International Society for Quality of Life Research (ISOQOL)

International Society for Quality of Life Research (ISOQOL) Together, we are creating a future in which patient perspective is integral to health research, care and policy

ISOQOL is a global community of researchers, clinicians, health care professionals, industry professionals, consultants, & patient research partners advancing health related quality of life research (HRQL).

Time's running out! Don't miss out on the chance to get the best deal & join us for   2025. Early Bird Registration clos...
07/29/2025

Time's running out! Don't miss out on the chance to get the best deal & join us for 2025. Early Bird Registration closes TOMORROW, 30 July at 6:59 pm CDT!

Register now at https://buff.ly/r0FxZAi.

ISOQOL members have elected three new Directors-at-Large to serve on the Board of Directors. They will begin their term ...
07/24/2025

ISOQOL members have elected three new Directors-at-Large to serve on the Board of Directors. They will begin their term immediately following the 2025 Annual Conference. Please give a warm welcome to Dr. Kaur, Prof. Rutherford, and Prof. Terwee!

Only one week remains to take advantage of the Early Bird registration rate! Don't miss out on this chance to save and s...
07/22/2025

Only one week remains to take advantage of the Early Bird registration rate! Don't miss out on this chance to save and secure your spot at 2025. Learn more: https://buff.ly/L50QZvy

Registrants for   2025 can book hotel accommodations at a discounted rate within the room block at the Hyatt Regency Mil...
07/18/2025

Registrants for 2025 can book hotel accommodations at a discounted rate within the room block at the Hyatt Regency Milwaukee. The room block closes in late September, so be sure to register and book today! https://buff.ly/3Alfjm9

Concept definitions guide stakeholders and ensure all parties align on the intended meaning of items being translated. T...
07/15/2025

Concept definitions guide stakeholders and ensure all parties align on the intended meaning of items being translated. This research provides recommendations for the process of developing concept definitions in general, as well as specific recommendations on who should be involved in the process and what a concept definition document should contain. The intention of these recommendations is to standardize the development of concept definitions with the goal of enhancing conceptual equivalence across translations to support data pooling and provide confidence that clinical trial data are comparable, interpretable, and can be relied upon in evaluating clinical benefit of treatments.

Read the full JPRO article here:

Background Translation teams conducting translation and cultural adaptation find it paramount to properly describe concepts of items within clinical outcome assessments (COAs). To minimize potential threats to linguistic/conceptual equivalence, these teams must understand the concepts a COA intends....

Network and dance with colleagues and friends at   2025! This year’s social event will take place at the conference hote...
07/14/2025

Network and dance with colleagues and friends at 2025! This year’s social event will take place at the conference hotel. Space is limited, so secure your spot today. Details at https://buff.ly/gr0aJHs.

Don't forget: the QLR journal editors are now accepting submissions for the article collection "Quality of life in peopl...
07/10/2025

Don't forget: the QLR journal editors are now accepting submissions for the article collection "Quality of life in people with mental disorders – beyond global scores." Learn more at https://ow.ly/c4Q650WmZ3H.

Heads up: the ISOQOL office will be CLOSED this week on Friday, 4 July, in observance of the U.S. holiday, Independence ...
07/01/2025

Heads up: the ISOQOL office will be CLOSED this week on Friday, 4 July, in observance of the U.S. holiday, Independence Day.

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Milwaukee, WI

Opening Hours

Monday 8am - 4:30pm
Tuesday 8am - 4:30pm
Wednesday 8am - 4:30pm
Thursday 8am - 4:30pm
Friday 8am - 4:30pm

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Our Story

ISOQOL’s roots are found in the publication of the journal, Quality of Life Research (QLR), first published in February 1992. Two years later, ISOQOL was officially established as a nonprofit society whose purpose was to “promote the exchange of information about QOL and its investigation throughout the world.” To this day, ISOQOL endorses QLR as “an official journal of ISOQOL.”

The ISOQOL Annual Conference

The Inaugural ISOQOL Annual Conference convened on 3 February 1994 in Brussels, Belgium. The two-day meeting was attended by over 200 participants. The conference showcased 65 oral presentations and 72 poster presentations whose abstracts were published in Volume 3, Issue 1 of QLR.

During the conference, ISOQOL was formed in an inaugural business meeting open to the public. During this meeting, Drs. Donald Patrick (President) and Robert Kaplan (Vice President) led discussions regarding the society’s mission, name, bylaws, journal, functions, membership and future conferences. An official call for members was released the following August.