Mama Bear Care, PO Box 123, Monument, CO (2026)

03/23/2026

Holoprosencephaly Awareness Week
🤍
March 22–28

Holoprosencephaly (HPE) is a rare condition that occurs very early in pregnancy, when the developing brain does not fully divide into two hemispheres.

The severity can vary widely, but HPE may involve:
• Portions of the brain that are missing or underdeveloped
• Differences in facial development (such as cleft lip/palate)
• Feeding and breathing challenges
• Seizures
• Vision and hearing impairments
• Developmental and learning delays

Some children are also diagnosed with related conditions such as:
• Pituitary or hormone disorders
• Hydrocephalus (fluid on the brain)
• Heart defects
• Chromosomal conditions (including Trisomy 13)

Many families who receive this diagnosis are told it is “incompatible with life,” and some are encouraged to end the pregnancy. It can even be difficult to find healthcare providers who are willing to care for these precious little ones.

This week, we remember Philip 🤍
A precious baby boy whose life, though brief, had a deep and lasting impact on so many others. He melted hearts. Everyone loved him. We miss you, Philip.

If Holoprosencephaly is part of your story, we would be honored to remember your baby with you.

✨ Share their name
✨ Share a photo or memory
✨ Tell us something special about them

03/21/2026

March 21 • World Down Syndrome Day 💙💛

Down Syndrome is the most common trisomy.
It's the one most people are familiar with.

Children with Down Syndrome are absolutely precious.
As they grow and learn, their unique personalities begin to shine in the sweetest ways.

They are some of the most joyful children you will ever meet.

Their lives are deeply worthy of love, protection, and care.
And while they may be a little different…
they are more alike than different
and made in the image of God.

If Down Syndrome is part of your story, please:

✨ Share your child’s name
✨ Post a photo or memory
✨ Tell us something that makes them special

Let’s celebrate them together.💙💛

03/20/2026

I had a wonderful Zoom call with one of our Mama Bear Mentors this week, Raquel Massey! Thank you so much Raquel for taking time to meet with me and share with me about Jolene and your story about your diagnosis, birth, and life as a medical mama.

We are not only honored to have Raquel on our blog, but also to have her skills as a Spanish speaker to provide a Spanish version of our blog post! I am so excited that many mama bears who speak Spanish will be able to read and benefit from Raquel and Jolene's story 💜

Here is an excerpt from our discussion: "At her one year she check up, the doctor said “I don’t know what to tell you anymore. She has proven me wrong every time, I told you that she was going to leave in about three days, about a month, about two months, about 6, about a year. Now she is 3 going on 4.”"

In Español: "En su chequeo del primer año, el doctor dijo: “Ya no sé qué decirte. Me ha demostrado que estaba equivocado cada vez. Te dije que viviría 3 días, luego un mes, luego dos meses, luego 6 meses, luego un año… y ahora tiene casi 4 años.”"

Read more about Raquel and Jolene in our newest blog post here: https://mamabearcare.org/raquels-story-a-full-time-medical-mama/

03/18/2026

March 18 is Trisomy 18 Awareness Day 🤍

Many moms are told this diagnosis is “incompatible with life.”
But these babies are so much more than a diagnosis…
they are deeply loved, intentionally created in the image of God, and each has a unique purpose. Often it’s teaching us a deeper kind of love and compassion.

While many Trisomy 18 babies do face serious medical challenges,
some go on to surprise the world in ways no one expected.

⸻

Today we are spotlighting one of those T18 surprises, a very special little girl…
Jolene Miracle Rose 🤍

Jolene is the daughter of our Mama Bear Raquel, and her life is a beautiful testimony that statistics don’t define everything.

She is now THREE years old!
Full of life, full of joy, and deeply loved. 🤍

Her story matters.
And so does yours.

⸻

Has Trisomy 18 touched your story?

We would love to honor your baby with you today:

• Tell us their name
• Share a photo or baby bump
• Share something special about them

⸻

If you know a mama walking this road…
please tag her or share this post so she knows she’s not alone.

Fierce Love. Tender Care.
From Diagnosis to Delivery
From Heartache to Hope 🤍

MamaBearCare.org

⸻

03/18/2026

March 18 is Trisomy 18 Awareness Day 🤍

Many moms are told this diagnosis is “incompatible with life.”
But these babies are so much more than a diagnosis…
they are deeply loved, intentionally created in the image of God, and each has a unique purpose. Often it’s teaching us a deeper kind of love and compassion.

While many Trisomy 18 babies do face serious medical challenges,
some go on to surprise the world in ways no one expected.

⸻

Today we are spotlighting one of those T18 surprises, a very special little girl…
Jolene Miracle Rose 🤍

Jolene is the daughter of our Mama Bear Raquel, and her life is a beautiful testimony that statistics don’t define everything.

She is now THREE years old!
Full of life, full of joy, and deeply loved. 🤍

Her story matters.
And so does yours.

⸻

Has Trisomy 18 touched your story?

We would love to honor your baby with you today:

• Tell us their name
• Share a photo or baby bump
• Share something special about them

⸻

If you know a mama walking this road…
please tag her or share this post so she knows she’s not alone.

Fierce Love. Tender Care.
From Diagnosis to Delivery
From Heartache to Hope 🤍

MamaBearCare.org

⸻

03/17/2026

Mama Bear Care News 💜

Maran graduated the NICU today to go to the RDH at Dell till her next HLHS surgery. They did a bubble graduation walk with her mom and dad.

03/16/2026

Dear Jesus,

I pray today for the mama bears whose lives have been affected by a diagnosis of trisomy for their baby. We know that this diagnosis is an earthquake to a mama who is eagerly awaiting the arrival of her new little baby, when all of the sudden the world shifts. Shift with her, Lord. Cover her in your kindness, your peace, and your assurance. What a doctor assures her is the worst, instead allow your glory to shine through every situation. Bring about a joy for the now, and help her to treasure every precious moment she has with her baby.

Now is a gift.

I pray for the mama bears who are delivering their babies soon. I pray that you lead the doctors and the nurses to know what is best and what is right. Guide their hands to be able to give the most amount of moments possible. For the mama bears, give them the strength to check in when it is so easy to check out. Make every minute precious and every photograph a treasure.

I pray for the mama bears who have experienced loss either while pregnant or after delivery. Be EVER PRESENT in their grief, wrapping your arms around them as they learn to hold on, and to heal. Over time, make the memories sweet and the grief more bearable as our mamas minister to others who are also facing grief.

I pray for the mama bears who are medical mamas! I praise you for these tenacious souls who pour out day after day, and I pray for their rest. Whether it is rest in the quiet moments or in a helper, provide for each medical mama's needs. You are our rest, and I pray that our rest is ultimately found in You.

Jesus, bless each and every mama who has received a diagnosis of trisomy for her baby, and I pray that You show them your glory in every moment. We believe that You have each of us in your arms, whether here on earth or in heaven, holding each mama and holding each baby. May that be a comfort to our souls.

In Jesus's holy name,

Amen

03/13/2026

Our mama bear's stories are stories in progress. Sometimes it is easy to think about a prenatal diagnosis as "something that happened to someone," but our mama bears need your prayers now, in the moment.

We have babies who are being born, babies in desperate need of faithful medical care, and we have babies who are now with Jesus, and mamas whose hearts are grieving.

Will you pray with us today for these precious families?

03/13/2026

⚠️URGENT PRAYER NEED!

Please stop and pray right now for the Shetler family. Their precious little boy, Zachary, has just come off ECMO. Please pray the Lord would strengthen his little body. He’s having a hard time getting regulated after open heart surgery last week. Especially lift up Jenny, his Mama Bear!🙏🏻💙
———

3/14/26 UPDATE:

“Praise be to God for our miracle today. Zachary is holding stable with minor adjustments to heart medications and his air support. Not out of the woods, yet…but these past hours have been such a blessing.” - From Zachary’s mom, Jenny
———

Thank you everyone, for your prayers for this Mama Bear & her Baby Bear! 🩷💙🐻

03/13/2026

March 13 is Trisomy 13 Awareness Day.

Trisomy 13 (Patau Syndrome) is often described as “incompatible with life.”
But every baby is compatible with love!

At Mama Bear Care, we walk alongside families facing life-limiting prenatal diagnoses offering support from diagnosis to delivery and from heartache to hope.

Today we remember these precious Trisomy 13 babies and the families who love them.

💛 Please share their names below so we can honor them together!

03/09/2026

March 9th is Trisomy 9 Awareness Day.

Trisomy 9 is a rare chromosomal condition, but for some of our mama bears, it’s a reality they may encounter as a prenatal diagnosis.

We are honored to share more information and provide support that brings hope to mama bears navigating this journey. If you’re holding onto hope after receiving a life-limiting diagnosis for your baby, please know you are not alone.

Our From Diagnosis to Delivery support group is open to mama bears so we can walk alongside you, offering encouragement and connection in this difficult time with a life-limiting prenatal diagnosis.

Join our community today: --> https://www.facebook.com/groups/diagnosistodelivery

Maybe you follow Mama Bear Care to support a friend or family member who had received a diagnosis. Consider becoming a vital part of our ministry! By becoming a donor, you ensure that families facing a Trisomy 9 diagnosis (or any life-limiting prenatal diagnosis) receive the support, resources, and encouragement they desperately need.

Join us as a donor today --> www.mamabearcare.org

03/06/2026

Today is March 6th, and our Mama Bear Care community knows that March is filled with Trisomy Awareness days. On March 6th, we recognize Trisomy 6 Awareness Day.

One of our own Mama Bear mentors experienced a diagnosis of Trisomy 6p Unique in her pregnancy with her dear Colette. In our reel, you will see both Nyssa and her sweet Colette. Read more about their story here --> https://mamabearcare.org/colette-cook-hasty/

Remember that each diagnosis of Trisomy or any other prenatal diagnosis is not just a diagnosis, but relates to a baby, a human of value in whom God has placed a purpose. We remember Colette, and we cherish other babies who have/have had this rare diagnosis.

Have you experienced a diagnosis of Trisomy 6? If you are presently pregnant or bereaved, we have support for your journey:

Our “From Diagnosis to Delivery” Facebook group is a support group providing a safe place for mamas who have received a life-limiting diagnosis for their babies to receive information and resources.

Join From Diagnosis to Delivery here → https://www.facebook.com/groups/diagnosistodelivery

Our “From Heartache to Hope” Facebook group is open to ANY mama who has experienced the loss of a pregnancy and/or child after birth.

Join From Heartache to Hope here → https://www.facebook.com/groups/fromheartachetohope

Mama Bear Care

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