Rocky Mountain Rett Association

02/01/2026

February 28th is Rare Disease Day, a day that is dedicated to raising awareness for rare diseases. Rett Syndrome is a rare disease, affecting approximately 1 in 10,000 females and even fewer males. Rett Syndrome is just one of many rare diseases that can often be overlooked or misdiagnosed, and it is important for our communities to come together and keep advocating and seeking change for our loved ones with rare diseases. 🧬💜

01/31/2026

RMRA's 8th Annual Mardi Gras Fête is just 3 weeks away!✨🎭

Support the Rett Clinic at Children's Hospital Colorado with an evening of celebration and giving.💜

Tickets: $110 per person • $1000 for a table of up to 10

Every ticket includes a souvenir Mardi Gras glass, our signature open bar and $100 in casino cash for gaming fun and free parking.

We can't wait to see you there! 💃🥂

Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets! 🎟

01/28/2026

Tomorrow is the last day to apply for the Rett Sibling Scholarship, sponsored by Acadia Pharmaceuticals Inc.

✨ For the 2026-2027 academic year, 10 scholarships of $5,000 will be awarded to eligible siblings of individuals living with Rett syndrome.

✨ The 2026 essay prompt asks applicants to describe a time they led by example, took initiative, or influenced change—even in a small or informal setting.

Visit RettScholarship.com to register and apply today!
Acadia Pharmaceuticals

01/25/2026

Don't miss RMRA's 8th Annual Mardi Gras Fête on Saturday, February 21st - this year at a new and exciting location!✨🎭

Proceeds from the event benefit the Rett Clinic at Children’s Hospital Colorado – to continue and expand operations, fund research, and support children and families who are affected by Rett Syndrome.

Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets. We can't wait to see you there! 💃🥂

01/20/2026

Join us for RMRA's 8th Annual Mardi Gras Fête, on Saturday, February 21st!✨🎭

✨ Savor delicious Creole-inspired cuisine
🥂 Enjoy our open bar
🎲 Try your luck at our lively casino tables
💃 Kick up your heels with DJ Trip after dinner
📸 Strike a pose in our fun-filled photo booth
🏆 Bid on incredible auction items
🤝 Celebrate with RMRA families, friends, and supporters

Tickets: $110 per person • $1000 for a table of up to 10

Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets today. If you cannot attend the event, but would still like to show your support, there is a donation option available. 💜

01/16/2026

Join us on Saturday, February 21st, for RMRA's 8th Annual Mardi Gras Fête! ✨🎭

Enjoy music, food, and drinks from the open bar all while supporting the Rett Clinic at Children's Hospital Colorado. 💜

Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets! 🎟

01/14/2026

https://rettsyndromenews.com/news/reveal-pivotal-trial-rett-gene-therapy-tsha-102-now-underway-recruiting/?mc_euid=f18992db2f&utm_source=RETT&utm_campaign=0533fb2e05-Email_ENL_US_RETT&utm_medium=email&utm_term=0_ca8f619b8e-0533fb2e05-75127345

The REVEAL clinical trial, testing Rett gene therapy candidate TSHA-102, has dosed its first participant, and is still enrolling at six sites.

01/11/2026

Registration is open now for RMRA's 8th Annual Mardi Gras Fête! Taking place at a new venue this year - Baldoria on the Water in Lakewood, CO! 💃✨🎭

Join us on Saturday, February 21st, to enjoy an evening full of delicious food and drink, dancing, photo booth fun, and more! 📸 🥂

Proceeds from the event benefit the Rett Clinic at Children's Hospital Colorado to continue and expand operations, fund research, and support children and families who are affected by Rett Syndrome.💜

Tickets: $110 per person • $1000 for a table of up to 10

Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets today!

01/09/2026

Applications for the Rett Sibling Scholarship close on January 29th!

The Rett Sibling Scholarship, sponsored by Acadia Pharmaceuticals Inc., aims to shine a light on these often unsung heroes of the Rett community. For the 2026-2027 academic year, 10 scholarships of $5,000 will be awarded to eligible siblings of individuals living with Rett syndrome.

Visit RettScholarship.com to apply.
Acadia Pharmaceuticals

01/03/2026

Get ready for a festive night of fun and excitement with our Rocky Mountain Rett Village! ✨🎭

✨ Savor delicious Creole-inspired cuisine
🥂 Enjoy our open bar
🎲 Try your luck at our lively casino tables
💃 Kick up your heels with DJ Trip after dinner
📸 Strike a pose in our fun-filled photo booth
🏆 Bid on incredible auction items
🤝 Celebrate with RMRA families, friends, and supporters

Tickets: $110 per person • $1000 for a table of up to 10

Every ticket includes a souvenir Mardi Gras glass, our signature open bar and $100 in casino cash for gaming fun and free parking.

Registration is open now!! Visit https://www.rmrett.org/events/mardi-gras-fete-2026 to purchase your tickets today!

12/31/2025

2025 Recap! 🔁💜

2025 was full of wonderful events, moments, and people.

🌟 Mardi Gras Féte 2025
🌟 R4R Spring 2025 Fly-Fishing Tournament
🌟 R4R Women's 2025 Fly-Fishing Tournament
🌟 Girls on the Rise 2025
🌟 R4R Fall 2025 Fly-Fishing Tournament
🌟 Roll 4 Rett -- RMRA's Annual Family Picnic
🌟 Community Education Day at Children's Hospital Colorado
🌟 R4R Arkansas Invitational

Thank you to everyone who donated, volunteered, or participated in one of our events. Wishing many blessings to you all in the new year 🎊💜✨

12/29/2025

https://rettsyndromenews.com/news/fda-approves-daybue-stix-new-powder-formulation-rett-syndrome-treatment/?mc_euid=f18992db2f&utm_source=RETT&utm_campaign=d3591c82ee-Email_ENL_US_RETT&utm_medium=email&utm_term=0_ca8f619b8e-d3591c82ee-75127345

Daybue Stix, a new powder formulation of the strawberry-flavored Rett syndrome medication, is now approved by the FDA for those 2 and older.