Rocky Mountain Rett Association

04/28/2026

Keep an eye out.... 👀🎣
Tickets are going on sale soon for R4R’s Fall 2026 Fly-Fishing Tournament! Don’t miss a three-day weekend in beautiful Almont, CO, filled with fishing, eating, socializing and relaxing. Proceeds from the event benefit the Rett Clinic at Children’s Hospital Colorado. Do what you love to help someone else and get ready for R4R Fall 2026! Registration coming soon. 🤝

04/22/2026

The R4R Spring 2026 Online Auction is Now OPEN!
Get ready to bid on incredible items and experiences while supporting a great cause.

⏰ Bidding Closes: Saturday, April 25 at 8 PM (MST)

Happy bidding!

https://e.givesmart.com/events/Ldp/i/

Risers4Rett

04/10/2026

April 10th is National Siblings Day! There are so many amazing siblings in our community who show up with strength and love to care for their brothers and sisters daily. Siblings are warriors!
🫂💜
Click https://www.rmrett.org/news-from-rmra/siblings-day-honoring-the-unique-relationships-in-rett-syndrome-families to read our Sibling's Day blog from 2024.

04/06/2026

Tight Lines for Tillie: A Fundraiser Supporting the Rocky Mountain Rett Association 💜

Join the Tinsley family as they fundraise for the Rett Clinic at Children's Hospital Colorado. Tillie has a powerful story, and is now a 2nd grader with physical therapy, occupational therapy, speech therapy, and more hospital visits in her short life than any child should have to log. She handles all of it with a grace that humbles her family.

Visit https://www.coloradogives.org/story/lkd3eg to read more of Tillie's story and donate. It takes a village! 🌟💜

Risers4Rett

04/04/2026

Ascend 2026, the Rett Syndrome National Summit, is scheduled for June 30-July 3 in Prior Lake, MN. This event is an excellent opportunity to connect with other Rett families, clinicians, and researchers. Visit https://www.rettsyndrome.org/families/rett-education/ascend-national-summit/ to learn more.

04/03/2026

https://www.youtube.com/watch?v=GsUf3sRrrbA

Two teens living with and their moms sit down to play with puppies and share what adventure, joy, and possibility really look like. 🐾💜 Curiou...

04/03/2026

https://rettsyndromenews.com/news/fenfluramine-reduces-hard-treat-seizures-rett-syndrome/?mc_euid=f18992db2f&utm_source=RETT&utm_campaign=efe146cc7a-Email_ENL_US_RETT&utm_medium=email&utm_term=0_ca8f619b8e-efe146cc7a-75127345

Fenfluramine, an add-on medication approved for certain types of epilepsy, helped reduce seizures in three girls with Rett syndrome.

04/01/2026

Our 8th Annual Mardi Gras Fete was a great success!
Thank you to everyone for your generous support - We are deeply grateful to our sponsors, donors, volunteers, speakers, performers, and every guest who showed up with heart and generosity. It takes a village! 💜💛💚
Visit https://www.rmrett.org/news-from-rmra/mardi-gras-fete-2026 to check out our Mardi Gras blog. 🌟

03/27/2026

The countdown is on - just four weeks to go! R4R's Spring 2026 event is nearly at capacity, and we don't want you want to miss this one. If you're planning to join us, now's the perfect time to secure your spot!

Visit https://www.risers4rett.org/events/spring-2026-tournament to learn more.

Risers4Rett

03/24/2026

The Rett Clinic at Children's Hospital Colorado offers support for a variety of different diagnoses - including Rett Syndrome, CDKL5, and FOXG1 Syndrome.

03/22/2026

In 2025, the Rett Clinic at Children's Hospital Colorado welcomed an all-time high of new patient and follow-up appointments. It is because of your donations and generosity that it has been possible to for the clinic to be able to offer more clinic days! We are so grateful for your support - it truly takes a village.💜

03/19/2026

Honoring Tristen at Mardi Gras! Thank you for your incredible dedication to the Rett Clinic! You will be missed 💜