the patient research partner (PRP) membership type, revised the ISOQOL mission statement to include health care and policy, created a vision statement and patient engagement statement, and developed a five-year strategic plan.