UMDF has grown into a nationally recognized, non-profit organization and the Milwaukee Chapter works to advocate for the cause and support affected individuals. The goal of this Facebook Group is to connect those who are affected by mitochondrial disease and to provide them with an opportunity to network with one another and with friends, families and supporters in our area. If you or someone you care about are affected by mitochondrial disease, this group is for you! If you have questions about mitochondrial disease or are looking for a physician in your area, please contact the UMDF at info@umdf.org. Very Important - Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or could be removed from the group, depending upon the severity of the post. We want this to be a positive zone for our patients and families. Constructive input is welcome but destructive/negative comments that may affect the UMDF Mission moving forward is not -- and could be grounds for removal of the group member. Privacy Disclaimer: We do our best to protect the privacy of our members; however it is the responsibility of each user to determine what he/she shares on the Internet. On Facebook, each user may set his/her individual privacy preferences while each group determines their privacy settings by choosing whether it is an open, closed, or secret group. The UMDF Facebook Group is currently a closed group, which allows others see that the group exists, but blocks non-members from reading posts within the group. The administrators of the group must decide to accept or deny requests based on a limited amount of information, so please post responsibly. Before posting in a group, please ask yourself, “Am I comfortable with sharing that information with people I do not know?” You may also find Consumer Reports’ “Protect your privacy on Facebook” helpful: http://consumerreports.org/cro/facebookprivacy.htm. About the UMDF -- The mission of the United Mitochondrial Disease Foundation is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Visit www.umdf.org for more information!!! PLEASE NOTE: If you need something from the UMDF National Office, contact us at info@umdf.org or call 888-317-8633.
* The inclusion of links does not imply endorsement by the UMDF, unless stated otherwise. The UMDF makes no endorsement, expressed or implied, of any links to or from this group, nor is it responsible for the content or activities of any linked sites or comments/posts made by members of the group. Any questions or concerns should be directed to the administrator(s) of the group*
*Announcements of seminars, publications and other publicly available resources specifically designed to provide direction for patients and families in the care for their child and/or the adult patient may be posted. Please refrain from posting any sales items and/or advertisements.*
