Rocky Mountain Rett Association

Rocky Mountain Rett Association Rocky Mountain Rett Association seeks a cure for Rett Syndrome.

Until a cure for this disease is found, we envision a region where girls with Rett Syndrome and their families have access to the resources, care and support they need, where the public is aware of, engaged and active in addressing this debilitating disease, and where improved treatments are found to help our girls live a little easier.

Rett Syndrome awareness month is coming to an end, but the search for a cure never stops. Do your part by continuing to ...
10/30/2025

Rett Syndrome awareness month is coming to an end, but the search for a cure never stops. Do your part by continuing to spread awareness, educate your community, and donate when you can. WE are the village. 🤝💜

Meet Tilly! ✨💜 Tilly has Rett Syndrome and lives in Colorado. She loves school and all things that sparkle!
10/29/2025

Meet Tilly! ✨💜
Tilly has Rett Syndrome and lives in Colorado. She loves school and all things that sparkle!

Meet Mia! ✨💜 Mia has Rett Syndrome and lives in Colorado.
10/28/2025

Meet Mia! ✨💜
Mia has Rett Syndrome and lives in Colorado.

Meet Penélope! ✨💜 Penélope has Rett Syndrome and lives in Colorado. She loves Ms. Rachel, balls, tickles and playing hid...
10/27/2025

Meet Penélope! ✨💜
Penélope has Rett Syndrome and lives in Colorado. She loves Ms. Rachel, balls, tickles and playing hide and seek. She loves her brother, and his hugs. She also enjoys being outdoors and silly hats.

Meet Faith! ✨💜 Faith has Rett Syndrome and lives in Idaho. Faith is a determined force to be reckoned with. She sets her...
10/26/2025

Meet Faith! ✨💜
Faith has Rett Syndrome and lives in Idaho. Faith is a determined force to be reckoned with. She sets her mind to a goal and works hard to try to accomplish it! Faith is very atypical. She has preserved speech and some great motor function. Faith wants to be an animal trainer when she grows up. Faith loves therapeutic horse riding, gymnastics, Girl Scouts, and Dolly Parton.

"Meet Hazel! ✨💜 Hazel has CDKL5 and lives in Montana. Over the past year, Hazel's journey has taken her to renowned medi...
10/25/2025

"Meet Hazel! ✨💜
Hazel has CDKL5 and lives in Montana. Over the past year, Hazel's journey has taken her to renowned medical centers such as the Mayo Clinic and Colorado Children's Hospital, where she has received exceptional care and support. Hazel has started walking since she went to the Canadian Center for Development. Her parents have now changed their focus to language development. ""We are most thankful for a beautiful happy little girl!"" says Hazel mom.

Meet Tatum! ✨💜 Tatum is 19 years old and she has Rett Syndrome. Tatum recently graduated from Chatfield Senior High Scho...
10/23/2025

Meet Tatum! ✨💜
Tatum is 19 years old and she has Rett Syndrome. Tatum recently graduated from Chatfield Senior High School and has been attending a transition program at Fletcher Miller School for the past year and a half. She loves music and being with friends and family. Click the link below to read a blog about Tatum! https://www.rmrett.org/news-from-rmra/rett-syndrome-awareness-month-blog-meet-tatum

Don't miss the Community Education Event, happening THIS SATURDAY at Children's Hospital Colorado. Join us to learn abou...
10/23/2025

Don't miss the Community Education Event, happening THIS SATURDAY at Children's Hospital Colorado. Join us to learn about:

-Rett Syndrome, CDKL5 Deficiency Disorder and many more diagnoses seen at the Rett Clinic
-Advances in treatment & research
-Family resources & caregiver support
-Advocacy opportunities & more

The event will begin at 8am, and is also available by livestream! Registration is $5 per family. We hope to see you there as we work together to empower families and educate our communities. It truly takes a village! 💜

Visit our website to learn more about the event and register!

Meet Ifenne! ✨💜 Ifenne has Rett Syndrome and lives in Colorado. Ifenne is 8 years old and was diagnosed with Rett Syndro...
10/22/2025

Meet Ifenne! ✨💜
Ifenne has Rett Syndrome and lives in Colorado. Ifenne is 8 years old and was diagnosed with Rett Syndrome when she HAD just turned 3. She may not be able to speak, but she brings joy to everyone she meets. She's a social butterfly who loves people and animals. Some of her favorite things are going to the movies, swimming, exploring, reading, cooking with mommy, and watching Mickey Mouse. She enjoys doing most things any other person would, she just does it differently.

Rett Syndrome Fact #7✨💜
10/21/2025

Rett Syndrome Fact #7✨💜

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Morrison, CO

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