WVU Mountain State Cystic Fibrosis Center

11/05/2025

Compass is a fabulous resource for our patients and their families!

Even if you plan to stick with the same health insurance next year, things can change.

Compass is here to help you review your options and make sure your plan works for you and your family: https://www.cff.org/support/get-help-cf-foundation-compass?utm_campaign=oe25&utm_source=facebook&utm_medium=social

10/25/2025

CFTR modulators have had a transformative impact for many people with cystic fibrosis. However, while these therapies represent a significant breakthrough, challenges still remain.

Sydney Willig shares her experience taking CFTR modulators, including Trikafta and Alyftrek, and how these therapies shaped her ability to live the life she wanted.

09/29/2025

We have invested an additional $3 million in ReCode Therapeutics to provide further support for an ongoing Phase 2 clinical trial of its inhaled messenger RNA therapy. The therapy has the potential to help all people with cystic fibrosis, including those with rare and nonsense mutations who do not benefit from modulators.

Messenger RNA therapy is designed to provide the correct instructions to lung cells to make functional CFTR protein. A dysfunctional CFTR protein is the underlying cause of CF.

09/18/2025

Looking for somewhere to connect with people who truly understand what life with cystic fibrosis is like?

CF Circles are virtual, peer-led discussions where adults with CF come together in small groups to share openly about their real-life experiences. Upcoming topics include living longer with CF and managing CF-related pain.

Explore upcoming sessions and register today: https://on.cff.org/CFCircles

09/11/2025

Cystic fibrosis patients rarely used to see age 30. Now, with this Iowa doctor's work, people are living well into their 80s — and even running.

07/22/2025

Getting to medical appointments shouldn’t be a barrier to your health. If you don’t have a car, can’t afford gas or parking, or just need a little extra help getting around — you're not alone. Nearly 1 in 10 people with CF lack reliable transportation, which may lead to delays in seeing their CF care team.

The good news? Help may be available.

Learn more about transportation assistance and other resources that can help you get the care you need: https://on.cff.org/44HBtHH

04/26/2025

…until it’s done!

🚨 For the first time EVER…

60% of people living with cystic fibrosis are adults.

This milestone is nothing short of historic — a reflection of groundbreaking treatments, dedicated researchers, tireless advocates, and you — our CF community.

What was once a childhood disease is now a lifelong journey — and we’re fighting to ensure that every person with CF has the opportunity to live a long, fulfilling life.

Together, we’re transforming what it means to live with CF.

04/26/2025

💜💜

🚨 For the first time EVER…

60% of people living with cystic fibrosis are adults.

This milestone is nothing short of historic — a reflection of groundbreaking treatments, dedicated researchers, tireless advocates, and you — our CF community.

What was once a childhood disease is now a lifelong journey — and we’re fighting to ensure that every person with CF has the opportunity to live a long, fulfilling life.

Together, we’re transforming what it means to live with CF.

04/21/2025

‼️ PLEASE READ ‼️
Due to an unfortunate rescheduled school event, the Morgantown Great Strides walk will no longer take place at St. Francis Catholic School!

The walk will now be held at HAZEL RUBY MCQUAIN MEMORIAL PARK located at 185 Garrett St. Morgantown, WV 26501.

DATE & TIME HAVE NOT CHANGED. We will see you on Saturday, May 10th at 11am for registration!

04/16/2025

Just a reminder… The apparel fundraiser closes Friday! Get your orders in for your CF Swag! 💜

04/11/2025

The WVU CF Team is hosting a fundraiser to raise funds for the annual Great Strides walk on May 10th! The link below has WVU Mountain State CF Center swag that can be purchased and shipped directly to you!

02/14/2025