International Ovarian & Testicular Stromal Tumor (OTST) Registry

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International Ovarian & Testicular Stromal Tumor (OTST) Registry

Welcome to the International Ovarian and Testicular Stromal Tumor Registry.

The Registry collects clinical and biological information about ovarian and testicular stromal tumors in an effort to learn more about treatment of these rare tumors. The International Ovarian and Testicular Tumor Registry was founded in 2011 to advance research and treatment of ovarian and testicular stromal tumors in children and adults to benefit patients and further the understanding of these

rare tumors. This research is a collaboration between Children’s Hospitals and Clinics of Minnesota in Minneapolis, Children’s National Medical Center in Washington, DC, and the Dana Farber Cancer Institute in Boston.

04/09/2026

The event is live! Join us today over Zoom for the 2026 DICER1 Symposium & Family Meeting. If you have any questions, please email DICER1@childrensmn.org.

04/08/2026

Join us virtually over Zoom tomorrow for the 2026 DICER1 Symposium & Family Meeting. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

04/02/2026

We are just one week out from the 2026 DICER1 Symposium & Family Meeting, which will be held from 9:00am to 1:00pm CT over Zoom on Thursday, April 9th. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

03/26/2026

The 2026 DICER1 Symposium & Family Meeting is quickly approaching. We look forward to gathering with you virtually over Zoom on Thursday, April 9th from 9:00am to 1:00pm CT. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

03/09/2026

Register today! Our DICER1 Symposium and Family Meeting will be happening on Thursday, April 9, 2026. We invite everyone - patients, families, health care professionals and researchers - to join us as we discuss the latest updates to our DICER1 surveillance guidelines.

General Registration: https://us06web.zoom.us/webinar/register/WN_a-_OveNrRtaBAxFYDZqa2A

Continuing Education Registration (CME [AMA PRA], ANCC, and NSGC CEUs): https://cmn.education.childrensmn.org/clinician-education/L040926DICER1SymposiumandFamilyMeeting

12/31/2025

The International OTST Registry is continuing to grow! We are so grateful to all the individuals and families for participating in the Registry which is based at Children's Minnesota. More than 250 children and adults have now enrolled in The Registry from 40 U.S. states, 15 countries and six continents. To learn more about participation, you can visit us here: https://www.otstregistry.org/who-we-are/enrolling-in-the-registry/

11/28/2025

Happy Gratitude Month! Through the contributions of many Registry participants and their families, we have learned so much about these rare tumors. Your involvement is what makes these advancements possible, and we are forever grateful for your contribution to this research. With gratitude, The OTST Registry Team

09/12/2025

September is Cancer Awareness Month for ovarian cancer, childhood cancer and thyroid cancer. Each of these are a part of our ongoing research efforts to find more effective and less toxic treatments. This is a good time to ensure you are up to date on DICER1 surveillance if indicated based on your medical history! Also please consider enrolling in our International Ovarian and Testicular Stromal Tumor (OTST) Registry to help us find a cure for these rare cancers. Receive enrollment information by emailing us at OTST@childrensmn.org.

08/07/2025

Thank you to the Fund for an amazing weekend of tennis and for 40 years of support of OTST research! This year's theme was 40-LOVE reflecting the longstanding commitment of this group to advancing outcomes for kids with cancer and their families. Thanks to all for their amazing work, commitment and generosity!

07/31/2025

Our mailing address has changed but our mission remains the same! The Registry is still at Children's Minnesota, just a few steps from our prior location. Our new mailing address is: 2545 Chicago Ave., Suite 515, Minneapolis, MN 55404.

07/09/2025

Meet Brenya McNally, Clinical Research Associate for the International Ovarian & Testicular Stromal Tumor (OTST) Registry!

05/20/2025

Meet Paige Mallinger, Senior Clinical Research Coordinator for the International Ovarian & Testicular Stromal Tumor Registry!

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Minneapolis, MN

Website

http://www.otstregistry.org/

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