International Ovarian & Testicular Stromal Tumor (OTST) Registry

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International Ovarian & Testicular Stromal Tumor (OTST) Registry

Welcome to the International Ovarian and Testicular Stromal Tumor Registry.

The Registry collects clinical and biological information about ovarian and testicular stromal tumors in an effort to learn more about treatment of these rare tumors. The International Ovarian and Testicular Tumor Registry was founded in 2011 to advance research and treatment of ovarian and testicular stromal tumors in children and adults to benefit patients and further the understanding of these rare tumors. This research is a collaboration between Children’s Hospitals and Clinics of Minnesota in Minneapolis, Children’s National Medical Center in Washington, DC, and the Dana Farber Cancer Institute in Boston.

12/31/2025

The International OTST Registry is continuing to grow! We are so grateful to all the individuals and families for participating in the Registry which is based at Children's Minnesota. More than 250 children and adults have now enrolled in The Registry from 40 U.S. states, 15 countries and six continents. To learn more about participation, you can visit us here: https://www.otstregistry.org/who-we-are/enrolling-in-the-registry/

11/28/2025

Happy Gratitude Month! Through the contributions of many Registry participants and their families, we have learned so much about these rare tumors. Your involvement is what makes these advancements possible, and we are forever grateful for your contribution to this research. With gratitude, The OTST Registry Team

09/12/2025

September is Cancer Awareness Month for ovarian cancer, childhood cancer and thyroid cancer. Each of these are a part of our ongoing research efforts to find more effective and less toxic treatments. This is a good time to ensure you are up to date on DICER1 surveillance if indicated based on your medical history! Also please consider enrolling in our International Ovarian and Testicular Stromal Tumor (OTST) Registry to help us find a cure for these rare cancers. Receive enrollment information by emailing us at OTST@childrensmn.org.

08/07/2025

Thank you to the Fund for an amazing weekend of tennis and for 40 years of support of OTST research! This year's theme was 40-LOVE reflecting the longstanding commitment of this group to advancing outcomes for kids with cancer and their families. Thanks to all for their amazing work, commitment and generosity!

07/31/2025

Our mailing address has changed but our mission remains the same! The Registry is still at Children's Minnesota, just a few steps from our prior location. Our new mailing address is: 2545 Chicago Ave., Suite 515, Minneapolis, MN 55404.

07/09/2025

Meet Brenya McNally, Clinical Research Associate for the International Ovarian & Testicular Stromal Tumor (OTST) Registry!

05/20/2025

Meet Paige Mallinger, Senior Clinical Research Coordinator for the International Ovarian & Testicular Stromal Tumor Registry!

05/13/2025

Thank you to everyone who joined our DICER1 Registry Symposium & Family Meeting! This year we merged our Family Meeting and DICER1 Scientific Symposium into one event. We welcomed over 200 patients, families, health care professionals and researchers from around the world to discuss the latest updates to our DICER1 surveillance guidelines and share the Registry's DICER1 Tumor Predisposition Surveillance Guidelines Patient Education document. If you haven't yet received a copy of our education document, connect with us at dicer1@childrensmn.org to learn more.

05/06/2025

The DICER1 Registry Symposium and Family Meeting is now live on Zoom. We look forward to having you join us today! Email DICER1@childrensmn.org or call 612-813-7121 if you require any technical support.

05/05/2025

Join us tomorrow for the DICER1 Registry Symposium and Family Meeting. We will be gathering virtually over Zoom from 9:00 a.m. to 1:00p.m. CDT to discuss DICER1 surveillance guideline updates, details about DICER1 testing, and novel approached. We hope to have you there!

Patient & Family Registration Link: https://us06web.zoom.us/webinar/register/WN_CksiUz5GTsu3BZ4WTZHOOA #/registration

Professional Registration Link (this link is required for any professional seeking continuing education credits): https://cmn.education.childrensmn.org/clinician-education/L050625VirtualDICER1Symposium

05/04/2025

Just two days away! We are excited to share updates related to the DICER1 surveillance guidelines, pass along our DICER1 surveillance education document, and discuss a variety of DICER1 related topics. To learn more and to register, visit our event site here: https://cmn.education.childrensmn.org/clinician-education/L050625VirtualDICER1Symposium

05/03/2025

Let the countdown begin! 3 days to go until the DICER1 Registry Symposium and Family Meeting.

Patient & Family Registration Link: https://us06web.zoom.us/webinar/register/WN_CksiUz5GTsu3BZ4WTZHOOA #/registration

Professional Registration Link (this link is required for any professional seeking continuing education credits): https://cmn.education.childrensmn.org/clinician-education/L050625VirtualDICER1Symposium

Address

Minneapolis, MN

Website

http://www.otstregistry.org/

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